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Discussion Starter · #1 ·
I put some pictures of my son's rash on my blog (link in siggy). Dr says it's "non specific viral rash", along with RSV, double ear infection, and sinus infection (he's one sick little guy...has been sick for two weeks with this current illness...although the rash only the last two days).<br><br>
A little background (this is very much the short version): He's special needs, has a chromosomal deletion that includes an airway malformation, dysphagia with aspiration, palate dysfunction, primary immune deficiency, growth suppression, malformed external and middle ears... There's more but it doesn't impact this current illness.<br><br>
He's sick A LOT, usually upper respiratory, ear infections (chronic due to his palate dysfunction and malformed ears), stomach bugs...all viral (his immune deficiency specifically is T-cell lymphocytes which fight off viral infections, so he can't fight viruses or hold immunity to them very well)<br><br>
He's had a rash like this before, last summer, but the accompanying symptoms were very different. Last summer it started with vomiting/diarrhea and fever, the rash came when the fever broke and started on his face, moved down his body, and was gone in three days. It seemed to me very similar to Rubella. Dr said "non specific viral rash".<br><br>
This one came 10 days after he was put on abx for a double ear infection (bloody puss coming out of both ears) plus a sinus infection. Then his cough got worse, then day 10 he broke out in the rash, started on his arms and back, spread to his legs, then up to his face. It's not on his stomach at all. No vomiting, no diarrhea, no fever (anymore, there was a fever initially with the ear infections). No pustules on the rash, it doesn't appear to itch, it blanches. Dr says "non specific viral rash", again.<br><br>
Any thoughts? Has anyone seen a rash like this??
 

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Poor little guy! And mama!<br><br>
That rash looks like the hives my dd#2 had a couple of times last year. I could never pinpoint what set them off, though.<br><br>
Could it be a reaction to the antibiotics? I've heard that a reaction can be delayed (I see this didn't happen until day 10).<br><br>
I hope you get an answer. I hate mystery rashes.<br><br>
Jill
 

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my dd1 had a rash like that after a fever illness several years ago. the rash alarmed me more than the fever, but the dr said it just happens sometimes after a virus.
 

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Discussion Starter · #4 ·
Thanks for the responses...no, I'm sure it's not hives, besides he wasn't on abx the first time this rash happened. I've read up a lot on "non specific viral rashes" and I guess they're very commong with viral illnesses. It just seems like such a specific symptom that they'd (the drs) know more about it. I guess what matters is he's doing okay still...he actually slept decently last night! I think he only got up twice, but it may have been three times (I get lost in my delirium).<br><br>
I have a huge briefing at work today, so here's hoping that he stays well all day so I can get through it!! LOL! (hubby stays home with the boys, so at least I don't have to worry about daycare)
 

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Yup! I've seen that rash before. My daughter had it a couple of times when she would be dealing with a virus of some sort. I don't always say this, but I believe your Dr. is right. Non-Specific rashes are extremely common with virus's. My daughter's have always gone away on their on.<br>
As long as there are no other worrying symptoms, I wouldn't worry about the rash and I wouldn't do anything to it but let it run it's course.<br><br>
Good luck!<br>
Andrea
 

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Yup we've seen alot of this rash this winter - all my kids and myself had it once. My youngest (who also has PRS) has had it twice. We where told it's a viral rash nothing can be done. I just wish these didn't come with nasty colds as well. My poor DD is one round two of bronchitis in that last month 4th one this winter. She even had an ear infection(despite the ear tubes- they got pluged) and ended up on 10 days of Abx and the thought that we may have to replace her tubes less then 6 months after they where put in (she has to have ear tubes as niether of her eustation tubes is funtional)<br>
Just reading your blog and I hate to say it but be prepared for chronic sinus issues, my DD has a chronic lowgrade infection that they won't treat with abx unless it gets bad because the abx where doing alot of damage to her stomach. If they haven't put tubes in his ears I would recomend them - they arn't perfect (as we have learned) but they cut down on the number of ear infections and get the fluid out of the ears so that the child can hear. This will be VITALY important for speech, I think you had at another time that your son has a cleft as well so speech is a big issue and to speak they need to hear.<br>
I'm also sorry to hear about the Q22 del, Megan was tested for this and it came back negative but the genetist wants a larger segment test done(our pead only ordered a small segment test) because he belives Megan has some form of a 22del although as far as we can tell it is mild.
 

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Discussion Starter · #8 ·
<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>2busy2clean</strong> <a href="/community/forum/post/10757159"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Can't help with the rash but gotta say,<br>
your boys are beautiful!</div>
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Thank you!!!! I tend to agree, but I recognize I may be biased! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br><div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>momtoalexsarah</strong> <a href="/community/forum/post/10760371"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Yup we've seen alot of this rash this winter - all my kids and myself had it once. My youngest (who also has PRS) has had it twice. We where told it's a viral rash nothing can be done. I just wish these didn't come with nasty colds as well. My poor DD is one round two of bronchitis in that last month 4th one this winter. She even had an ear infection(despite the ear tubes- they got pluged) and ended up on 10 days of Abx and the thought that we may have to replace her tubes less then 6 months after they where put in (she has to have ear tubes as niether of her eustation tubes is funtional)<br>
Just reading your blog and I hate to say it but be prepared for chronic sinus issues, my DD has a chronic lowgrade infection that they won't treat with abx unless it gets bad because the abx where doing alot of damage to her stomach. If they haven't put tubes in his ears I would recomend them - they arn't perfect (as we have learned) but they cut down on the number of ear infections and get the fluid out of the ears so that the child can hear. This will be VITALY important for speech, I think you had at another time that your son has a cleft as well so speech is a big issue and to speak they need to hear.<br>
I'm also sorry to hear about the Q22 del, Megan was tested for this and it came back negative but the genetist wants a larger segment test done(our pead only ordered a small segment test) because he belives Megan has some form of a 22del although as far as we can tell it is mild.</div>
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Yes, he does have tubes in, they were just put in Feb 22nd and 8 days later he had a double ear infection already. The same infection we're still trying to get rid of. Just today his right ear started draining again (after it had already stopped draining, ped said it was clear on Monday) Uggh.<br><br>
He sees the velopharyngeal insufficiency team in Cincinnati on April 9th, hopefully they can do something to help with his palate dysfunction, the cleft palate surgeon says he can't do anything, but the VPI team is more specialized.<br><br>
We have him in speech therapy as well as ASL classes, so we're working heavily on communication. He also gets fitted for a bone conductive hearing aid on March 24th. Aside from the chronic fluid and infections, he also has extremely narrow ear canals (which blocks some sound from getting through) as well his left ear drum being only half the size it should be (which decreases conductivity). So his hearing is pretty bad!<br><br>
The rash is still very much there...actually got a little worse after I took the pictures, and now is flatter and redder...almost like little tiny flat scabs. But it's still not bothering him in the slightest. So we'll keep on keepin' on.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 
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