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Discussion Starter · #1 ·
DD has gained weight slowly since birth and is now getting about 6 oz. a day pumped milk to gain .5 an oz. a day. I am slowly going through my freezer stash... She nurses constantly so its very hard to find time to pump. I'm getting about 2-4 a day pumping at night since she'll sleep for a decent stretch most nights. Our family doctor said she has a slight anterior tongue tie but not enough for that to be a problem.<br><br>
30 sec. video: <a href="http://s107.photobucket.com/albums/m313/taryn237/?action=view&current=0426091147a.flv" target="_blank">http://s107.photobucket.com/albums/m...426091147a.flv</a><br>
5 sec. video: <a href="http://s107.photobucket.com/albums/m313/taryn237/?action=view&current=0426091147.flv" target="_blank">http://s107.photobucket.com/albums/m...0426091147.flv</a><br><br>
Photos:<br><a href="http://i107.photobucket.com/albums/m313/taryn237/Tongue%20Tie/IMG_3880-1.jpg" target="_blank">http://i107.photobucket.com/albums/m...IMG_3880-1.jpg</a><br><a href="http://i107.photobucket.com/albums/m313/taryn237/Tongue%20Tie/IMG_3882-1.jpg" target="_blank">http://i107.photobucket.com/albums/m...IMG_3882-1.jpg</a><br><a href="http://i107.photobucket.com/albums/m313/taryn237/Tongue%20Tie/IMG_3885-1.jpg" target="_blank">http://i107.photobucket.com/albums/m...IMG_3885-1.jpg</a><br><br>
I had some pain nursing but not now. I can't see if her latch is shallow because I have very large areolas and there's no way she could take it all into her mouth. Her palatte does seem high. Not sure what else I should look for...
 

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From the videos I'd say your baby appears to have a tight frenulum. I would suggest you seek a second opinion. Everything you describe, constant nursing, early pain with nursing, slow weight gain etc. can be attributed to the tight frenulum.
 

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I wouldn't say posterior... I would say it's probably a type 2 tie from what I can see. The tongue without a doubt looks restricted though. Are you able to get a better picture? I know how hard it is, I remember holding my 2 week old down to take a picture of under her tongue. The best way to do it is turn her upside down and lift her tongue with a finger and have DH snap a pic. I know, sounds cruel, lol<br><br>
How close are you to NY? I would suggest that you send your video (a picture if you can get it) to an Cathy Gena Watson (a reputable IBCLC who works with Dr. Coryllos). We traveled from MD to NY to see Dr. Coryllos for DD's clip and I highly recommend that if you're willing, to go see her.<br><br>
ETA: ANY tongue tie causes a problem. Whether it be with BFing, speech, foods, their teeth... Most doctors are not skilled enough to understand how damaging a tongue tie is if left unclipped. Another thing to keep in mind, according to Dr. Coryllos (the expert in tongue ties), where there is an anterior there is almost always a posterior tie.
 

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The IBCLC who works with Dr. Coryllos is Cathy Watson-Genna. She's been a HUGE help for me and my DD, who had posterior tongue tie.
 

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Discussion Starter · #5 ·
How do I send a pic? Do they have a website?
 

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Discussion Starter · #7 ·
Ok thanks. Now I'm checking my email every 5 min. lol. I did get some pics though. Added to post 1.
 

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That looks like a classic anterior tie and a labial lip tie. There may be a posterior tie behind it but that's not posterior, that's anterior.<br><br>
I would really consider traveling to NY and see Dr. Coryllos. She is the expert and once she clips the anterior, she'll check for a posterior.
 

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<div>Originally Posted by <strong>sattygirl99</strong> <a href="/community/forum/post/13683162"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">That looks like a classic anterior tie and a labial lip tie. There may be a posterior tie behind it but that's not posterior, that's anterior.<br><br>
I would really consider traveling to NY and see Dr. Coryllos. She is the expert and once she clips the anterior, she'll check for a posterior.</div>
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ITA! Dr. Coryllos is great. She and Cathy Genna work together often.
 

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Taryn- I just emailed Cathy with my DS's tongue pictures and she was able to confirm by email that it's posterior TT so we are going to Dr. Coryllos next week to have it clipped. I'll let you know how it goes!
 

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Discussion Starter · #11 ·
Yeah this was Cathy's response:<br><br>
"SLIGHT? That's pretty significant. Being able to lift up the tongue is the most important movement for breastfeeding. The pics don't show much ability to lift her tongue.<br>
Please see someone who knows how to help.<br>
If you want to see Dr. Coryllos in Mineola NY you can call 516 671-6816."<br><br>
I'm waiting to hear back from Dr. C.
 

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Dr. C is the best! But keep on her... She's wonderful but an older lady and a tad bit scatterbrained... It took me THREE phone calls to get in touch with her... Don't just leave a messsage, ask to be connected to her!
 

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Discussion Starter · #13 ·
I want to go to Dr. Coryllos but DH isn't willing at this point. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> I made an appt. with a doc recommended by a LLL friend Dr. Hugo Quinones in Westfield. The assistant I talked to said he might want to do the procedure in the hospital since DD is only 3 months... is that normal? I thought it was a quick in office type thing.
 

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Most ENT's you see are going to make this a huge deal... hospital, general, recovery, etc.. It IS a simple in office clip...<br><br>
Keep working on your DH about going to see Dr. Coryllos...
 

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I don't mean to hijack this thread but I highly suspect my 3 month old has a TT. Does anyone know how I can find a dr in AZ who has experience with TT?
 

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Discussion Starter · #16 ·
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<div>Originally Posted by <strong>LorenaAZ</strong> <a href="/community/forum/post/13719831"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I don't mean to hijack this thread but I highly suspect my 3 month old has a TT. Does anyone know how I can find a dr in AZ who has experience with TT?</div>
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Did you try posting in the tribe for your area?
 

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<div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>Taryn237</strong> <a href="/community/forum/post/13708251"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I want to go to Dr. Coryllos but DH isn't willing at this point. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> I made an appt. with a doc recommended by a LLL friend Dr. Hugo Quinones in Westfield. The assistant I talked to said he might want to do the procedure in the hospital since DD is only 3 months... is that normal? I thought it was a quick in office type thing.</div>
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Ugh! I really hope you can convince your DH to go to Dr. coryllos. It should be a relatively simple procedure. She's a retired pediatric surgeon, and now she only does tongue-tie procedures. The actual clipping will take a couple minutes. Her nurses will help. You just swaddle up baby, and then she numbs the area under the tongue and clips. There may or may not be some blood; it depends how big of a cut she has to make. It takes her much longer to explain the procedure, give a mini-lesson on tongue-tie, write up the paperwork (she does everything by hand!), and give you follow-up procedures.<br><br>
I'd be nervous to go to other people besides Dr. C. She's the absolute expert in this. She's done so many clippings in her career. If I lived in the NYC area, I wouldn't even consider going to anyone else.
 

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Discussion Starter · #18 ·
I canceled that one and am going today to Dr. Janjua in Bedminster, NJ. A LLL friend went to him and said he was great so hopefully! I met with a fam. doc/LC who said her tongue tie is slight and she thinks it is allergies too (back to lurking in the allergy forum for me) so I'm going to do a total elim. diet next week if she doesn't start gaining more from just the clipping. Its been a long road, but DD is very happy and is following a curve with the supplemented bm.
 

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Discussion Starter · #19 ·
It was fine. I held her and it was quick but there was more blood than I thought there would be <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> She calmed down and nursed within a few min. Hope this helps!
 

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I hope it helps too! Keep us posted!<br><br>
I also want to say that we had DD's posterior tongue tie clipped twice, and both times it felt a tiny bit better immediately, and her latch looked a little better immediately, but then didn't REALLY improve for over a week or maybe longer. It was so gradual that I didn't notice it. After the second clipping, it was probably two weeks before I had zero nipple pain and her latch looked great. So even if it takes a while to improve, don't lose hope! You'll get there! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up">
 
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