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I know how scary this must be, we just went through a roller coaster of a year w/Zoe. She had some really bad side effects w/the anti-seizure meds.
I don't have any particular advice, just ask as many questions as you can come up with. The epilepsy foundation's forums might be useful: http://www.epilepsyfoundation.org/Forums/index.cfm Get second opinions.
In any case, we learned that the docs really don't know how the brain works, and they don't know how the meds work. It is all trial and error, educated guesses. We were extremely frustrated w/Zoe's treatment.
(((((Hugs))))) for you and your family.
I don't have any particular advice, just ask as many questions as you can come up with. The epilepsy foundation's forums might be useful: http://www.epilepsyfoundation.org/Forums/index.cfm Get second opinions.
In any case, we learned that the docs really don't know how the brain works, and they don't know how the meds work. It is all trial and error, educated guesses. We were extremely frustrated w/Zoe's treatment.
(((((Hugs))))) for you and your family.
