Discussion Starter · #1 ·
Hi, my name is Emily. I have three girls, my youngest has Cri Du Chat syndrome. She is 5 months old and we only got the diagnosis 2 months ago. She is doing very well in her health and at the moment is hitting her milestones, with the exception of speech, no vowel sounds as of yet. She has quite a bit of difficulty sleeping. She sleeps a total of 8 hours in a 24 hour period. She wakes about every hour at night, and takes 20 minutes to get back to sleep, so she is only sleeping 40 minutes in a row. I am exhausted and hitting rock bottom as far as my emotions go. She is truly a lovely little being, very sweet natured, always happy. My question is, how did you all go about explaining to the siblings that this baby that they were waiting for, who they have plans imagined for, is going to be different. I know that they love her, that is not a question. But, it feels like we are keeping a secret, and I don't want it to be that way. Should I just wait until she starts having delays and they start asking questions? I am so lost on this. Any answers would be so appreciated.