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Discussion Starter · #1 ·
I guess I'm looking for some re-assurance of BTDT. My almost 3.5 year old had his first febrile seizure May 30th. We went to the ER and had the full workup, a CAT scan, chest x-ray, etc. which in and of itself freaked me out. It was all negative, except for a severe ear infection and temp of 102 by the time someone took it. We were out of town and our own pediatircian concurred later, stating it was a classic febrile seizure. We went through febrile seizure education and felt prepared should we need to be.<br>
Fast forward to this past Saturday. We're out of town at 7-year old DD's first swim meet. It's overcast and kind of drizzeling rain. Very humid but not that hot. We are under a tent shelter. DS is having fun, running around and playing with all of DD's friends. He comes up to me and says he's hungry. I get in the cooler to hand him some food, when like in slow motion he sits down than goes unto his back into a seizure. Despite knowing I should let him lay down, I also don't want to further tramatize DD and those around us, so I put him on my shoulder. It lasts around 2 minutes and then he slept, just like the dr. said was normal with a febrile seizure. The thing is, we did not have a thermometer with us (needless to say it's now part of the "kit"), so I don't know how hot he was. When we got home he only had a 99 degree temp.<br>
Called dr. first think today and she wants to wait for seizure number 3 before anymore tests. Will has been completely himself every since. We're all going with he got too hot Saturday. I just am so worried when I think about it. I would love to hear from some mama's who have gone through this, their child out grew it and life was swell. My DD has been so anxious ever since. She is a natural worrier anyway and this has just sent her over the edge.<br>
Thanks for making it this far.<br>
Pamela
 

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It sounds like you are pretty certain these were both just febrile seizures and it's just that nagging doubt of "could it be something more"? Am I reading this right? Isn't the hardest part of parenting the not knowing?<br><br>
I don't have much more info for you. I have a cousin who suffered from seizures in childhood and was on anti-seizure medication. All I can recall about that was that there were no temp -related triggers. They always came out of nowhere. You've had two episodes that were pretty well associated with a fever trigger which means febrile. I would hang on to that and try not to worry.<br><br>
Oh, hugs to you and your little one.
 

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Well IMO, it's either a "febrile" seizure (spiked fever related), or it isn't. Clearly the second one was not. I would not wait for a third seizure, because any seizure can affect brain function. I would insist on seeing a pediatric neurologist for some answers. I hope it's nothing serious and he'll be just fine.
 

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I would be scared to death, but I think I would try to follow the doctor's advice. My experience with neurologists tells me that most would want to put your child on an anti-seizure medication as a preventative. I would try to avoid that, having been on an anti-seizure drug myself. If your child has another seizure (febrile or otherwise), then I would be insistent on some treatment.<br><br>
I had a fair number of side effects from anti-convulsants, and I wouldn't want my child on one unless there was clear cause for it.<br><br>
That's just my opinion, but you need to follow your own heart and judgment. Make the choice that you can live with.
 

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Discussion Starter · #5 ·
Thanks for the replies. Uptown Girl, that's just it, I don't really know what his temp was, as we were not able to take it for a couple of hours after the seizure was over. It they truly are febrile, there is no brain damage and the meds they would put him on have pretty strong side effects as already mentioned.<br>
I was really just wondering if anyone had experience with or had heard of a child getting overheated and that bringing on the febrile seizure, as that is what the pediatrician suspects. It's just that all the literature I've found talks about illness bringing on the fever, not getting overheated. My little one is very fair and sweats easily, so the more I have thought about this, the more I do think it is possible. It really is so much the unknown. It has also really made me realize how I take my children's good health for granted.<br>
Thanks again and if anyone has heard of getting overheated as a trigger as opposed to an illness, I would love to hear about it.<br>
Pamela
 

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You know, now that you say that, after my brain surgery, my neurosurgeon told me that I should avoid overheating (including hot showers and working in the summer hear). He also said that being overheated and having a beer was even worse (not that I think your child was having a beer). So there might be a real connection.
 

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Discussion Starter · #7 ·
Thank-you Thank-you Cajun Mama! Yeah, DS was not having a beer, but a friend has since said we probably need to have him sipping on Gatorade while outside. That stuff has always scared me too, with the bright colors and all. I guess you take the lesser of evils. Thanks again, I really do feel better now.
 

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Was your son in the pool too, or just watching? Febrile seizure can be brought on by a quick drop in temp too. That is why it is not recommended to put a child with a high fever in a cool bath.<br>
It sounds like both times he did have a fever and I would trust the doctor and wait although I know that is hard.<br>
My daughter had a febrile seizure when she was 4. She is 6 now and has never had another but I remember how terrifying it was and I am really sorry you are going though this.<br>
I am sure you have already read this but almost all kids who have them never have another after the age of five.
 

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I would probably keep him hydrated with water. I don't know about how the additives in gatorade type drinks might affect him while you're trying to keep his system stable.
 

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I think you've gotten much better advice than I gave. I didn't realize the two seizures were so close together. I did know a friend whose 2 year old had several seizures (days then weeks apart) but it was related to the MMR. He's fine now, but it scared them to death. I hope you get answers and all is good.
 

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One of my children had their first FS at age 4 mos, and their last at age 7 yrs., (which is outiside the age norm).<br><br>
It was never fun. Even when we knew it was coming (high fever spiking quickly) , it caught dh and me off- guard nearly every time.<br><br>
Child is uber healthy. If that matters.
 

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So sorry for your family. Febrile seizures are so scary. I wanted to agree with the pp that they can occur with a drop in temp as well as a spike so you could take a temp after one and have it be pretty low. Overheating can cause a fever so I think that is reasonable. As far as electrolyte formulas go - they will do nothing to control a body temperature. They can just replace electrolytes lost to sweating, vomiting, etc. Plain old tepid water can help reduce fever though. But if you want to go with an electrolyte formula for other reasons the brand Recharge is a good one (I don't think it has any artificial colors or such). After my son had his first f.s. we just became very liberal with Tylenol dosing at the first sign of a fever. I hope this helps.
 

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Discussion Starter · #13 ·
Thanks everyone! I really appreciate all the kind words and insight. I agree we will stick with water. In fact, the day before it happened, we were at the park where DD has swim practice and a little girl, probably not much more that two, broke off a piece of nerds rope and gave it to Will. One of the first things I said to DH Saturday was, maybe it's the nerds rope. Of course I'm sure it was the heat, but the thought of the sugar and artificial everything was driving me nuts!<br>
Of course now I'm just praying we can avoid it, but I have a feeling we will be in the out grow it category since we had another one almost a month to the day of the first one.<br>
UUMom, I noticed you mentioned knowing the temperature was spiking. Did you have any advanced signs? Everything I've read has said many times the seizure is the first sign of temp, which is how it's been with Will. I would love to hear of any "clues" you might have noticed before hand.<br>
Pamela
 

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It's not so much the spike or how high, but how fast it goes high. There wasn't much notice. She has a strong immune system, rarely gets sick. Her fevers came on quickly and high and then they were over.<br><br>
I've only ever experienced them with quickly spiked fevers.<br><br><div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>socialworkmamma</strong> <a href="/community/forum/post/11601274"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Thanks everyone! I really appreciate all the kind words and insight. I agree we will stick with water. In fact, the day before it happened, we were at the park where DD has swim practice and a little girl, probably not much more that two, broke off a piece of nerds rope and gave it to Will. One of the first things I said to DH Saturday was, maybe it's the nerds rope. Of course I'm sure it was the heat, but the thought of the sugar and artificial everything was driving me nuts!<br>
Of course now I'm just praying we can avoid it, but I have a feeling we will be in the out grow it category since we had another one almost a month to the day of the first one.<br>
UUMom, I noticed you mentioned knowing the temperature was spiking. Did you have any advanced signs? Everything I've read has said many times the seizure is the first sign of temp, which is how it's been with Will. I would love to hear of any "clues" you might have noticed before hand.<br>
Pamela</div>
</td>
</tr></table></div>
 

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Have you ever read "How to Raise a Healthy Child Inspite of Your Doctor' by Dr. Robert Mendelsohn sp? It talks about fevers in there and febrile seizures. It's a pretty good read, but I don't agree with his take on psychology.
 

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I don't think that the seizure is usually the first sign of the fever. Maybe sometimes but not in the febrile seizures I've witnessed. I used to teach preschool and had a couple of kids with febrile seizures in one class. One little boy was acting a little strange, sort of falling asleep and leaning over a bit at story time. I told the mom (it was at the end of the day) and they left. Turns out like five minutes down the road he had a seizure. The other boy had a seizure at school once and after it happened I realized he had definitely had an aura about him for a few minutes before. And my son had had a fever the night before and we dosed him with tylenol, then he had the seizure in the early morning after the tylenol wore off.
 

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Pamela, my understanding is close to what some of the other posters have said. It's not the actual temperature that the fever reaches--it's the rapidity of the spike. So even if the final temperature doesn't seem high, it could have been enough to cause the seizure.<br><br>
So it's the initial minutes that are the real problem, almost certainly before you have time to notice anything. You need to be as aware as you can when you know that he's been exposed to something that might cause him to be sick and have a fever.<br><br>
But you can't be so aware that you make yourself crazy. He needs you for his stability when he can't necessarily trust his body.
 
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