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Discussion Starter · #1 ·
Hello,<br>
Has anyone experienced their child having a febrile (complex) seizure? What was the outcome? My DD had her first (and hopefully only) seizure last week, the seizure lasted 20-30 MINUTES LONG!!!!!!!!!!!!!!!!!!!! She was fine in the morning and around mid day started to become very clingy (no fever at this point). Then she started to vomit (clear) and her body stiffened, right side of the face began twitching. She did not stop breathing, but they did put a tube down her throat to protect her airway. They pumped her with meds and she was not her self for almost an entire week (we spent some of those days in the picu). Im so worried and anxious that this will happen again. They diagnosed her with a complex febrile seizure. The weird thing is that her fever spiked to 102/103 but she has no other signs of illness. I feel compelled to write that she also does not have any teeth (but in my mind I find it unlikely to be tooth related). Please share any stories and outcomes to help this anxious mommy!!!!!!!!<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/gloomy.gif" style="border:0px solid;" title="Gloomy">:
 

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How old is your dd?<br><br>
My dd was 10.5 months when she had her first febrile seizure. It was pure hell. It lasted an eternit to me, it was about 15-20 minutes and she did stop breathing and turned blue (hands, lips, eyes, feet). However, she started again on her own- when she passed out. It was the scariest thing I have ever witnessed. She had a 106 temp by the time we got to the ER.<br><br>
The good news is that she hasn't had one since and she is 2.5 now. The fever turned out to be from a horrible UTI and we through agonizing tests found out that she was born with a type of kidney disease which she will hopefully grow out of eventually.<br><br>
Developmentally, dd is fine if not advanced in a lot of areas. I was scared that there would be damage-especially from the fever being that high. The drs at the ER said believe it or not there is usually no damage until its 107 or higher-crazy.<br>
She had never had a fever before that and I had never given her any anti-febrile meds before. Our ped. said that for some reason that some babies are prone to the seizures and usually grow out of them by the time they are 5 or so. Once they have had one though, you need to watch and be careful of any fevers in the future.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">s I know how scary it was for us, I am sorry you went through it as well.
 

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I had a febrile seizure when I was about 2 years old- so like 1975... only once, & I suffered no lasting effects from it. My fever was like 106 degrees though.<br><br>
Joe has not had these, thankfully, but a few times when he was younger, he woke up in the middle of the night screaming & stiff- just "different" than I'd ever seen him- the ped called it "myoclonic spasms" but I am convinced it was mild febrile seizures. And I think it brought back subconcious memories of when it happened to me, because it freaked me out & I felt so bad for him...<br><br>
I hope your dd doesn't have any more seizures- like I said, I only had the one- & I think that is common in these kinds of seizures. Hope you get a lot of responses.
 

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I'm sorry...hugs. It is so scary. Ours was a different experience, not a complex seizure, one night in the hospital for IV fluids (not because of the seizure alone though). He was 16 months then and he's 2.5 now and has not had another. Anyway, it's just extremely scary, and whenever he seems sick I still get really nervous about it. I know that's not extremely helpful, but I felt compelled to at least offer some hugs.
 

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Discussion Starter · #5 ·
Thanks,<br>
Our dd is 16 months old. It was the scariest thing and even worse...it happened while in daycare so I was not even there at that moment to comfort her. <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/gloomy.gif" style="border:0px solid;" title="Gloomy">:<br>
It is just weird b/c she did not have a fever until that moment of the seizure and she does not appear ill at all. Although the meds knocked her out for at least 5 days.....so I guess it would be difficult to tell if she was sick. I certainly hope that she never has to experience this again. The CT scan and EEG came back fine. We are waiting for an MRI appt as we speak. Hopefully all is well.
 

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DD had one last month. She was 15 months.<br>
It only lasted a few minutes but it was horrifying.<br>
She had a fever all day but was not ill then it must have dropped as her temp at the hospital was 99 rectally.<br>
She spaced out in the ambulance but recovered rather quickly. They kept us for several hours took a blood test and said to give Tylenol and some antibiotics for an ear infection(something I am not happy about but this time went along with it as I did not want a repeat seizure.<br>
But the other evening she went into a rage about something and was so worked up she stopped breathing which is what had started the seizure before.<br>
This time is was like she passed out, one minute she was mad next she took a dive head first to the floor.<br>
I am not sure what happened but am wondering if this is something more then just a fit over a toy perhaps something medical. I have to look more into this and get a Doctors appt to discuss it with him.<br><br>
No lasting effects from the febrile seizure, she is still on the ball...but it was an ordeal.
 

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I know how scary seizures can be... if she had no fever before the seizure, I would suspect another cause. My son was 18 months old when he had his first seizure, we rushed to the hospital and he was very unresponsive afterwards - it had only lasted probably 1-2 minutes, but seemed like an eternity. He had no fever whatsoever before, but did afterwards, and they ruled it as febrile. He had a second one in the hospital, again only 1-2 minutes. Our ped was hesistant to accept that it was febrile since he had no fever before the seizure. However, we did all end up with the flu that week. So we went with the cause being febrile. A month later, two more seizures, no fever, we ended up back in the hospital. Turns out he had very low blood calcium causing the seizures. Could be caused from low Vit D (though is was in the normal range at 22) or could be a genetic disorder - we still don't know for sure. But we have to supplement with calcium daily and have his levels checked monthly...<br><br>
So listen to your mommy instinct, if you don't think it's febrile and if she had no fever before, then it very well could be something else. If she has another seizure and no fever, definitely push for more testing. I'm so sorry you all had to go through that... my ds was in the PICU and hospital for five days and it was a very trying and traumatizing time for us all (the IV was in his foot and he wasn't allowed to even stand for the entire time - not to mention all the veins they tried to get an IV in blew because he would scream so hard.... I never want to go through that again).<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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Discussion Starter · #8 ·
I am just so upset about the whole thing.....I don't know what caused the seizure. She was FINE in the morning, but she was a bit grumpy and just not her self the night before. Also in daycare she started to act "differently" late morning prior to the seizure. Daycare reports no fever at 10:30am. Then she had a seizure, but the drs speculate that she was probably in the process of spiking a fever when she started behaving strangely. I just don't know, the consensus at the Children's Hosp. was a complex febrile seizure. The neurologist (who we are not going back to....we have a referral to a new ped neuro) was awful....no bedside manners at all. She was very negative. One minute she was saying how concerned she was b/c the seizure was limited to the right side of her face (atypical of febrile) then the next she cancelled our MRI and said and I quote "another baby came in and it is more IMPORTANT that she get the MRI, therefore I am cancelling your MRI" <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/irked.gif" style="border:0px solid;" title="irked">: Obviously she does not know how to speak to parents who are overwhelmed and upset. So I guess I dont know what to think? I am hoping and praying that she does not have anymore seizures!!!!!!!!!!! In the meantime, we will schedule the MRI. As I mentioned earlier the CT scan and EEG were normal. They also did a spinal tap, blood work and urine all came back fine.
 

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My daughter had one at 9 months and she is a bright and happy child today. It was certainly the scariest experience of my life since I didn't know what a febrile seizure was and I thought she was just dying.<br><br>
Anyway, the seizures are brought on by a sudden temp change so your daughter could have had a "normal" temp and then spiked suddenly and that caused the seizure.<br><br>
Definitely monitor temps in the future. The likelyhood of a repeat declines after they turn 2.
 
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