I need a bit of a reality check, I think. Ds had his follow up appt with our new doctor yesterday to get the results of the IgG tests and stool tests. Unfortunately, the lyme test is not in yet. He had IgG antibodies to about 30 different foods. On one hand, I am not surprised as we already know he and I have leaky gut and I realize that some of these could be foods I am reacting to and he is getting my antibodies through breast milk. I was just dismayed to see so many. Especially since he is doing so well right now. He hasn't reacted to anything for maybe 3 weeks or so. He hasn't been reacting to sals either at all. (wonder why this is?) He has no eczema and is sleeping great. He pooped for the first time in more than 18 months without some kind of laxative last week. He is still only pooping every 4 to 5 days which is not good but better than the previous 9 to 10 days. I was feeling so good before I went to that appointment because he is doing better and now I feel discouraged. His doctor thinks we really should modify our diet to full gaps. Currently, we are avoiding all IgE (soy, fish, eggs, corn) and dairy and eating only 1 gf grain per day. We are eating other starches (ie potatoes, sweet potatoes, beans) but avoid processed sugars. We do eat maple syrup in limited quantities. I am just having a hard time imagining going further than that. Part of me says just look at his symptoms and since he is doing better, continue on this path. The other part wonders if we will ever be able to completely heal if his gut (and mine) keep getting exposed to the starches that are supposedly damaging. His doctor thinks we will continue to see slow progress on our current diet but may not see complete healing or it will take longer than if we just go full gaps now. We already avoid sooo many foods I can't imagine that he can not have his gf oatmeal in the morning and his occasional sweet potato or whole grain rice or rice pasta...all of which he really loves. I don't want to sound whiney, but maybe I am whining a bit. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> She does not suggest avoiding any of the IgG unless we are seeing symptoms. He is eating all of the foods on the list and currently at baseline. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/shrug.gif" style="border:0px solid;" title="shrug"> So what to do? Should I bite the bullet and go for the full gaps and drive myself nuts? Or should we continue as we are for awhile and see how he does?<br><br>
Btw.. the stool tests were mostly within normal limits except he does have a fungal component there that should not be (not candida though). I'd have to look it up to see what it was called. There was one other marker that just confirmed leaky gut. This was all kind of over my head and I have to look at it further to understand it more.<br><br>
We also did a lyme test for him because I had lyme last summer while nursing him. I was treated (maybe not well enough, though according to the doctor) but she is concerned he may have been exposed to lyme through my breasmilk from the time I was bitten until I started treatment. I am chosing at this point to just keep reassuring myself that it is very unlikely that this happened and am glad we tested. Since her office is closed on Friday, I won't have any chance of getting the results until Monday at the earliest so this is how I have to think about it right now.<br><br>
Thanks for listening to my ramble. Just feeling discouraged and worried and needed a few understanding ears to listen.<br><br>
just remembered a plus... the IgG test said he is not reactive to dairy so maybe we could trial some milk kefir or butter or something yummy like that.<br><br>
jen
Btw.. the stool tests were mostly within normal limits except he does have a fungal component there that should not be (not candida though). I'd have to look it up to see what it was called. There was one other marker that just confirmed leaky gut. This was all kind of over my head and I have to look at it further to understand it more.<br><br>
We also did a lyme test for him because I had lyme last summer while nursing him. I was treated (maybe not well enough, though according to the doctor) but she is concerned he may have been exposed to lyme through my breasmilk from the time I was bitten until I started treatment. I am chosing at this point to just keep reassuring myself that it is very unlikely that this happened and am glad we tested. Since her office is closed on Friday, I won't have any chance of getting the results until Monday at the earliest so this is how I have to think about it right now.<br><br>
Thanks for listening to my ramble. Just feeling discouraged and worried and needed a few understanding ears to listen.<br><br>
just remembered a plus... the IgG test said he is not reactive to dairy so maybe we could trial some milk kefir or butter or something yummy like that.<br><br>
jen