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<div>Originally Posted by <strong>whoMe</strong> <a href="/community/forum/post/14194387"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Yasko is the one to look at first there, but I'm not sure if she's actually done a study or published anything.<br><br>
Methyl folate might be strong stuff, so some might want to take it slow, and it requires B12 for absorption - so if you're low on B12/stomach acid, then folic acid might be better until you get that corrected.<br><br>
There's a study somewhere about overmethylation due to too much folate causing asthma and associated issues. It had something to do with turning off the gene that turns off asthma, I think. And I *thought* it was humans...</div>
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I don't think I could overmethylate DS if I tried, but I plan to take it slow. B12, folate, and TMG (all methylation supps) are the recommended course of action to "chelate" his high antimony (I use quotes, because I think in this case they are just supporting the body's own natural chelation). So it has pushed methylation back onto the front burner for me. I got a sublingual B12 - he's still going to swallow most of it though. I think his stomach acid is doing better though - his poops are WAY different - dark brown and no food bits. My Thorne folate is is the mail. I'll add it slowly, thanks for that reminder.<br><br><div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>WuWei</strong> <a href="/community/forum/post/14194594"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I'm a card carrying member of the Folate Fan Club. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/winky.gif" style="border:0px solid;" title="Wink"><br><br>
There is an 'upper limit' for folic acid supplementation, I read 1000mcg. Except for dh's high homocysteine they prescribed 4mg, iirc.<br><br>
Pat</div>
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The "chelation" protocol calls for 10mcg/lb of kid, spread out in 3-4 doses over the day. So that sounded pretty reasonable to me.<br><br>
And after our kefir miracle, I'm taking a very close look at anything you are a fan of <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">.<br><br><div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>TanyaLopez</strong> <a href="/community/forum/post/14194682"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">whoMe says it's a kind of folate (back in Chat), even a kind that's in food.</div>
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Yeah, but I thought I was getting folate!!! Anyhow, a naturally occurring form always seems like the smarter supp to me. I'm working on the assumption that anything that requires "conversion" by DS' enzymes is prone to not getting used very well...<br><br>
I ordered some Thorne folate powder though - I want to start getting some of his own stuff into DS where I can, instead of assuming he will nurse forever.
 

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Discussion Starter · #22 ·
Hey CS, could more folate help your daughter?<br><br><br>
Pat
 

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Discussion Starter · #23 ·
All of these diseases are associated with folate deficiency and the MTHFR gene:<br><br>
Downs syndrome, blood clots, cardiovascular disease, chronic fatigue, IBS, anxiety, fibromyalgia, depression, migraines, strokes, homocysteine, dementia, schizophrenia, nerve pain, Parkinson, miscarriage, infertility, Alzheimers, non-Hodkins lymphoma, gastric cancer, kidney failure, addiction, alcoholicsm, obesity, heavy metals, diabetes, Leiden Factor V, OCD, bipolar, aggression, liver dsyfunction, renal dysfunction, pulmorary fibrosis, autism, breast cancer, colorectal cancer, adenoma, endometrial cancer, lung cancer, spina bifida, neural tube defects, preeclampsia, placental abruption, hypothyroid, psoriasis, etc.<br><br><br><br>
Pat
 

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Discussion Starter · #24 ·
Liver is HIGH in folate.<br><br>
For our "giblet gravy", I pureed the liver in broth in the blender. Totally invisible liver, no bits, no weird stuff to bite into, no bites of LIVER flavor to happen upon. Just pureed liver broth to add to the gravy. I'm going to do this weekly. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/winky.gif" style="border:0px solid;" title="Wink"><br><br><br>
Pat
 

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<div>Originally Posted by <strong>WuWei</strong> <a href="/community/forum/post/14724796"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Liver is HIGH in folate.<br><br>
For our "giblet gravy", I pureed the liver in broth in the blender. Totally invisible liver, no bits, no weird stuff to bite into, no bites of LIVER flavor to happen upon. Just pureed liver broth to add to the gravy. I'm going to do this weekly. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/winky.gif" style="border:0px solid;" title="Wink"><br><br><br>
Pat</div>
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What a great idea. Now if I could only figure out which one was the liver that I took out of the turkey....
 

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Discussion Starter · #26 ·
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<div>Originally Posted by <strong>kjbrown92</strong> <a href="/community/forum/post/14724839"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">What a great idea. Now if I could only figure out which one was the liver that I took out of the turkey....</div>
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Soft, squishy dark red, sorta flat and lobe shaped is the liver. The prune-sized thing is the heart (soft). The hard thing that is connected to another hard thing is the gizzard, I believe.<br><br><br>
Pat
 

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Discussion Starter · #27 ·
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<div>Originally Posted by <strong>mamafish9</strong> <a href="/community/forum/post/14193673"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I haven't seen any evidence linking autism and MTHFR variations, but I do know often autistic kids have methylation issues.</div>
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<b>Found these studies related to MTHFR polymorphism and autism.</b><br><br><b><a href="http://www.jpands.org/vol9no4/boris.pdf" target="_blank">http://www.jpands.org/vol9no4/boris.pdf</a><br><a href="http://www.ncbi.nlm.nih.gov/pubmed/19455642" target="_blank">http://www.ncbi.nlm.nih.gov/pubmed/19455642</a><br><a href="http://www.medscape.com/viewarticle/584398_7" target="_blank">http://www.medscape.com/viewarticle/584398_7</a><br><a href="http://www3.interscience.wiley.com/journal/122295065/abstract" target="_blank">http://www3.interscience.wiley.com/j...95065/abstract</a></b><br><br><br><br><br>
Pat
 

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Discussion Starter · #28 ·
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<div>Originally Posted by <strong>mamafish9</strong></div>
<div style="font-style:italic;">I ordered some Thorne folate powder though - I want to start getting some of his own stuff into DS where I can, instead of assuming he will nurse forever.</div>
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Do you have a link? Or is the capsule able to be opened and pour out the folate powder? I want to get more into ds.<br><br><br>
Pat
 

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<div>Originally Posted by <strong>WuWei</strong> <a href="/community/forum/post/14724796"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Liver is HIGH in folate.<br><br>
For our "giblet gravy", I pureed the liver in broth in the blender. Totally invisible liver, no bits, no weird stuff to bite into, no bites of LIVER flavor to happen upon. Just pureed liver broth to add to the gravy. I'm going to do this weekly. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/winky.gif" style="border:0px solid;" title="Wink"></div>
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My grandmother always did this on Thanksgiving--she actually would simmer the neck, liver, heart (and whatever else is there?) for over an hour, then take out the neck, dice up the rest very fine (blender is even better) and add it all to the pan drippings to make a really yummy gravy! I never knew...Totally need to try this regularly! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up">
 

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<div>Originally Posted by <strong>WuWei</strong> <a href="/community/forum/post/14725111"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Do you have a link? Or is the capsule able to be opened and pour out the folate powder? I want to get more into ds.<br><br><br>
Pat</div>
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Thorne's 5-MTHF:<br><br><a href="http://www.naturamart.com/thorne-research-5-mthf-1000mcg-60-capsules.html" target="_blank">http://www.naturamart.com/thorne-res...-capsules.html</a><br><br>
And their Folacal (folinic acid):<br><br><a href="http://www.naturamart.com/thorne-research-folacal-60-capsules.html" target="_blank">http://www.naturamart.com/thorne-res...-capsules.html</a>
 

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o.k., so I'd like to start supplementing with folate for 2 of my kids with allergies and the baby with down syndrome and me.<br>
I don't know which one.....I was looking at both from thorne's and also how much would I give them??<br>
should I ask the dr. to check ds's folate, homocytein levels ?( ds with down syn)<br>
how do I check for mthfr? homocystein levels for me ?is their a test I can order online?<br>
I don't have ins. right now so if I don't have to pay a dr. and can order atest myself....all the better.
 

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<div>Originally Posted by <strong>mombh</strong> <a href="/community/forum/post/14733446"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">o.k., so I'd like to start supplementing with folate for 2 of my kids with allergies and the baby with down syndrome and me.<br>
I don't know which one.....I was looking at both from thorne's and also how much would I give them??<br>
should I ask the dr. to check ds's folate, homocytein levels ?( ds with down syn)<br>
how do I check for mthfr? homocystein levels for me ?is their a test I can order online?<br>
I don't have ins. right now so if I don't have to pay a dr. and can order atest myself....all the better.</div>
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Checking folate and homocysteine levels might tell you something if they're out of range, but my folate levels were firmly within range even though I saw a huge difference by supplementing folate (and then they went to the high end of the range)<br><br>
MTHFR is a gene test. My insurance covered it, but it was on the order of $1000. If you wanted to go your own route, 23andme tests a huge number of genes, MTHFR included, but you might get more information than you bargained for (they test things like the breast cancer gene and other disease things as well). They're about $500. There's also Yasko's gene test, but I think it's considerably more expensive for less information.<br><br>
As far as folate dosage, I'd start in the range of the <a href="http://www.vitalhealthzone.com/nutrition/vitamins/folic_acid.html#7" target="_blank">RDA</a>, watch for changes, and play around with higher or lower until you find something that seems right.
 

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Discussion Starter · #34 ·
Bumping.<br><br><br>
Pat
 

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Discussion Starter · #35 ·
<p><span><img alt="bump.gif" id="user_yui_3_4_1_2_1330117925261_167" src="http://files.mothering.com/images/smilies/bump.gif"></span></p>
 

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I have the MTHFR hetero gene mutation. And my RBC blood folate is very high. And at present on the "Daily Essential Nutrient" formula by Hardy Nutritionals, my serum Folate high along with high B12 and B6. (Doc assumes it is from the supplement.)

This supplement is supposed to have easier to utilize folate forms, and for B12.
Why then such a high level? And I still have bad anxiety and depression. Are these vitamins building up in my blood but not being used because of the forms?

I'm also going to do the Pyrrole urine test.

What are more affordable ways of doing methylation testing for an adult?


*Note the formula I'm on is an improved version of TrueHope and EmPower+
The founders went their separate ways and branched off the original TrueHope.
D.E.N. is the better researched/studied version.
 
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