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Discussion Starter · #1 ·
So I have been having gut issues... that I am dealing with.... Long story <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/shy.gif" style="border:0px solid;" title="innocent"><br>
About 2 years ago I started reacting on my skin when I kneaded flour for bread. I had a couple of strange reactions when eating washed gluten from wheat. We cut it out of our diets about 2 years ago because of behavioral issues with my son. I cheated here and there without any real trouble. I began having stomach issues last summer. I cut out gluten in the new year... thinking that the spelt flour was just not working for us anymore. I had been off of it for about a week when we had to gluten up my son for a celiac blood test. We ordered pizza. About 5 min after eating it I started sneezing uncontrollably, I swelled, my nose completely shut and stinging in my throat. I was throwing up in the bathroom. This reaction lasted, changing for two weeks.... rashes joint pain , itchy craziness! Scary anyhow. I reacted again using a clean waffle iron that had been used by us only with spelt.... but before we got it second hand, it must have been wheat.<br>
My celiac panel came back fine.... My allergy tests all came back negative.... skin prick and blood test. The allergist wants me to go back and eat it in front of him.... the only thing is that its an almost 4 hour drive away.<br>
Has anyone ever had such seemingly classic allergic responses to a food and had all of the conventional tests come back negative?.... Could this all be happening in my gut? And can you still have an anaphalactic reaction to somthing that isnt showing any IgE involvement..... Arrggggghhhh! I am starting to feel like a big hypochondriac!<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> (and I have to say that my dad has the same thing.... right down to the reactions.... hes never been tested though, but it is so seemingly obvious that he never needed to)
 

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I had the same thing happen with me with soy. And I did eat it in the hospital in front of the doc, and I did get a rash, and a drop in blood pressure, etc etc. So I utterly confounded him, but in the end he agreed I was allergic, and told me not to eat it. Not sure it's worth the 4 hour trip to have them tell you what you already know.<br><br>
I have a couple of theories - (1) I've read there are more immune reactions than just IgE, and that IgG (I think) may be more associated with food. I don't remember exactly, but the RAST blood test may only do IgE - ELISA does both, I think. (2) With mine, all the things I have a problem eating have a mold link, and I'm very allergic to molds. So I'm probably not actually allergic to the soy protein that they test me for, but other stuff it always comes with. So they may be testing you only for the wheat protein, but you are allergic to something else. Ends up meaning the same thing though - stop eating it <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1">.
 

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Discussion Starter · #4 ·

fibre_artist said:
Not sure it's worth the 4 hour trip to have them tell you what you already know.<br><br>
QUOTE]<br>
Thats exactly how I feel about it!
 

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Our allergists go with the "reaction trumps test". According to Dr. Wood at Johns Hopkins, there are IgE-mediated allergies and non-IgE-mediated allergies (typically referred to as IgG allergies, but actually involve more than just IgG.) Doctors, even allergists, who don't have a full understanding of allergies frequently insist that non-IgE-mediated reactions are caused my intolerances, not true allergies, but IgG is still part of the immune system and non-IgE-mediated reactions still impact the immune system and thus still fit the definition of an allergy. And those reactions, though sometimes delayed, can be just as significant. Additionally, it is possible to have an IgE-mediated allergy that, for whatever reason, doesn't show up on the test. I would just trust the reaction.
 

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Discussion Starter · #6 ·
what I worry more about is the fact that I am having classic IgE responses, like swelling in the back of my throat. My GP is worried about an anaphalactic reaction.... nothing I have read has said anything about this other than in an IgE mediated reaction. My reactions are not at all delayed... this happens about 5 min after eating the food.
 

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That's why I said it's possible for a genuine IgE-mediated allergy to come up negative. You have to trust the reaction. A good allergist who understands the entire range of allergies and the limitations of the tests will go with the reaction. If your allergist doesn't believe your reaction, <b>your GP or any other dr. can prescribe an epi.</b> Personally, I wouldn't trust my life to any specialist who questioned that kind of response. Also, not all non-IgE-mediated reactions are delayed; I have read of at least one such reaction that led to anaphylaxis, but it was about a year ago and I don't remember the source; I just kind of made a mental note that it was possible...
 
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