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I'm 33 and I am going to skip it. I think I would also skip it if I was older. My beliefs are that lab tests can be faulty and I would rather not get worried over a faulty test. Same with the HIV test. My MIL got a false positive twice. My question is, how does the test work that it would give a false positive twice? I don't even want to open that box, so keeping it shut. I would probably feel differently with a different family history.
 

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Our second child surprised us with what our pediatrician called "a significant birth defect"--cleft lip and palate. Knowing this, and knowing that we are now very highly genetically predisposed to have another child who has a cleft (our daughter's is the second known occurrence in my husband's family), we will be paying rabid attention at our anatomy sonogram this time around. However, I honestly think it's 80% for my husband's peace of mind, and for both of us to have the opportunity to prepare some fairly innocuous items--special feeding bottles for a child who would in all likelihood be unable to nurse, renting the world's best hospital-grade breast pump, a heads up to our daughter's cleft team that we'll be bringing them a newborn in February, etc.

That being said, however, we have declined all genetic testing. This is partly because I'm 32 and we have no known risk factors beyond cleft stuff, and partly because, like @JenniferC said, it wouldn't change our behavior in any way. Our children's hospital is ten minutes down the road, and heck, we've transported a homebirthed baby to the hospital once before--we could do it again if we were surprised in a different way next time. I have heard of cases where a baby presented with an issue and needed to be rushed across the hospital to a specialist, but my feeling is that the risk:reward ratio is still not in favor of testing there, given that those cases are so vanishingly rare.
 
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I'm 37, might do the nuchal transparency just for self preparedness purposes if there is a downs baby in there, otherwise not planning on much. Both sides of our families have histories of older mamas having healthy babes, so genetics seem to be on our side. My grandma birthed her last babe at 47!
 
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No testing here either. I was following one mamas story in the December due date that had a serious test come back positive. She had to wait a long time for amnio results to find out if the baby truly had the problem, and during that time she was mentally preparing herself to induce at 17weeks and bury her baby. In the end, the original positive test was wrong!!!! All that grief and heartache.... As it is I would have my baby no matter what so I have no desire to test. If something is wrong we can deal with it when it happens.
 

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My brother has spina bifida. So with my son we did the ultrasound where they measure everything. Neck, spine, limbs.. I was offered a amnio. But declined. If it came back that my child had any sort of disability I would love him no matter what. So the risk associated with the test isn't worth it to me.. I plan on doing the same thing this time around. Just in case we need to prepare for a special needs baby.
 

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I have the same mindset as cagnew. But I am not "older" ;)
 

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We would never test because it wouldn't change anything for us before the baby's birth aside from potentially causing undue stress. Beyond the sonograms we decline everything else.
 

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When I was pregnant with my first at 37, we did the nuchal translucency test. Now, at 42, DH is super nervous about increased risks over 40, so we're planning to do the maternity 21 test (? New since DD's birth so don't know much about it). It's a blood test so no risks and will do a lot to relieve his anxiety. I'm not planning on any other testing; I think it can be an opening for more anxiety
 

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I also would never test. First, it wouldn't change anything either way. Second, those tests can create so muh stress and then turn out wrong. I know a woman who tested and they said the baby might be FAS and she quit drinking as soon as she found out she was preg at 6 weeks and never drank heavily before. Multiple tests, tears, immense stress and couple months later they were like "oops, sorry, test was wrong". That stuff can mark a pregnancy and introduce so much unwanted stress. Best to avoid. Plus they can be dangerous
 

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I am 36, this is our third, and we are not planning to do any of the testing. The more I read on the NT test, the rate of false positive was more than I was comfortable with and I wouldn't do any of the follow up testing that is more invasive anyway, plus, as a few have said, it won't change my behavior. My husband and I have some experiences that we feel we'd be equipped to look for whatever resources a child might need depending on what need presented itself beyond the typical if that were to happen. We do pay attention during the anatomy/development scan mostly for brain/spine development (had a friend whose baby had anencephaly so I am really aware of that) and heart development (another two friends who have each had babies with hypoplastic left heart syndrome). But beyond that, we just wait until birth.
 

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I am over 40 and planning on getting the materniT21 test which does not factor in age and does not give you crazy ratios and is similar to an amnio but is not invasive, blood is simply taken like any lab work.
Hey , we just want to know. It is better for me to be prepared if I know my child will be special needs, right?
Also, I think a lot of us older moms get a little anxious and want to know everything is alright and I say, go for it.
 

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I agree with @tracyamber. I'm almost 41 and I am planning to take the MaterniT21. I think it is very interesting that there is a non-invasive test that gives the kind of info it gives. We would not terminate, but we would just like to know. I have also heard of false positives, so definitely something to keep in mind.

(I did not do any type of genetic testing with my DD or DS (and they did not even have ultrasounds). There wasn't a test like MaterniT21 offered then, and besides I was not "AMA" then anyway.)
 
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False positives are inevitable with any kind of screening test especially if the underlying condition is rare. In my opinion it's not a reason to avoid them, just something to be aware of in case you get a positive result.

I'm going to throw out what will probably be an unpopular opinion, but I think it should be aired. That is, that we would probably terminate if we discovered something incompatible with life. In that case it wouldn't make sense to me to drag out the inevitable, and I would rather terminate when the fetus does not have well developed cognitive systems than having to watch a fully developed newborn die. Just my unpopular opinion I guess!
 

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Not unpopular, murrelet. I was just talking with my husband about this today. We both agreed to do an ultrasound as our only medical check-in. For both of us, if we saw some life debilitating abnormality it would be unquestionable about our course of action. I know it sounds selfish, but that's not the role I want to sign up for.
I began taking it even further, and began thinking about what would happen if our baby developed, say, a brain tumor at a year and a half (a friend of mine had this happen... he is now permanently disabled, and at 14 has the mentality of a 4 year old...). It was a surprise to him to hear that I would consider not intervening medically at that point, and letting nature play it out. It would be hard, but so is having to take care of a 4 year old for the rest of your life. Then I began wondering if it would even be legal for me to decline medical intervention... and I got myself all worked up, so decided to change the subject.

I admire all those on here who expressed that this is it, whatever showed on tests, or in real life. I began to feel like I was already a bad mother. Then I realized how much worse of a mom I would be to have a constant feeling that my child was a burden. I believe the souls who come through us know how we'd react, and come through us each individually to experience either the releasing of the possibility, or the coming to fruition with a disability. Neither is right or wrong. It's just our paths.

Thank you for sharing, murrelet. Your honesty allowed my own.
 

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Thank you for sharing, murrelet. Your honesty allowed my own.
Thanks to you too happyday8598. My intent was that we could all be honest here and not judge each other. We all have our own paths to walk after all.
 

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We all have our own paths to walk after all.
We haven't been in this group too long yet, but so far one of my favorite things about our DDC is the sense I get, over and over, that this sentiment is really shared and respected among all of us. We all have our own paths to walk. Sometimes they're really similar, and sometimes they aren't, but the mutually supportive atmosphere and honoring of each other's choices is a big deal to me. Thank you all!
 

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I had my first at 35. This is now my 5th pregnancy with only 2 live births. I am 44. The fact that my eggs are old is real. My concerns at 44 are not the same as they were at 35. I will also be doing the MaterniT21 test and have scheduled my appt. the false positive rate is very low as the test is more sophisticated than the earlier versions of the genetic screening blood test. And I will also do the level 2 ultrasound as I did with my other 2 children. I don't know what I would do if the results indicated a severe disability, but I do know that I want the benefit of having the information sooner rather than later.
 
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