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Discussion Starter · #1 ·
I wrote here about Ian a few weeks ago, how his intense behaviors had resurfaced and I was finally ready to question if it was more than just being "spirited". After talking to his preschool teacher and an OT, we identified a bunch of deep pressure sensory seeking behaviors and thought it might be the root of a lot of his behaviors. There were other things that made me suspect something else (digestive issues, illnesses, etc), so I finally buckled down and tried a gluten free diet.

It's only been a few weeks, but there is already a noticeable difference! AND, we had a slip-up once already (he had some wheat toast) and the next day there was a massive tantrum, but within a day of no gluten he was fine again.

This weekend I even tested him a little with some out-of-the-ordinary activities, some hard transitions, even some "disappointments" and he handled them great!! The one I was most proud of was when we stopped at Cinnabon at the mall, and he was allowed to have a Fruit Chillatta while his brother was allowed a cini-mini, and although he was sad, he didn't melt down!! (it helped that his brother is dairy-free so couldn't have the drink, so both boys weren't allowed to have something that the other boy had).

I picked him up from school today and his teacher said that he had to do some make-up work (he was out sick last week a few days) and he sat and did the work with no problems, and she didn't even put the pressure vest on him! The other kids were doing some other (more fun) activity, and he was occassionally distracted, but he did a really good job. A month ago he would have required one-on-one attention to get a fine motor activity done like that!!

I am just overall amazed!! I mean, who would think that gluten could cause (or exacerbate) all those issues???

We're going to keep him gluten free for a while, then switch him to no-wheat only and see how he reacts.
 

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YAY!!! My son had PROFOUND changes with dairy, soy & corn. Gluten used to constipate him (like seriously--to the point where he almost needed to be inpatient) so we've laid off of it HUGE but not COMPLETELY eliminated it.

But knowing it affected him at all is now making us consider really totally removing it.

I realize it doesn't have the same effects for everyone, but enough people have such significant changes that it's worth trying.
 

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Quote:
I am just overall amazed!! I mean, who would think that gluten could cause (or exacerbate) all those issues???
Same here!!! We've totally slipped the last few days and today was pretty bad. But yes, tantrums, meltdowns, trouble learning, muscle weakness, SPD...all seem much better without gluten!!!

Congrats!

mrsfru
 

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Discussion Starter · #8 ·
Again today, just wonderful behavior!! It's snowing, and he was outside playing. His hands got cold and he came in crying. At first he was just standing there crying, which is SO frustrating when he won't talk!! But I finally got him to stop crying, strip his wet clothes off, sit by the fire, then later he put his stuff on completely by himself and went back out!! Now he's willingly and easily putting his jammies on for bed. A breeze.

Oh, and even at meal time, I had to tell him no to a bite of my biscuit, and he just ate fruit instead!! Then later I saw him take a piece of his brother's pancake to his mouth, then stop, look at me, and ask "is this safe for me to eat?" I said no, but that I had pancake mix for him if he wanted some and that was that! No crying at all.
 

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yay
!! seeing positive change feels so good. and it's pretty cute to see the kids know to ask - my dd (3) now asks about everything. "mama, is that orange gyooooten fwee?" glad to hear things are going well!
 

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YAAAY!!!!! Awww I am SO happy for you!!!


I'm on a gluten free diet myself, but only for digestive reasons. But it really IS crazy how something as minute as gluten can affect anything and everything! People don't understand it unless they've experienced it first hand! That's why they recommend g-free diets for people with autism too.

Ps-- Was it hard to have two sons with two different food allergies?! That's crazy! Props to you for handling things so well though.
 

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Originally Posted by gfreelishy View Post
YAAAY!!!!! Awww I am SO happy for you!!!


I'm on a gluten free diet myself, but only for digestive reasons. But it really IS crazy how something as minute as gluten can affect anything and everything! People don't understand it unless they've experienced it first hand! That's why they recommend g-free diets for people with autism too.

Ps-- Was it hard to have two sons with two different food allergies?! That's crazy! Props to you for handling things so well though.

Yes, it gets hard sometimes!! We probably should just have both of them gluten free and casein free, but first of all it gets expensive, and also it takes more foods away from each of them and I already feel bad about it all!
 

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Oh gosh I know! I wish the gluten/ casin free stuff would start decreasing in price!! Sooo annoying!! I think companies are slowly starting to realize how common the allergy is now though! Like "Chex" brand, for example, I love them! Ha, so wonderful. But yes, it is hard to find tasty things to please everyone! Do you have lots of good co-ops and such by your house?
 

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That's wonderful!! Stick with it! From our experience though, it takes a long time to see all the improvements and fully experience a change and healing from eating gluten. We continued to see improvements for months. Just something to think about as you decide when to add anything back into the diet.
 

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2boyzmama, That is so exciting to hear what a major impact it had for you! We have been gluten-free for 1 1/2 weeks and not seeing any behavioral changes yet.

How long did it take for you (or anyone out there) to notice a difference? Were there still some very hard days in those weeks, or did he slowly "mellow?" How did you decide to start with GF?

Our DS is 5 and has difficulty self-regulating, especially at school...very impulsive and sometimes disruptive. Not seeing any improvement in just this short time, so trying to stay motivated to stick with it...and then decide our next step if it doesn't really impact behavior.
 

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Originally Posted by twotoeheads View Post
2boyzmama, That is so exciting to hear what a major impact it had for you! We have been gluten-free for 1 1/2 weeks and not seeing any behavioral changes yet.

How long did it take for you (or anyone out there) to notice a difference? Were there still some very hard days in those weeks, or did he slowly "mellow?" How did you decide to start with GF?

Our DS is 5 and has difficulty self-regulating, especially at school...very impulsive and sometimes disruptive. Not seeing any improvement in just this short time, so trying to stay motivated to stick with it...and then decide our next step if it doesn't really impact behavior.
Hi!

How long did it take...about a week for the first signs to be obvious, and that was a significant drop in tantrums. Ian has always been "volatile" and we've felt like we're on egg shells around him to prevent tantrums from starting. Once they start, there's little we can do to stop them. There was still "threatened" tantrums and emotional instability for 2-3 weeks, but the change was obvious. His teacher started noticing improvement in his fine motor skills and his attention to details after about a month. During that month she was putting a pressure vest on him to help him focus and concentrate, and that was helping, then one day she didn't give him the vest, and he did the work!!

I'm just now starting to see signs of digestive effects. His stools are more formed (although still "mushy"), which is a big change from the constant loose (unformed) stools he's had his whole life.

I have not seen any change in his lymph nodes yet. He has always had visible lymph nodes in his neck, and I was hoping that cutting the gluten would help with that. But not yet anyway. Maybe that will take longer still. Or maybe there's another food that's causing that.

We did see some kind of worrisome side effects for a while, he started saying he was hungry ALL. THE. TIME. It was like a broken record "I'm hungry...I'm hungry" literally after just finishing a meal. The first thing he says when he wakes up in the morning is "I'm hungry". And he lost a few pounds (although he's gained one pound back just this week). I was watching that closely, worrying a bit. He also had a week of peeing CONSTANTLY, I counted one day and he peed 10 times. A lot of that seems to have eased (I was ready to take him to the dr for a blood sugar check), although not completely gone. I'm hoping it was just his metabolism adjusting.
 

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Originally Posted by twotoeheads View Post
How long did it take for you (or anyone out there) to notice a difference? Were there still some very hard days in those weeks, or did he slowly "mellow?" How did you decide to start with GF?
I'm g-free for dietary/ other health issues, not behavioral issues. But, it took me several months to even start seeing slight changes in how I felt. But as some have stated above, it does tend to take a bit of time and won't heal right away. If you just keep going strong though, I'm sure it'll work and pay off in the end!
 
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