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Discussion Starter · #1 ·
Long story short, my DS has been constipated since birth. Mucousy poops, screaming while he pushes, fischer tears.....lots of supposatories, few trips to emerg for an enema. We eliminated dairy, wheat, eggs (as per his VEGA testing results) and it didn't make much of a difference. Eliminated dairy for about 6 months, and it made a bit of a difference but not much. Right now he eats very minimal amounts of dairy (cheese if we have pizza, sprinkle of parm on spaghetti.....). Every doctor we saw pretty much said that I was paranoid. He was fine, blah blah blah. When he was 3 he got admittd to the hospital. He hadn't had a bowel movement in 15 days despite supp's, enemas. He got put on a steady dose of lactulose (2 1/2 tbsp twice per day), and the ped wanted him on picosalax once every 2 weeks to clean him out. He got such an upset tummy from the lactulose. He would go in waves. He would have diarrhea and poop 15 times a day and look like he had a sunburnt bum....he wouldn't even sit down. Then he would be constipated so we'd up his dose a bit and he would get the sunburnt sore bum again, so we'd put the dose down and he'd get constipated.<br><br>
So now we have him off the lactulose and were giving it to him on an as needed basis. He has waves of good days and bad days. He will feel really good, go to the bathroom 2 or 3 times a day, eat lots of good healthy food, then in a matter of hours, he gets dark dark circles under the eyes, refuses to eat, is sluggish and just not feeling well, and will have troubles pooping for the next 2 or 3 days. During those 2 or 3 days he will drink quite a bit but will refuse to eat solid foods. If I blend everything up he'll drink it, but won't eat it in a solid form. THen just as fast as the bad days started, he'll perk up again!<br><br>
So we went to a pediatrician who came in from Victoria. He was awesome. Took an hour with us to go over all of DS's information, etc. He did all of his reflexes, checked his heart, felt his tummy, etc, etc, etc, really thourough check. Then did a rectal exam and he said that he has a good sphincter response (i think that's what he called it) and that the stool was right down in the rectum, so the chances of heirshprungs disease was very very very slim. He told us that he really believes DS has "functional constipation" aka lazy bowel. He said some people are just born with it and that you just have to use laxative therapy until the body finally kicks into gear, or just use it forver. So instead of the lactulose he wants us to use PEG 3350 which from what I understand is the Canadian version of Miralax.<br><br>
The ped said that because he's been like this since birth, it would be VERY rare for him to have celiac disease since he obviously wasn't ingesting grains. He did agree with us that we should keep dairy completely eliminated or minimize it like we have been. He said everythign was our call...but if it were him, he would not order any tests. He gave us the option of a barium enema, which we would have to travel 8 hours to BC Childrens Hospital to get. I remember looking in his eyes after he got his last enema when he was in the hospital with the impaction and he was so afraid and in so much pain, and I just can't do it. We made the decision to try the PEG 3350 and hope for the best.<br><br>
I'm still skeptical about the diagnosis of Functional Constipation. From what I feel in my heart, constipation is a symptom....not a diagnosis. But I don't know. Do you believe that some humans are really just born with a sluggish bowel? In our case, would you just keep DS on a laxative and do trials every 6 months to see if he's able to go without a laxative?
 

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hugs. what a journey this has been for you.<br><br>
I don't believe a diagnosis of Functional Constipation is a diagnosis. It sounds more like a description, but doesn't get at the heart of the matter. It is not answering the <i>why</i> of the problem, and that's the kind of thing that is important for me to figure out for my family, along with keeping everyone comfortable.<br><br>
From what I have seen, magnesium like Natural Calm, works a lot like Miralax. Have you tried that? building up to largish quantities? Constipation is frequently a sign of low mag. Maybe there is a reason why he is low mag (reasons why people need more of one nutrient is a totally puzzle, but one that can be figured out). One way to test that is to give it to him.<br><br>
You have thought and worked a lot on this. I apologize if you have already done the natural calm route.
 

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You and your little guy have been through so much. I am glad you found a doctor that you liked and hopefully can continue to work with to get the answers you are comfortable with.<br><br>
I agree with the PP, and your skepticism, about the Functional Constipation diagnosis. It sounds more like a symptom than a cause. The fact that you see your son make the transition to dark circles and sluggishness seems telling of something more than a lazy bowel. I don't know, as I have not done much research into food intolerances and allergies, but assuming you were breastfeeding wouldn't some of the proteins be transmitted to him? We often hear of babies reacting to things in their mothers' milk. So this could cause a problem for him even if he wasn't ingesting grains.<br><br>
I certainly agree with giving him what is needed to relieve him of his pain and discomfort, but would question having my young child on a permanent medication without fully exhausting all resources to find out if there is another cause. When my DS was 16 months he was getting hives all over his body. They did not bother him (they didn't itch or hurt or anything), but they were very bothersome to me. The ped said he had urticaria (hives) and sometimes they can be viral and sometimes an allergy. She did not propose we look into what the allergy might be and suggested I could put him on a daily antihistamine. I was not comfortable with that. I took him to an allergist who said he felt they were viral (due to how they presented and the fact that they didn't bother my DS), but did a scratch test to rule out allergies. Anyway, long story to say I wasn't comfortable with a daily antihistamine without looking into the why of it all. If the hives had been bothering him, I would have quite possibly given him the antihistamine temporarily.<br><br>
I hope you find the answers you are looking for soon. And as the ped said, it's up to you. Keep pressing for tests if you are not comfortable with what he has come up with to date.
 

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Discussion Starter · #4 ·
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<div>Originally Posted by <strong>ttcintexas</strong> <a href="/community/forum/post/14730465"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">You and your little guy have been through so much. I am glad you found a doctor that you liked and hopefully can continue to work with to get the answers you are comfortable with.<br><br>
I hope you find the answers you are looking for soon. And as the ped said, it's up to you. Keep pressing for tests if you are not comfortable with what he has come up with to date.</div>
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Crappy thing is, this ped is from Victoria BC (LONG trip, I am a 8 hour drive PLUS a long ferry ride from Victoria), but he just came for 2 weeks to help the other ped out with a long waiting list of patients. We won't be able to see this ped again unless we travel to Victoria.<br><br>
I don't know what I'm comfortable with. Honstly I'm not comfortable with ANY of it. I don't feel comfortable with the idea my son just has a lazy bowel. I don't feel comfortable subjecting my son to a barium enema. I don't feel comfortable with long term use of laxatives. I just wish nothing was wrong. Wish everything was better. Blah. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

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Discussion Starter · #5 ·
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<div>Originally Posted by <strong>Mammo2Sammo</strong> <a href="/community/forum/post/14730324"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">From what I have seen, magnesium like Natural Calm, works a lot like Miralax. Have you tried that? building up to largish quantities? Constipation is frequently a sign of low mag. Maybe there is a reason why he is low mag (reasons why people need more of one nutrient is a totally puzzle, but one that can be figured out). One way to test that is to give it to him.</div>
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We do the natural calm when he is constipated....but maybe I should give it to him daily. He LOVES the taste of the natural calm mixed with apple juice. He also drank his lactulose out of a shot glass. <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/eat.gif" style="border:0px solid;" title="Eat"> This child will eat pretty much anything. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1"> When he was 2 years old I ran downstairs to do laundry and came upstairs and he was eating a block of butter. HA!
 

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I'm confused....did you nurse him? Were you gluten free at the time? It is passed through breastmilk so he WAS ingesting it from birth if you were. I'm certainly not saying it's the issue, just that I wouldn't rule it out.<br><br>
Beyond that, no. To me, sluggish bowel or "functional constipation" is NOT a diagnosis. I'm sorry for all that you have been through in this, but I wouldn't personally stop there.<br><br>
Also, do you heat the NC? You can cool it down after you do with apple juice, but I don't fine the results are as good if it hasn't fizzed.
 

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I do believe that there is variability within a population - that some individuals will have more or less of "A" (whatever "A" may be), as part of genetic diversity. So, I would allow for the possibility of a functional bowel problem.<br><br>
But, before accepting that as the full answer, I would explore other possibilities while giving relief as you can - even if that means lactulose or something else.<br><br>
Personally, I'd be a zealot about gluten free for a few months because, while celiac is an unlikely possibility, it's still a possibility. And, I would increase liquids as much as possible in an attempt to keep stool soft and increase physical activity to let gravity assist.<br><br>
Hugs to you and yours!
 

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Discussion Starter · #8 ·
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<div>Originally Posted by <strong>Panserbjørne</strong> <a href="/community/forum/post/14730677"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I'm confused....did you nurse him? Were you gluten free at the time?<br><br>
Also, do you heat the NC? You can cool it down after you do with apple juice, but I don't fine the results are as good if it hasn't fizzed.</div>
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Yes, I exclusively breastfed for 8 months, then introduced solids (finger foods so no grains or dairy. He got cubed veggies, fruit, deer sausages, chicken). Doc said that because DS wasn't ingesting gluten at the time that it's unlikely it IS gluten.<br><br>
I don't heat the apple juice before I add it to the natural calm. It fizzes a tiny tiny bit....maybe that's where I'm going wrong.
 

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Sometimes when I am lazy, I don't heat the liquid I'm going to use for Natural Calm. For me, it has a bizarre fizz. I much prefer it heated, allowing all of the fizz and opaqueness to leave. If he seems happy with the status quo, maybe it is ok?<br>
I definitely believe it is a good idea to give him some every day. It is just good for anyone, but for him especially, maybe it can be a preventative - in the same way that Miralax would be used. Except with magnesium, he will be getting a key nutrient that will help his body overall.
 

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I do wholeheartedly agree on the variations of normal. The problem is that dis-ease has become so common that many doctors see what's common and label it as normal. Does that make sense? <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol"><br><br>
The body should be able to eliminate properly. Barring anything mechanical (which could still be the case) it suggests that for whatever reason there is something bogging down the colon-regardless of where the issue began.<br><br>
It seems pretty clear that you can have sensitivities to something that affect motility, or create damage in some way that would result in constipation. We are seeing more and more of this and it does seem that it shouldn't be dismissed out of hand and attributed to something generic.<br><br>
All I'm saying is that all these people who were "born with it" may have had undetected issues and could have lived way more comfortably if it wasn't blown off as a sluggish bowel. That just makes it seem like it's a thing over which we have no control. I know I was told that I just had IBS before I was diagnosed with an inflammatory bowel disease. Had I believed that "IBS" was a diagnosis rather than a symptom I would still be in and out of hospitals and in immense pain, malnourished and depressed. In fact, I could have died (not anytime soon, I'm sure, but untreated I don't really know what would have happened and how it would have progressed. My particular issue has certainly resulted in death before.)<br><br>
It just makes one think, how many things that haven't reached pathological stages yet *will* simply because they are misunderstood?<br><br>
Oh and dd was FTT with CD long before solids were introduced. It was passed thorugh the breastmilk. She had symptoms almost from birth. We didn't know until 15 months, but she had it.
 

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<div>Originally Posted by <strong>babygrant</strong> <a href="/community/forum/post/14730946"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Doc said that because <b>DS wasn't ingesting gluten at the time</b> that it's unlikely it IS gluten.<br></div>
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But he was. Or wait, had you stopped nursing? I'm sorry! I'm confused. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol">
 

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Discussion Starter · #12 ·
<div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>Panserbjørne</strong> <a href="/community/forum/post/14730974"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">But he was. Or wait, had you stopped nursing? I'm sorry! I'm confused. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol"></div>
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Hehe. I do an excellent job at confusing people! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1"> Ped said that because DS wasn't ingesting gluten when he was 1, 2, 3, 4, 5, 6, 7, 8 months old and WAS constipated, that it wasn't celiac. If he was celiac, the constipation would've showed up when we introduced gluten.<br><br>
From what I remember, your a naturopath right? May I ask your opinion on VEGA testing? We had the VEGA test done and he came back intolerant to dairy, wheat, and eggs.
 

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<div>Originally Posted by <strong>babygrant</strong> <a href="/community/forum/post/14731045"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Hehe. I do an excellent job at confusing people! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1"> Ped said that because DS wasn't ingesting gluten when he was 1, 2, 3, 4, 5, 6, 7, 8 months old and WAS constipated, that it wasn't celiac. If he was celiac, the constipation would've showed up when we introduced gluten.<br></div>
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And round and round we go. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/orngtongue.gif" style="border:0px solid;" title="Stick Out Tongue"> Okay, one more time and with jazz hands...when you were nursing him at the time he was an infant, YOU were ingesting gluten even though he wasn't getting it directly. So he was getting it, through your breastmilk, yes? So the constipation as a 1, 2, 3, 4, 5, 6, 7, 8 month old WAS while being exposed to gluten. He was introduced to it as soon as you started eating it which, I'm guessing was before he was born. Could be wrong though!<br><br>
The clincher here is that YOU were ingesting it while nursing, therefore he was as well. So, what does that change? Kids react to foods through breastmilk ALL the time. Gluten is a biggie and therefore no exception should be made. I really wouldn't rule out CD and as a pp said, I'd be a zealot about avoiding it to see what happens.<br><br>
And no, not a naturopath. A homeopath. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/winky.gif" style="border:0px solid;" title="Wink"> I don't use Vega testing. I wouldn't say it's useless, but I wouldn't hang my hat on it either. Not that that's a helpful answer! In my office we use a few testing methods and tend to like the ALCAT the best, but some ELISA's are good too. Allergy testing is a tough field, to be sure. Every test out there has flaws.
 

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Gluten goes through breastmilk, ask any BF'ing mom of a celiac baby/toddler, we have to give up gluten for the kiddo. We've used Miralax for about 8 years now and it really does work, the trick is finding the correct maintenance dose for your kiddo. If you think its celiac I would just put the poor guy on a GF diet and see if he improves over a couple of months. Dr's are not the decision makers, you are<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Ah, and aside from thinking about things like enzymes (excellent tasting and very beneficial for constipation in many cases), probiotics, magnesium (both NC and through epsom salt soaks if you like) I would do a castor oil pack on his little belly a few times a week to reduce inflammation and promote drainage. It's so healing, so very inexpensive and worth the minimal fuss.
 

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Discussion Starter · #16 ·
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<div>Originally Posted by <strong>Panserbjørne</strong> <a href="/community/forum/post/14731116"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">And round and round we go. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/orngtongue.gif" style="border:0px solid;" title="Stick Out Tongue"> Okay, one more time and with jazz hands...when you were nursing him at the time he was an infant, YOU were ingesting gluten even though he wasn't getting it directly. So he was getting it, through your breastmilk, yes? So the constipation as a 1, 2, 3, 4, 5, 6, 7, 8 month old WAS while being exposed to gluten. He was introduced to it as soon as you started eating it which, I'm guessing was before he was born. Could be wrong though!<br><br>
The clincher here is that YOU were ingesting it while nursing, therefore he was as well. So, what does that change? Kids react to foods through breastmilk ALL the time. Gluten is a biggie and therefore no exception should be made. I really wouldn't rule out CD and as a pp said, I'd be a zealot about avoiding it to see what happens.</div>
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hahahaha. Yes, I was ingesting gluten.<br><br><div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>Satori</strong> <a href="/community/forum/post/14731122"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Gluten goes through breastmilk, ask any BF'ing mom of a celiac baby/toddler, we have to give up gluten for the kiddo. We've used Miralax for about 8 years now and it really does work, the trick is finding the correct maintenance dose for your kiddo. If you think its celiac I would just put the poor guy on a GF diet and see if he improves over a couple of months. Dr's are not the decision makers, you are<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"></div>
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Just out of curiosity, do you get miralax from the pharmacy....as in do they have to dispense it? The thing that REALLY sucks about the miralax is that it's over the counter, so my medical doesn't cover it. The lactulose is 80% covered so we get a 2 month supply for about $2.00 but with the miralax, it's a 1 month supply for $18.99.
 

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<div>Originally Posted by <strong>babygrant</strong> <a href="/community/forum/post/14731188"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">hahahaha. Yes, I was ingesting gluten.<br><br><br><br>
Just out of curiosity, do you get miralax from the pharmacy....as in do they have to dispense it? The thing that REALLY sucks about the miralax is that it's over the counter, so my medical doesn't cover it. The lactulose is 80% covered so we get a 2 month supply for about $2.00 but with the miralax, it's a 1 month supply for $18.99.</div>
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You can get it OTC but our insurance covers the generic version.
 

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Discussion Starter · #18 ·
DS has developed a rash around his mouth. It's pimply looking. He's also complaining of an itchy anus. Here's a pic. <a href="http://img.photobucket.com/albums/v160/babygrant/December9th2009002.jpg" target="_blank">http://img.photobucket.com/albums/v1...9th2009002.jpg</a> (hehehe, goofy face! He was acting like a monkey).<br><br>
He's also been chewing on everything. His hands are just raw from chewing. He is chewing on his shirts. I caught him the other day chewing on a plastic chair at the swimming pool. ICK. I ask him why he's chewing and he says "I'm hungry" but he won't eat.
 

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I have to agree with PPs. I wouldn't rule out CD just yet based on the fact that he's never had a gluten free period. I would do a gluten free trial for him and get him on zinc and magnesium at the least. If he does better on mag, why do you keep taking him off? I've read studies stating that as many as 75% of the population may be magnesium deficient (don't ask for links, I've given up on bookmarking anything at this point <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment">). Personally, I'd far rather have my child on magnesium than Miralax.<br>
Chewing things with a loss of appetite is a fairly typical sign of zinc deficiency, iirc.<br>
I hope you will do a gluten free trial and see if it helps.
 

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<div>Originally Posted by <strong>babygrant</strong> <a href="/community/forum/post/14780419"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">DS has developed a rash around his mouth. It's pimply looking. He's also complaining of an itchy anus. Here's a pic. <a href="http://img.photobucket.com/albums/v160/babygrant/December9th2009002.jpg" target="_blank">http://img.photobucket.com/albums/v1...9th2009002.jpg</a> (hehehe, goofy face! He was acting like a monkey).<br><br>
He's also been chewing on everything. His hands are just raw from chewing. He is chewing on his shirts. I caught him the other day chewing on a plastic chair at the swimming pool. ICK. I ask him why he's chewing and he says "I'm hungry" but he won't eat.</div>
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The rash looks like the way my kids look when they are reacting (food intolerance) to a food. Of course if he's been chewing "everything" then it'll be hard to know what it was that caused it.
 
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