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<p> </p>
<p style="margin-top:0px;margin-right:0px;margin-bottom:15px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">A dear friend of mine has sent this--she is desperate for some kind of help or answers. I think she is open to any kind of treatment, mainstream or "alternative." She's bounced from doc to doc for years and I don't think she can take much more! If you have any ideas, I will forward them on to her.</p>
<p style="margin-top:0px;margin-right:0px;margin-bottom:15px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">(She gave me permission to post this here, of course.)</p>
<p style="margin-top:0px;margin-right:0px;margin-bottom:15px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><span style="border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">I present the following partial list of symptoms I’m dealing with.</strong> (Omitted: Most stuff related to the fibromyalgia, migraine, endometriosis, bipolar, variously prolapsing urogenital bits, and other issues already diagnosed, which may or may not be connected.)</span></p>
<p style="margin-top:0px;margin-right:0px;margin-bottom:15px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><span style="border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">I see my primary care doc on Monday; if there are tests I should be asking for, specialists I should be seeing (or, alternatively, not wasting my time on), that’s the sort of info I’m looking for, through whatever channels (vmarinelli at gmail for private correspondence). </span></p>
<p style="margin-top:0px;margin-right:0px;margin-bottom:15px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"> </p>
<ul style="margin-top:0px;margin-right:0px;margin-bottom:15px;margin-left:32px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;list-style-type:square;"><li style="margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;list-style-type:square;list-style-position:eek:utside;list-style-image:none;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><a href="http://en.wikipedia.org/wiki/Parasthesia" style="color:rgb(17,17,17);border-top-width:0px;border-right-width:0px;border-left-width:0px;border-bottom-width:1px;border-bottom-style:dotted;border-bottom-color:rgb(140,140,140);margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;" target="_blank">Paresthesias</a> of varying intensity and location since 2002</strong>. I was at work one day and noticed my chin had gone entirely numb. I thought it was hilarious - the kind of weird thing that might happen during some particularly energetic oral sex, but all I was doing was sitting at my desk, filing papers. When I told my doctor, she didn’t laugh, but rather, went ashen and sent me off to a neurologist to rule out, via brain MRI, multiple sclerosis. <strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">Long story slightly less long:</strong>The neurologist to whom I was sent was unhelpful and told me I had nothing to worry about, although a few years  later I saw the actual lab report from the MRI, which revealed some degree of <a href="http://en.wikipedia.org/wiki/Arnold%E2%80%93Chiari_malformation" style="color:rgb(17,17,17);border-top-width:0px;border-right-width:0px;border-left-width:0px;border-bottom-width:1px;border-bottom-style:dotted;border-bottom-color:rgb(140,140,140);margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;" target="_blank">Chiari</a>(haha yeah, I have an actual brain malformation). (Which may or may not even be relevant to the periodic, wandering numbness.) In the last few years - especially this last year - the paresthesias (sometimes worse or exclusively on the left; sometimes worse or exclusively on the right) have gotten significantly worse. </li>
<li style="margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;list-style-type:square;list-style-position:eek:utside;list-style-image:none;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">Abduction pain/weakness in right shoulder x 4-5 months </strong>(no preceding known injury), significantly worsened lately. (Like: If I’m standing in a doorway, and a light switch is immediately to my right, I will, without thinking about it, turn entirely around to switch it on or off using my left hand - because, while I <em style="font-style:italic;font-weight:inherit;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">could </em>raise my right hand to accomplish this if I absolutely had to, it hurts badly.)</li>
<li style="margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;list-style-type:square;list-style-position:eek:utside;list-style-image:none;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">Chronic, increasingly severe sternal swelling </strong>(visible and palpable), over last few years (lately painful enough to render me bedridden).  Feels like my chest is in a vice grip. Sometimes, with whatever tiny amount of stretching I can manage (either deliberate or accidental, like in reaching for a coffee cup) there occurs, several times per day now, a huge “popping” in my sternum (audible, at times, from as far away as the next room) which is excruciatingly painful, but which also, temporarily, relieves the intense pressure. (<strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">This may or may not mean anything, but</strong>: lately, whenever the sternum pops, the intensity of the shoulder pain/tingling/sensation of constant, low-grade electrocution lessens significantly; subsequently, that pain returns in proportion to the sternum pain/pressure, as <em style="font-style:italic;font-weight:inherit;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">that </em>returns, as it inevitably does).</li>
<li style="margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;list-style-type:square;list-style-position:eek:utside;list-style-image:none;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">Intense lower back pain x I don’t even know how many years, 10? </strong>(Could have to do with the endometriosis, or not. Buh.)</li>
<li style="margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;list-style-type:square;list-style-position:eek:utside;list-style-image:none;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">Intense attacks of left-sided abdominal pain </strong>(x at least 3 years)<strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">, where there is also a palpable </strong>(not to mention painful and tender)<strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"> bulging mass of maybe 1-2 inches in diameter</strong>. But, haha, it can’t be my left ovary, because they took that out (along with my left fallopian tube) when the baseball-sized cyst that had attached its unwanted self to same violently ruptured, around this time 4 years ago. (An ultrasound from October didn’t, apparently, “see” the mass; the report I saw later said something about <a href="http://en.wikipedia.org/wiki/Adenomyosis" style="color:rgb(17,17,17);border-top-width:0px;border-right-width:0px;border-left-width:0px;border-bottom-width:1px;border-bottom-style:dotted;border-bottom-color:rgb(140,140,140);margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;" target="_blank">adenomyosis</a>, possible clots of some sort, and a need for further testing.)</li>
</ul><p style="margin-top:0px;margin-right:0px;margin-bottom:15px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;"><strong style="font-style:inherit;font-weight:bold;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;margin-top:0px;margin-right:0px;margin-bottom:0px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">Oh, and current (daily) medications</strong>: Sertraline (100 mg/daily), acetaminophen (1500 mg, 2 x daily), Dicofenac (75 mg/ 2 x daily), and Lyrica (50 mg/ 2 x daily). </p>
<p style="margin-top:0px;margin-right:0px;margin-bottom:15px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">No doubt, this is both “too much information” and “not nearly enough” - and plenty of this could, in theory, be swept under the broad diagnostic rug of fibromyalgia, but there are too many specific things going wrong here for me to not feel some concern.</p>
<p style="margin-top:0px;margin-right:0px;margin-bottom:15px;margin-left:0px;padding-top:0px;padding-right:0px;padding-bottom:0px;padding-left:0px;border-top-width:0px;border-right-width:0px;border-bottom-width:0px;border-left-width:0px;font-size:15px;vertical-align:baseline;background-color:transparent;">And, yeah, fear. I’ve got books to write and kids to raise and it’d be nice to have some generally serviceable physical form in which to continuously conduct those activities.</p>
 
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