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Discussion Starter · #1 ·
My dd (11) has osteoporosis (she has had 3 breaks in the past year, all from really minor accidents). We had a bone scan done in the summer which showed this. We were referred to a pediatric endocrinologist who we saw on Friday.<br><br>
He says that her scan results are garbage, as she was compared to an adult woman, not a kid her age, so the scan has to be repeated. This time they are injecting her with radioactive isotope tracer, then she has to wait 3 hours for the scan. I'm back to freaking out. Her last bone scan was just the x-ray, which was bad enough. This one is both.<br><br>
I need to call the dr. I can see that her bone scan results are inaccurate, being compared to an adult woman. But, if they know what her numbers are, and know what a normal 11 yo's numbers are, why not just compare the two, instead of making her retake the exam, with friggin radioactive stuff this time????<br><br>
This is the only link with info that I can find... <a href="http://www.imaginghss.org/patient-information/nuclear-medicine.htm#b1" target="_blank">http://www.imaginghss.org/patient-in...edicine.htm#b1</a><br><br>
I've also had to insist on getting her tested for celiac disease. He doesn't think it's likely, as she does not have diarrhea. But from my research, she has most of the rest of the symptoms, and constipation is also a symptom.<br><br>
Edited to add... from this site <a href="http://www.nlm.nih.gov/medlineplus/ency/article/000233.htm" target="_blank">http://www.nlm.nih.gov/medlineplus/e...cle/000233.htm</a> she has these symptoms of celiac disease:<br><br>
gas<br>
constipation<br>
decreased appetite (actually, NO appetite)<br>
Stools that are foul smelling<br>
Weight loss (or rather, lack of weight gain)<br>
bone disease<br>
Dental enamel discoloration<br>
Growth delay in children (she's short for her age, dh and I are average)<br>
Irritability and behavioral changes (though could be puberty<br>
Nosebleed (not uncommon)<br>
Short stature, unexplained<br><br>
But 'cos her bloodwork showed normal levels of whatever they tested (iron, etc.) and 'cos she doesn't have diarreah, they're ruling it out.<br><br><br>
So. What do you know about radioactive isotope tracer? My dh is of the opinion that doctors can be trusted, they won't do anything that will harm her, they only want the best, that we can trust them fully. Ha!! He doesn't hang out here though <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1"> I need decent info to base our decision on. And if we decide not to have it, what are the alternatives.
 

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I'm sorry I have no advice, but <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> mama. Good luck finding your answers.
 

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Sorry you're going through this!<br><br>
I don't have anything to offer about the scanning issue,<br>
other than questions:<br>
is there a rush on getting results?<br>
Can you postpone the second scan until you're sure it's a useful tool?<br><br>
As for Celiac, I have a friend who has it all over her family, and she says the symptoms are different for each person!<br>
Do you need an official diagnosis to be sure you have it?<br>
There's no harm in trying out the dietary alterations, right?<br><br>
Is the scanning to see how bad the osteoperosis is,<br>
or whether she has it at all?<br>
I wonder if addressing the factors that could be causing/worsening it might be more useful than putting her through more tests.<br>
But I'm talking from my gut, not research on this particular subject.<br><br>
I do know that eating too much protein, esp animal protein, can affect bone density- though at her age, there must be extra factors at work.<br><br>
We're thinking of you. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><br>
Hope you get the info & support you need.
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> I will be <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/praying.gif" style="border:0px solid;" title="praying">: No real advice.... <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

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My dh is majoring in radiation health physics (NOT radiation tech, lol. He gets that all the time). I will ask him what he thinks about it and come back tell you what he says.<br><br>
I'm sorry your dd and family are going through all this <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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I'm sorry you have to go through this, I hope your daughter gets better. <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/hug2.gif" style="border:0px solid;" title="Hug2">
 

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I'm praying for your daughter, and am so sorry this is happening to you.<br><br>
While I was pregnant, they suspected I had a blood clot in my lungs (bad reaction to mag sulphate during preterm labor) and had me inhale the radioactive isotope tracer. I still worry about what the long term effects of it may have been, but so far seem fine. I don't really know much about it, unfortunatly.<br><br>
My thoughts are with your family.
 

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IM - My husband talked with one of his radiation professors. He got some good information. The prof. says to find out the dose of radation. And ask the doctor what the benefit is of using this method. There is always a cancer risk when being injected with radiation. The risk isn't necessarily huge, but there needs to be a pay off in order to take that risk. He also said that if the doctor pats you on the head and tell you not to worry, then as to talk with the medical physist. The MP will always crunch numbers before reccomending radiation. That person should be able to thoroughly answer your questions.<br><br>
I hope you are able to be at ease with your decision <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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Mama, that's scary! I'm so sorry your sweet DD is going through this. <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/hug2.gif" style="border:0px solid;" title="Hug2"><br><br>
I absolutely agree a test for celiac is indicated. My friend's 2 yo was just dx with celiac and she had constipation.<br><br>
But your DD could have another intestinal problem... leaky gut aka intestinal dysbiosis. Caused by food allergies or intestinal flora imbalance. That means she is probably not correctly absorbing her nutrients even if she doesn't have celiac. But it would in effect be like celiac disease in that the intestinal villi are damaged and she is not breaking down her food properly.<br><br>
Sadly conventional medicine is worthless IMO in the area of gut health and healing with nutrition. There has to be a reason why she has this. Do they offer any other explanation?<br><br>
I recommend reading these books, they are my bibles for healing my and my DS's gut and achieving optimal nutrition. They have literally changed our lives:<br><br>
Superimmunity for Kids by Leo Galland MD<br>
Breaking the Vicious Cycle by Elaine Gottschall MS<br>
Nourishing Traditions by Sally Fallon<br>
Nutrition and Physical Degeneration by Weston Price DDS<br><br>
Wanna come join us in the Gut Healing Tribe? <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Discussion Starter · #10 ·
Thank you for your hugs and advice. Much needed!! Lindsaylou, did your dh say what a correct dose would be? I have no idea!! (She's 4'6", 64 lbs).<br><br>
JaneS, thanks for the book suggestions, I'm off to the library!
 

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I'm with JaneS on this one. I would find a good alternative doctor who would work with you on nutritional deficiencies. He or she would test for celiac's disease in the process and would look at gut issues. Vitamin and mineral deficiencies often underly gut issues and other diseases. Get at the root. The scan might be informative, but not really necessary if you can find the underlying cause and fix it.
 

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<div>Originally Posted by <strong>Irishmommy</strong></div>
<div style="font-style:italic;">Lindsaylou, did your dh say what a correct dose would be? I have no idea!! (She's 4'6", 64 lbs).</div>
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The problem with radiation is that there is really no "good" dose. It's just a matter of what is an acceptable risk. My body is highly toxic in uranium, by the way, just to let you know that it happens and you still march on. But I would rather be free of it because I know it is affecting me. Since your daughter's health is compromised anyway, she will be less able to deal with the toxins in the procedure and it could worsen her condition. That's an angle of risk that won't be factored in by the medical physicist.
 

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Oh wow, that has got to be difficult seeing your little girl have to deal with all of those symptoms! I'm so sorry.<br>
Just to second a recommendation, I think the first book you should read that would help you the most right off the bat is Breaking the Vicious Cycle. I would love to hear if you put her on the SCD and what success she has on it.
 

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Irishmommy,<br>
I was diagnosed about a week ago with celiac. I was totally surprised because I am pretty much asymptomatic. Thank goodness a dr. I saw was suspicious because of my thyroid disease and diabetes melitus.<br><br>
I rarely have diarrhea, and my test numbers were incredibly high.<br><br>
The tests are incredibly inexpensive, and if the doc doesn't want to order them, order them yourself and pay the 60 bucks out of pocket.<br><br>
If you want the names of the tests let me know. There were two very simple blood tests.<br><br>
Good luck with your DD. It WILL be figured out and she WILL get healthy, just don't take no for an answer.<br><br>
(((HUGS)))<br>
ediesmom
 

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(((Irishmommy)))<br><br>
Thoughts and prayers for yoy guys.
 

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<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>Irishmommy</strong></div>
<div style="font-style:italic;">Thank you for your hugs and advice. Much needed!! Lindsaylou, did your dh say what a correct dose would be? I have no idea!! (She's 4'6", 64 lbs).<br><br>
JaneS, thanks for the book suggestions, I'm off to the library!</div>
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He didn't say what one would be. I'm sure there is a ton of math behind figuring that out. I think by asking, the prof was hoping you could find out if they have done their homework. I will ask him more about the dose and get more detail for you.<br><br>
I hope you get some answers soon <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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Discussion Starter · #18 ·
Ediesmom, I'd love to know the name of the celiac tests please.<br><br>
I called the endo today to voice my concerns. He said he'll call me tomorrow with an update, as apparently she's NOT supposed to be getting the shot. We'll see.
 

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<div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>Gale Force</strong></div>
<div style="font-style:italic;">The problem with radiation is that there is really no "good" dose. It's just a matter of what is an acceptable risk. My body is highly toxic in uranium, by the way, just to let you know that it happens and you still march on. But I would rather be free of it because I know it is affecting me. Since your daughter's health is compromised anyway, she will be less able to deal with the toxins in the procedure and it could worsen her condition. That's an angle of risk that won't be factored in by the medical physicist.</div>
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Yes, that is a crucial point... the ability to detoxify is impeded because the liver/kidneys/immune system are not getting the necessary nutrients in order to do their jobs properly and detox like the next person.<br><br>
As we have learned with mercury induced autism, this reduced ability to get rid of metals or other toxic substances can indeed have serious consequences that conventional medicine does not recognize.
 

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<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>Irishmommy</strong></div>
<div style="font-style:italic;">I called the endo today to voice my concerns. He said he'll call me tomorrow with an update, as apparently she's NOT supposed to be getting the shot. We'll see.</div>
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I hope so! Crossing my fingers for you!
 
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