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Discussion Starter · #1 ·
Hey everyone --<br><br>
I'm wondering if anyone can help me understand the big picture in terms of developmental delays. My ds just turned 1. He is not yet crawling (though he has been trying for several months) nor is he saying words (though he babbles all his consonants). He's been a bit of a slow developer in all ways -- sitting at 8 months (instead of 6), pushing up to sit at 11 months (instead of 9) etc. He didn't even get a tooth until 10 months and still only has 3. Ultimately, he's developing, covering all the steps, but is several months behind. We will be taking him to a pediatric neurologist to check for anything wrong there, and he has had a CAT scan (which came out negetive) because he had two febrile seizures in a week.<br><br>
Needless to say, it's been a challenging few months as we see him 'almost' hit his milestones, but miss them, while all the other 1 year olds we know are passing him by.<br><br>
So I guess I am just looking for support in terms of what developmental delays really mean. My ds is a bright, funny, playful, peaceful little guy. He's had good head control since birth, loves to stand (with help and since about 3 months old), rolled over early and easily, and just seems like he's okay for the most part. He loves to fly around and doesn't seem to be high needs in any way.<br><br>
The problem since birth has seemed to be located in his arms. They have always been a little shaky and I think that that is what has delayed his ability to push himself up or start to crawl or hang onto things so he can walk around. he didn't 'grab' stuff until he was older than most curious babies, but now has no problem ripping open birthday present packages or putting a spoon (the right end) in his mouth. Our doctor says the muscle tone in his arms may be a little "tight" compared to the rest of his body. He also has a pretty small head (10th percentile) which our dr has never been worried about, but has always nagged at me.<br><br><br>
He's not terribly motivated in personality and is pretty mellow (plays easily by himself, loves to cuddle), and while he isn't extremely reactive to the world around him, he knows his name, recognizes words and items, and seems alert enough.<br><br>
So I guess I am just wondering if developmental delays can be 'grown out of', if they indicate long standing problems, or if there really is no way of telling. I just want him to be an ordinary boy, who can run and jump, play, laugh and read. And I just don't know if that is the future I am allowed to picture for us.<br><br>
Any words of assurance or wisdom?<br><br>
mskgandn
 

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Oh dear. ..it is REPREHENSIBLE for anyone professional to have let this go on for so long. Your child should have been evaluated (and would have failed) and you should have started developmental therapy months ago. Your child needs medical and developmental evaluations pronto.....contact your state's early intervention program, they have people to help....<br><br>
AAARRRGGGHHH!!!<br>
so many docs just don't get it. WHY any doc would let this go on, KNOWING that your child's arms don't "work right" (in layman's terms)...is beyond me.<br><br>
Help is available, get evaluations, get help, get extremely assertive!!<br>
This *might* be a sign of a lifelong issue/disorder, or it might be something that can be fixed...but ONLY if you DO SOMETHING about it!!<br><br>
Also..is your child vaxxed?? If yes..please look into vax reactions and info....this type of delay can be caused by vaxxes....<br><br>
Best wishes!
 

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I could almost have written your post...<br>
The Boy is 13 months and dev/del. The drs. assessed him at about 8 months dev. at his 12 month clinic. He just started self-feeding, doesn't crawl, still needs to support himself at sitting, etc...<br>
He's been diagnosed w/ HIE stage II, had a subdural hemorrhage due to a difficult birth. We've been in the system from day one, as he was very sick and the drs/. here have kept an eye on him. We're waiting until his 18 month clinic to see if he has Cerebral Palsy, but it wouldn't really change anything. He already gets PT/OT once a month, and clinics every 6.<br><br>
I would have your child assessed, just so you know what you're dealing with. I understand about feeling uncertain about the future, but that seems to be part of the journey. There's a great thread here, come check it out!<br><br><a href="http://www.mothering.com/discussions/showthread.php?t=417555" target="_blank">http://www.mothering.com/discussions...d.php?t=417555</a><br><br>
HTH!
 

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Hi - if you have niggles, then getting your son evaluated is always a good idea.<br><br>
I just wanted to give you a picture from the other side of this (kind of!).<br><br>
My ds is 2.5 years old, and he also was delayed as an infant. He never crawled, didnt' start to bum shuffle until 11 months. Didn't pull up until 14 months, I had to teach him to roll over (when he was over a year old), didn't walk until 18 months, etc.<br><br>
He also had a really strong gag reflex as a baby, and never really put things in his mouth, which was a bit strange.<br><br>
The other odd thing about my son is that his head is huge - this is the opposite of your son, I know, but his head is WAY off the charts - and big heads usually mean something negative. So that was scary.<br><br>
Anyway - ds has been tested/evaluated for just about everything. As of right now, we have been told that he has low muscle tone - and that combined with the big head has delayed his gross motor development. But he is just about caught up now - his PT says that he is basically age-appropriate now for a 2 year old, just on the slow-average side. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up"><br><br>
We are still waiting for a speech therapy referral - he says an average amount of words for a 2.5 year old, but you just can't understand him - we've been told this is probably a result of low muscle tone in the mouth. I think he will need some speech therapy, but I'm confident that he'll also 'catch up' in this area as well.<br><br>
So hang in there - I do think that delays can, in some circumstances, be 'grown out of'. Good luck! Your son sounds like a sweet little guy (our little guy is also very good natured and laid back about things...).
 

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I would encourage you to get your ds evaluated and start early intervention. In my state (OH), this is a free in-home service (except the evaluation). I have an eval scheduled for my ds because he is a little delayed in one area. It's always good to get an eval by a dev specialist to see exactly what is going on. And the earlier you see help, the more quickly and easily your son will start reaching milestones. My experience has been that the early invention system is extremely supportive and believes strongly in parental involvement. When you start to see progress in the areas that concerned you, it will feel wonderful!
 

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Discussion Starter · #6 ·
Thank you, Stacey, for telling me your story. It helps so much to hear the positive.<br><br>
mskgandn
 

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Discussion Starter · #7 ·
Could you tell me how you found this program in your state?<br><br>
Thanks in advance,<br>
mskgandn
 

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<div style="margin:20px;margin-top:5px;">
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<div>Originally Posted by <strong>bobandjess99</strong></div>
<div style="font-style:italic;">Also..is your child vaxxed?? If yes..please look into vax reactions and info....this type of delay can be caused by vaxxes....<br></div>
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I agree. Especially dangerous is the Hep B which is given just a few days after birth. Parents never know their child in the true 'natural' state and assume something was wrong from birth.<br><br>
In France they have a class action law suit by 15,000 citizens against the manufacturer of Hep B vaccine because so many children were diagnosed with Cerebral Palsy that the connection is undeniable.
 

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I aslo live in Ohio, and can tell you a little about services from both sides. I have worked for Help me Grow, our state's Early Intervention services, for about 2 1/2 years. I mostly work with kids at risk for DD, but have also worked with kids with DD.<br><br>
Also, just a few weeks ago we had my DS evaluated because of a possible speech delay. He is 23 months and probably only has 12-15 words. However, we think it may be because we raising him to speak two languages, and it may just be taking him a while to get it sorted out. Let's just say it is a lot easier helping other people's families than your own! Many people who work in DD have children who have also been in the system, and are particularly in tune with your needs.<br><br>
Nevertheless, it is wierd to suddenly have your own child in the system you work for. For me, yes, the system is very supportive of families, and is family-focused instead of child-focused. Your child should have an evaluation (not necessarily free, but can be paid for by the state in many circumstances) and you should have a Service Coordsinator (or something like it, depending on what your state calls it). This person will ideally help you through all the rigamarole of finding appropriate services, how to pay for them, and what is best for your family. You will work on goals not only for your son, but also for your family.<br><br>
In Ohio, you contact Early Intervention though the County Health Deprtament, but this may be different in other states. Your dr should have an idea, but given his actions previously, you may not want to trust in that particular font of knowledge! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1"> I would either call the health department or look up early intervention or BDD (Board of Developmental Disabilites) in your area.<br><br>
Bets of Luck Mama!
 

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Discussion Starter · #10 ·
Thank you, Jenvh. I did find a Birth to 3 Years service in our area and have called to set up an evaluation. We have also proceeded with making an appointment with a neurologist. While these two steps may or may not explain what is going on with my ds, at least I feel like I'm taking steps.<br><br>
mskgandn
 
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