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Discussion Starter · #1 ·
I asked a question over in Health and Healing and someone had mentioned to come here. My son was just very recently diagnosed with Type 1 diabeties. I'm very tired because I can't seem to sleep anymore. I dislike very much having to poke his poor little fingers 4 times a day and give him 4 shots a day. He's is getting very good with it though. Even though I'm not. I was just wondering if anyone else is going through this.
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Aww mama, sorry to hear about this. My dd got diabetes when she was 2 years old. She's 6 1/2 now. Wow, now that I look looks like yours is not much older than mine.

I know how tiring it can be in the beginning when it's so new for all of you but you MUST keep up with it hon. I was 31 weeks pregnant when she was diagnosed. At least you're not as far along as I was. You'll have a good routine down by the time bambino is born.

You will feel like you'll never get it all but it does eventually become second nature. I hope you have a good diabetes team to work with. Are you seeing a Pediatric Endocrinologist? If not SWITCH NOW. I'm serious. A family practice doctor or a regular pediatrician has NO businiess managing diabetes. I hope you have a peds endo.

More in a minute...
 

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Okay sorry.

My dd is on the pump now and it's the best thing for her. I know many other kids and adults on it and they all love it. The pump can be your goal but for now you'll all have to indure the shots for awhile longer.

Now I'm concerned about how many shot he's on a day. Is it a set amount each day? What insulin is he on? His basal and his bolus? You can have him on Lantus for his basal rate and that is only once a day. He can be on Humolog or Novolog for his bolus.

I'm happy to talk to you more about it. I've been where you are right now, but it does get better. You get very close to your diabetes nurse. Please ask me anything. I'll try to answer any questions you have.
 

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Vincent is on Lantus and Humolog. I can't seem to get the carb to unit ratio down. And I think I'm giving him too much Lantus. In the morning his Sugar is around 70. One time I'll get his blood sugar to be just fine when I give him the insulin, but then the next time I do it, I've screwed up because it's in the 300s. It never stays there more than one reading, but it's driving me CRAZY. And he's hungry. I don't know how to feed him yet. I'm just trying to stay above water. I feed him the amount of carbs the dietician helped me decide for that meal and he's still hungry. I don't know how much I can let him eat at one time. And they told me eggs and stuff that have no carbs, so, does that mean, if he is starving and begging for food I can give it to him?? I'm just so completely confused. I live in a town of 200 people. My family lives near Boise ID. That's where I'm at right now. It's really hard on my DP because he can't leave town, he HAS to work. I'm not ready to go back. It scares me. But for right now we are seeing a peds endo, and a diabeties Educator, and a nurse. Don Scott is our educator. He is apparently the best in Idaho. I didn't realize this until Vincent and I were looking at camps for next year. The nurse was talking about him going next year and he wanted to see it. Anyway, this camp had this HUGE thing about how Don Scott founded it and everything. That's awesome. But with all the positive, I'm still so scared. I think if I can get his sugars to stop jumping that one time a day I'll deal with it better.
 

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What is his carb to insulin ratio? His blood sugars are probably wonky because he still honeymooning. Also he's an active 7 year old boy. I'm so glad you have a good team to work with too.

I am great at the short sentences tonight.
I'll write more tomorrow.

Oh, one more thought...it's okay to let him eat when he's hungry! You'll just have to give him more insulin once he's done eating. It's fine to wait til he's done eating to give a shot, I hope your nurse lets you do that. A kid should be allowed to eat as much as he wants! When he's done eating, just give him all the insulin he needs for what he ate.
 

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Discussion Starter · #6 ·
The Diabeties Educator told me that Vince is most likely honeymooning. But now instead of highs he's having lows. It's driving me nuts. I keep asking if it's ok to adjust his insulin until it starts going back up but nobody seems to be giving me a straight answer. They want me to try and decide what to do, and then when I do decide they'll advise me on it. What a bunch of pains. This morning it was at 51. His carb to insulin ratio is 25 to 1 unit. A few days ago it was 30 to 1 unit. But his numbers were wacky. I think I'm going back to 30 to 1 unit again for awhile until his numbers start getting into the hundreds. They're not even in the hundreds. Weird. The lantus is what's scaring me though. Because it drops his blood sugar really low at night. When i wake up at 3 it's fine, but by the time 7 or 8 comes around it's low. This morning was the lowest it's ever been though. This whole thing is driving me crazy.
 

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Now that sucks that they are having it all on you about what to do with his bolus insulin.
: You tell them that your frustrated, exhausted, have pregnancy brain and frankly you just want a little help with it all. I get they want you to try and manage it on your own, but it's a little early in the game for that. It's okay to get direction when he has this honeymooning stuff going on still. The numbers will fluctuate terribly during the honeymoon period, and you can't be expected to know what do do with it! Hell, the team doesn't know how long any new diabetics honeymoon will last or when it kicks in! It's different for every patient!

When are you giving the Lantus? It sometimes can have a window of up to 26 hours so the overlap can cause lows. We gave our dd her shot of Lantus at about 11:30-noon each day so that it could be monitored if it did go low, which sometimes it did. Better when awake to give a little juice.

Are they telling you to give a shot first then he can eat? If that's the case no wonder the guy is hungry! It's okay to give the shot when he's done eating.
 

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No wonder he goes low at night. Could you ask if you could change the Lantus to lunch time? That would eliminate at least one issue. Oy. You poor mom. I know how overwhelming it gets. I wish I could help you more.
 

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Discussion Starter · #10 ·
I didn't know i could even ask them about that. I just thought it was a night time shot.. Hmm. I know that I can get it down if I just do it. But I can't. I keep thinking that I'm counting the carbs wrong. Or giving him too much/little insulin. I'm losing my mind. Every time he goes to the bathroom I think something is wrong. But, come to find out it's not. I'm extremely emotional at this point in my pregnancy as it is. I just can't keep it together. Grr..
 

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It's not just one thing that I'm worried about. Like, corn. I looked at 3 different things for the carbs in corn. And I came up with 3 different answers. Every book ever made has different answers. We finally tried to do a shot in the leg today. Vincent jerked when the needle went in and it almost broke off in his leg. I was so scared. On a good note. We finally got a pen for insulin. The needles are smaller. And we got to the doctor. Now he's going to be getting a few units of lantus at night, and a few in the morning. I hope it works. Around dinner time his sugars sky rocket. It's scary. I don't much like the new doctor though.
 

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Just two things..
1.) they have a glucose monitor stick that you can do on the arm or leg and it does not hurt nearly as much as the fingertip.
2.) I find that giving an injection for insulin it is least painful in belly fat then in the leg...
Good Luck Mama.. it is a bit scary for me as an adult I could not imagine having to do this for my son..you are very strong. oh and one more thing. definetly strive for the pump everyone I know that has it LOVES it.

((hugs)) to you and your lil one..
 

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My daughter is 2 1/2 and was diagnosed 2 months ago. We also do a night-time Lantus and 3 injections of Novolog during the day. It's overwhelming at first but it does calm down. Two things that have made a world of difference to me:
1. A kitchen scale. I also have a portable one. It's shocking how far off the listed weight and the actual weight are on foods. For instance, we were on vacation and stopped at McDonald's (woohoo to Playlands!) to eat. Their guide and my CalorieKing book (which is excellent, by the way) said that small fries were 3.5 ounces (or something similar). I weighed them and they were 1.9 ounces. Had I dosed her for the 3.5, I would have given her too much insulin and dropped her bg too low a few hours later. I use the home scale to weigh her before and after portions - it tells me exactly what she ate. Her numbers have been much more stable and in a good range since we began weighing.
2. Think Like a Pancreas. I can't think of the author's name but you can do a search by title. It answered just about every question I have and it explains the reason behind things, which is what I needed. I now have a firm target goal, understand how to calculate precise doses, etc. Very easy to read, too. I finally feel like I am controlling the diabetes instead of it controlling us.

We don't use a pump. We talked about it with our diabetes team and decided to hold off for awhile. I'm guessing maybe school-age. My daughter doesn't mind the insulin injections, so it isn't as much of an issue - where the site changes would be. We rotate bg test sites as we rotate her injection sites. If we are on arms, we test on her forearms...if we are on legs, we test on her fingers. She doesn't like injections in her bottom and we haven't tried belly. For her age and size, it's not our first choice. We'll wait until she is ready to try it - the doctor told us that by gradeschool, bellies are usually the least painful spot.

We do 4 injections a day and anywhere from 4-8 tests. We have better control with more tests, so it's worth it. She helps with everything, which makesit easier. All we actually do is the actually "pokie" and she does the stick and the bandaid and announces her number (which is teaching her numbers, by the way!) The tests used to bother her more but barely faze her now...it does improve with time. We have a depth adjuster on the needle and we use the lowest setting that will break the skin. Her fingers are so small that even one notch can be the difference between 'not painful' and 'really painful' - maybe there is a different one you can use? Or, check the gauge of the needle - the higher the number, the less pain.

Good luck!

Stacy
 
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