It's though, isn't it.
We just explain why, plain and simply. You can't go to aunt ** because she doesn't know what to do if you have a seizure or stop breathing, or need o2, or if your gtube falls out and she can't even feed you trough it etc. She doesn't like it or think it's fair, but she gets it. She knows she is sick, and unique. And that only a few people can take care of her. For us, there's no other way to do it, we can't make something up or lie. We say it as it is.
And then we do extra special things at home with her that she loves.
Then again, we also put a lot of weight on the fact that nobody else gets too go out with her personal assistant. Which she loves and adores. She's with her everyday, in daycare when she is there or at home, and once in a blue moon she sleeps over there. And when she isn't well enough for daycare so they stay home, she gets to do special things with her that she likes instead. None of the other kids ever get to do that.
And, she has a grandmother and an uncle (my mom and brother) too that can be alone with her except from me, my dear and our personal assistant person. They've been there all along and knows everything, they are more with her than the other kids and we point that out too. We do that on purpose so that when the others gets to go to other grandparents, aunts, uncles, friends, outside, go for exciting trips etc. we remind her of that. Life isn't fair, for any of them. We're lucky to have my mom and brother though, we really are.