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Discussion Starter · #1 ·
My dd started Metoclopramide(I think it's generic for Prolsac(sp?) for reflux yesterday and the Pharm. said it should start working w/in hours but under cautions on the script it says that it could take days to weeks for the medicine to work. Anybody know?
 

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Discussion Starter · #3 ·
No, but I have heard about CST but I didn't know that it could help w/ reflux. We have been spending lots of money lately on things to help dd. She has been to Ped. 3 times in past month and on 3 different antib. for ear infection and now this, so I really don't want to spend the money unless it will for sure help!! I've been buying slings (she is really picky) and other stuff trying to help her out.
 

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If you look into all the archives etc you will see many who have had some type of chiro care have been able to STOP their meds completely. I would try it. It worked with my DC and they have NEVER had ear infections either the two are related due to subluxation in the spine and pinched nerves. Babies are born with NO curve in their spines. That doesn't develop until the begin to crawl which is why many children "grow" out of reflux. They begin to develop the curve when the start rolling over etc.
 

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Discussion Starter · #5 ·
Thanks for that info. I am going to talk w/ dh about it.
 

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They did NOT give you prilosec - they gave you a motility drug. it speeds stomach emptying, so less to reflux, but does nada to reduce the acid level and the pain. and has bad side effects. see <a href="http://www.marci-kids.com" target="_blank">www.marci-kids.com</a> and click on treatments. here is info on metro from their site:<br><br>
Pro-Motility Drugs<br>
Metoclopramide and cisapride are supposed to work by enhancing the emptying of the stomach and therefore are known as pro-motility or pro-kinetic agents.<br><br>
They however have marginal efficacy and serious side effect potential, and can cause profound irritability and tiredness.<br><br>
The best available medical studies and reviews of studies reveal that these drugs are rarely if ever useful. They usually get prescribed because the PPI drug being used is not being dosed properly.<br><br>
Metoclopramide has caused shaking and jerking movements, sometimes rigid body posturing (acute dystonic reactions) which are often mistaken for seizures.
 

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oh, we have severe reflux here - and are on zegerid for it. chiro care helps, and we've done cst as well. but it doesn't replace meds for us.
 

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Discussion Starter · #8 ·
So do you think I should ask the Ped. for something else. I think she really needs to be on something b/c our breastfeeding realtionship is in jeopardy. She is pretty much on a nursing strike. She doesn't take a bottle. We have tried EBM but she will not have it. I DO NOT want her to have a bottle!!! I really need help. I can't believe her Ped. would prescrib. something that is so terrible. Please tell what would you do? Should I ask for a diff. script. I am going to look into CST. I'm losing my mind
 

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yes, get a different script!!!!! in the meantime, get mylanta cherry supreme - you can use up to 10cc of it a day, normally 2 cc at a time, like right before a feeding.<br><br>
get prilosec or prevacid. the prevacid solutabs are very easy to administer. they do have traces of lactose, some kids react to them. it takes 2 wks to see effect, so in the meantime use the mylanta. if you can get a script for zantac, axid, or pepsid, do that too. those 3 are the milder acid reducers, prilosec and prevacid are the stronger.<br><br>
we have btdt. my ds is only 2 wks older than your dd. at 2 mo he started refusing to nurse awake. we nursed for 3 more mo with that, but ultimately had to wean to neocate b/c he wasn't gaining and has so many food intolerances.<br><br>
good luck. alot of peds like to prescribe reglan and metro, but unless you have had a gastric empty study done and can see that it is needed, imo it doesn't help for reflux that much.
 

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Discussion Starter · #10 ·
Thank you so much.
 

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Let me know if you have any more questions. I know all about reflux, unfortunately.
 

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yes, it's not a fun thing to have btdt advice on, that's for sure.<br><br>
how is she nursing now - will she nurse asleep? are you guys using a cup, syringe, bottle etc at all? it's SO SO hard when they reject nursing - almost impossible not to take it personally. I hope you can get some relief for her soon!
 

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It seems like there are some peds who really push the motility drugs - mine included. From what I know though, the proton-pump inhibitors (like prilosec of prevacid) should be tried waaaaay before even <span style="text-decoration:underline;">thinking</span> about a motility drug. The PPIs just have much less side effects and the motility drugs have scary neurological side effects. My ped had perscribed Reglan (a motility drug) in addition to thier prilosec when I called to ask about making dd's more comfortable with thier reflux cough. I did some research though and posted here about it and I just didn't want to risk the side-effects when we didn't even know if they were actually having motility issues.<br><br>
It seems like the order that meds are usually tried are first zantac, then a PPI, then testing, and then maybe motility meds.<br><br>
My dd's are on prilosec and neocate formula as well, we have also done CST. I think it all helps as part of a piece of the puzzle to them feeling better with thier reflux. We have it much more under control then we used to.<br><br>
I would definitely research the motility drugs more and get your ped to give you a different scrip. I also think that CST is worth a try. Have you tried eliminating dairy/soy and the other irritating foods from your diet?<br><br>
For what it's worth, most kids get over thier reflux in young infancy, but it is sooooo hard while it's happening.
 

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Discussion Starter · #14 ·
She is still hardly nursing. Last night was bad-she screamed half the night w/ ear piercing cries in pain. She will not take a bottle or med. dropper only a little from a spoon. I have eliminated any possible thing that could cause allergies from my diet. No gluten, dairy, soy, nuts and list goes on and on etc....<br><br>
I called her Ped. but I don't think I made myself clear, he was just like it takes time to work. But I think I ned to call and jsut tell him to right a new script?? My family was here yesterday and told them what found out about the Reglan and they think I need to stay off the internet and listen to her Ped. b/c they say he knows her and sees her and know her health history.<br><br>
I am sooo scared of early weaning even though she wont take a bottle-she clearly wants to nurse badly. I really need help. I just do not want her to be in pain anymore. I was in tears last night b/c I feel so bad. Even if I don't bfed anymore(even though I do not think she will give it up no matter how bad it hurts), I just want her to be happy. I really need help. I'm going to be gone all day so I will see how she does today nursing away from home.
 

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Discussion Starter · #15 ·
Also, about what age do you think she will grow out of this. I really want to nurse her as long as possible so is there hope that it will not always be this bad in the future nursing years?
 

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Discussion Starter · #16 ·
Sorry one more ques.-not sure what btdt stands for. Thanks
 

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Have you tried the Mylanta Cherry Supreme mentioned by the previous poster? It really makes a quick difference for my dd's when they are having a reflux episode - after about 30-50 minutes they are able to eat or sleep. It was a personal struggle for me to give it at first because I didn't want anything un-natural to pass thier lips, but when I saw that it gave them relief it was worth it.<br><br>
Also, How long have since you eliminated from your diet? It can take weeks for everything to leave your system and your childs system.<br><br><div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">My family was here yesterday and told them what found out about the Reglan and they think I need to stay off the internet and listen to her Ped. b/c they say he knows her and sees her and know her health history.</td>
</tr></table></div>
A ped is just one person though and imo (in my opinion) many regular peds are really not that up-to-date on reflux. We had to see a second ped to even be taken seriously about my dd's reflux and then went to a gastroenterologist to see someone who really understands it. Also the ped only sees her for a few minutes - they don't see the screaming in the night, they don't (usually) see the refusal to nurse. Honestly the best advice I got for reflux was from moms who have btdt (been there, done that) both online and in person. You are the one who knows your dd best and will do the detailed research to understand what she needs - the ped just doesn't have that time to invest in your dd. Follow your instincts on this one, not your families and not the peds.<br><br>
When zantac didn't work for us, I had to really push the ped to move the girls to prilosec and it was hard because I am not normally a pushy person. It's also hard because here I was with no medical degree telling the doctor what to do. But there is definitely a strength that I didn't know that I had when it comes to my dd's. I found talking to the doc over the phone about it was easier.<br><br><img alt="" class="inlineimg" src="/img/vbsmilies/smilies/hug2.gif" style="border:0px solid;" title="Hug2"> I know this is so hard. I cried so many times when my dd's were in pain. They still have reflux episodes sometimes and I still cry. Do you have a lactation consultant to help you? I know I talked to my lc a lot for nursing ideas with reflux.<br><br>
For me thier allergies and reflux were bad enough that I did wean at 6 months after they were still having a ton of problems. I kept pumping until I knew that the neocate was working better for them than my breastmilk <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/mecry.gif" style="border:0px solid;" title="crying">. I have to say though that I regret stopping pumping and may look into relactating at some point.<br><br>
This is just MY experience though and I know that there are many moms who CAN keep nursing with reflux and children who get over it quickly. It seems like most kids get over it before 6 months. And then there are some who don't. You just don't know of course until it happens.<br><br>
I hope a mom who DID keep nursing with reflux will post here to let you know that it can be done, because it certainly can.
 

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My son is 15mos and still on prevacid. Don't assume it's not allergies. Evan reacts to things as simple as squash and turkey and potatos.
 

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push that dr for a different med!! your child is not eating and in pain - reglan won't reduce the pain from the acid, will just speed along her system. AND, reglan (when i took it for low supply) caused adrian to scream all night - very fussy. i had to push too and am still pushing.....<br><br>
and yes, PLEASE try the mylanta.<br><br>
tricks that worked for us during our over 3 mo nursing strike - swaddling, nursing right after he fell asleep, or at night nursing him before he woke up and was upset. but if he was in pain, he would just arch his back and refuse to nurse eventually.
 

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My babe has been on prevacid for 4 months and it has worked great for us. Some other things that helped were keeping him upright for 30 minutes after a feeding and *never* letting him sleep on his back. He slept inclined in the swing or a bouncy seat (even at night) until just this month. Hope your baby feels better soon.
 
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