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Discussion Starter · #1 ·
I contacted the state kid's hoptial -- about 4 hours from here <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> about seeing a sleep doctor and getting a study.<br><br>
I got an nice e-mail asking me some more questions....here is my responice --- ANYTHING I have left out? I tried to anticpate allt he questions (birth health and so on) -- if they don't think they can help I do not want to try to arrange it with the travle and hotel and DH time off work and so on<br><br><div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">i appreciate your e-mail. I did not expect to go right to the Study, I knew we would need to see someone first, I wanted an opportunity to ask a few questions to and explain our situation before we make the long drive over there, to be sure we are not wasting every ones time.<br><br>
what is the time line going to look like, from first meeting / appt to possible study and so on -- we live west of Des Monies so travel has to be a consideration for us.<br><br>
answers to questions below<br><br>
then a brief description of what is going on and why i think we need to see a sleep specialist -- I may be wrong, if so please just tell me so. if there is more information needed, please just ask. I tried to include everything I could think of.<br><br><br>
1. What are your concern (reason for the visit) and your expectations?<br><br>
see explanation of sleep issues below.<br><br>
2. Birth Hospital for the patient?<br><br>
Methodist Des Monies Iowa<br><br>
3. Hospitalizations (Name of the Hospital, City and State)?<br><br>
NONE<br><br>
4.Current Medications?<br><br>
NONE<br><br><br>
5. Name of Day Care (City and State)<br><br>
NONE -- he is home with me all day every day<br><br>
he stays 2 or 3 hours with a babysitter every 2 to 4 weeks. he does not nap there or sleep there.<br><br>
6. Please list Current Insurance (Card Number, Policy Holder)<br><br><br><br>
7. Primary Doctor’s name ( City and State)<br><br><br><br>
8. Other Care Providers?<br><br>
NONE.<br><br>
We saw an ENT re: sleep anipa, and he did not even look at Theo, just said it sounded like reflux and gave us Prilocet. no tests, no physical exam. We tried that for 6 weeks, no improvement in sleep. We are no longer being followed by the ENT.<br><br>
Brief description of "what is going on" our questions and expectations:<br><br>
Theodore is 17.5 months old. he was born at 38 weeks after 33 hours of labor, he was a forceps delivery. he was a healthy baby with no complications or health issues.<br><br>
He is still breastfeed on demand, though he eats well otherwise. he nurses at least every 2 hours all around the clock. he can go up to 5 hours if apart or distracted, this is rare. he has been breastfeed since birth with no supplements.<br><br>
he sleeps with us, as he has every night of his life.<br><br>
he naps in his own bed, and goes to bed in his own bed each night before joining us in the family bed after i am ready to go to bed for the night (the next time he wakes up after i have gone to bed).<br><br>
He does not nurse to sleep, never has. we nurse then rock and either rock to sleep, or we lay down together in his bed and i rub his back till he falls asleep. at night when he wakes, if he nurses, he rolls over when done and i rub his back till he goes back to sleep.<br><br>
he does have a pacifier.<br><br>
we have tried him in his own room all night, it does not help the sleep and he actually wakes more.<br><br>
We have tried night weaning and it resulted in a frantic paniced baby who's sleep was more messed up for nights after wards.<br><br>
we are concerned his sleep issues may be an early on-set of my anxiety and depression as I have dealt with both since grade school.<br><br>
We are concerned there is a real health issue, or problem that is not being addressed. I don't want to find out later this was not just a baby that doesn't sleep well, but a real problem that I did not get care for.<br><br>
basically we are looking for some answers as to why his sleep pattern is the way it is, and something to help him get enough sleep.<br><br>
Last night for example he slept -- all total -- less than 6.5 hours. That is not enough sleep.<br><br>
his naps are generally 90 minutes, though some day he will sleep 2.5 hours and some days only a hour or even less. I can not find a consistent cause and effect relationship for the differences.<br><br>
his day time behavior is generally good. he is happy and social and cheerful most of the time. he has no trouble separating. however morning and evening are very hard as he is visibly tired.<br><br>
he has reached all milestones appropriately.<br><br>
We are opposed to any hard core sleep training (Enzzo or Ferber or the like) and we are opposed to any version of "cry it out" (CIO). the long term effect to the child's mental health, giving my history and the family history or anxiety and depression, is an unacceptable risk.<br><br>
We have introduced, a month ago, a stuff puppy as a lovey. we are hoping 1. when he wakes he will grab the pup to resettle himself and not have to grab momma 2. he will tug onto the pup's ears or tail and not my hair to fall asleep (thus opening the possible it of momma not putting him to bed, and maybe someday him going to bed on his own. and also less pain for momma. 3. it try to have something more than mom he can rely on giving the baby coming. it is not working so far. he will hug the pup and carry it around, a little. when we go to bed he hold my hair with his arm around the pup, but in the middle of the night he violently throws it to get to me.<br><br>
A few months ago he was sleeping a little better, but that lasted less than a month. he was going back to sleep upon waking better also, but that didn't last either.<br><br>
generally speaking a good night<br>
30 minutes to got to bed<br>
sleep an hour<br>
15 to 20 minutes to go back to sleep<br>
sleep 90 minutes to two hours -- at the end of the 90 minutes to two house Mom is ready for bed, join her there -- go back to sleep in 20 to 30 minutes<br>
sleep 2 hours chunks all night with 10 to 20 minutes wakes in between. MAYBE a 3 hours chuck once, but not each time<br><br><br>
generally speaking a bad night<br>
over an hour to go to bed<br>
sleep 45 minutes, or maybe only 30<br>
wake for over an hour or close to it<br>
sleep 45 minutes to an hour and then wake for 30 to 45 minutes over and over all night.<br>
be awake about 90 minutes at least once over the night.<br><br>
we are getting about 2 good night to each bad night; maybe 3 good to one bad -- though in the past week we have had 3 really bad nights, including one 4 hours awake in the middle of the night. long wakes times in the middle of the night seem to be getting more common. As to early wakings (as early as 4:45).<br><br>
He doesn't cry when he is awake -- just flips and flops and rolls and even just lays and stares, but is awake. rubs his eyes a lot. he might cry a little, but not like he is just up crying and crying. he will start crying eventually.<br><br>
1/2 the time he goes from hard asleep to screaming wake, but as soon as i pull him to me he stops screaming and grabs death grip on my hair with both hands.<br><br>
he only nurses ever 3 or 4 hours, even when he is waking ever hour -- so the idea of night weaning, the theory being if the child doesn't nurse when he wakes up, decided waking isn't worth it -- won't work for us. Generally specking the longer the night the more often he nurses; at the start of the night he goes 3 or 4 hours without nursing, by the morning he is nursing each wake up.<br><br>
We also tried a night wean, and the first time he asked to nurse and could not he was frantic, screamed and screamed and scratched himself and me. i rocked him, walked with him, sang to him, everything, he would not be calmed. the next three nights were really bad with him waking and nursing every hour or less all night.<br><br>
he still has teeth to get, but right now we do not seem to be teething. Also the sleep is an on going thing, since BIRTH and it has never been much better than now -- though a little better about 12 weeks ago still not great so I am not sure the teeth are the cause. Yes I am sure they effect him on some nights, but i do not think they are the whole issue.<br><br>
he is not verbal -- saying only mummy and da and while he always applies the "words" Scott or I he doesn't use them ONLY for Scott and I.<br><br>
I am pushing more and more food day time hours. 1. because i am pregnant and if my milk fails us around week 20 to 24 as it very well could, i do not want an any more of a bad situation that it has to be -- more food, less dependence on milk for nutrition and "not being hungry" -- 2. also the vain hope that if he eats more day time he'll nurse less night time and sleep better -- however this has not held true -- i see no different in the sleep on days he eats "a lot" and days he "doesn't want to eat".<br><br>
he was a GER baby, and we controlled that with my diet and one attempt at medication, however the medication caused no difference in the sleep. Also there was NO testing done for the GRE diagnoses and i have a feeling it may have been giving to appease the mother more than due to an actual illness in the child.<br><br>
We have been to an ENT about 7 month ago when i asked the Ped about sleep anipia -- she thought i was nuts but i insisted. the ENT also thought i was nuts and called it reflux -- which i am convinced they use as a catch all able right up there with colic the translation is "i don't have a clue but this mom won't shut up till i tell her something" he did NO TESTS (that really bothered me, how can you do any diagnose without any tests?). he gave us a Rx for Prolicet which we didn't want to use, but did for 6 to 8 weeks -- we saw no change in Theodore's sleep so we went off it.<br><br>
he is home all day with me. we do go to a playgroup once in a while. He is very social and not afraid of anyone or anything -- totally willing to go to strangers.<br><br>
He has stays with a babysitter once every 2 or 3 weeks for 3 or 4 hours. he does not sleep there.<br><br>
I have talked to the Ped about it and her only responce is either to let him cry, which i will not do and feel is akin to abuse, or the acid reflux -- however at 17 months she has still not done a single test that shows acid reflux.<br><br><br>
We have tired leaving him in his own bed all night, just going to him when he wakes. But the later in the night -- like after Scott and I have gone to bed -- the shorter his sleep cycles get. even if Scott and are just up super late, each successive time i put him back to sleep he sleeps less and less -- the first time is always about an hour, the next time 90 minutes to 2 hours, after that the cycles start getting shorter and shorter if he is not in bed with us.</td>
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oh and why ask about his day care????<br><br>
ANything you can think of I should add or change?<br><br>
Aimee
 

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no comments on the questionnaire as such, but since you say that he wakes up screaming out of nowhere sometimes---my DD has been a poor sleeper since about 2 months old (now 18.5 months old). she was yelling out a lot at night, and we realized she was not awake, and that we were waking her up and making it worse going in everytime she yelled. so, after reading about nightmares/night terrors, i spoke to a homeopath, who had us try kali phos 6x---1 pill before bed (the dissolvable kind for kids). i had tried homeopathics with her before---for teething and gas, and it never affected her sleep, so i was pretty much thinking that homepathics didn't work.<br><br>
but, it did work.<br><br>
although she still wakes up 1 - 2 times per night (which i think is perfectly normal and reasonable)---usually once at like 12:30, and then a really early wake-up at 5am (aaah!), the random yelling out has stopped. all it took was the one dose (the homeopath had said if it didn't work, to continue it before her nap the next day and before bed the next night).<br><br>
that being said, our DD still has sleep issues---only naps 1/2 hour a day, sometimes an hour if we're lucky, but i don't think it has to do with nightmares because she consistently wakes up after the 1/2 hour. and some nights are better than others, but no more hard waking to screaming.<br><br>
anyway, just thought i'd let you know in case you want to try something else before you see the specialist (although i'm sure you're sick of trying everything--i totally understand!)<br><br>
good luck.
 

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Discussion Starter · #3 ·
i will try it<br><br>
but he IS awake -- he sits up<br><br>
I am tired of trying stuff -- ys -- but i will keep on in hopes of finding an answer.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
i appercipate all the suggesting (excpet NCSS at this point <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> )<br><br>
Aimee
 

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Maybe they asked about the daycare because if that applied to your situation they'd want to know what your child is eating all day, as that could affect sleep - also babies who go to daycare all day usually nap there, so maybe they're thinking they could get more information from the daycare provider about the child's sleep habits while he's there. Anywho....I'm a fellow stay-at-home-mom to a child with sleep problems similar to your son's. We are in the process of partially night-weaning her; this is out of desperation because we are so tired we can't function anymore. She cosleeps every night and I realize that cosleeping nursing babies do wake up more, but for us it's always been way more than you'd even expect. I totally sympathize with your situation, and I'll be anxious to hear what these doctors have to say after you (hopefully) get the study done. Kudos to you for taking this step and for not listening to the peds who think you are "crazy." You know your child better than anyone and you are listening to your instincts. You've done a really thorough job answering these questions - I can't think of anything else I would add at this point. Good luck and many blessings to you - let us know how things turn out. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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just wanted to say that we thought our DD was awake, too. she would sit up, crawl up and across our headboard (when she was younger).<br><br>
this remedy, however, doesn't need to work only if they are crying out in their sleep. from what she said, it is to help with nightmares.<br><br>
again, good luck. i know how horrible it is not to get sleep and not know why your child doesn't sleep.
 

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We are having similar problems with our dd (10 1/2 mths) and I am very interested in the results of your study. I think our dd may not be totally awake sometime too, but I am not sure. Often she doens't want to nurse and I am up for hours trying to settle her/get her back to sleep. I think she got a total of 5-6 hs of sleep last night during the 11-12 hrs she was in bed! She is also a poor napper (30 min at a time usually).<br><br>
Good luck and I hope you get some answers soon-
 

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It doesn't sound like sleep apnea to me. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/headscratch.gif" style="border:0px solid;" title="headscratch"> I have sleep apnea. Does he stop breathing or choke in his sleep? Snore? Does he sleep better if laying in a certain position? It sounds like he sleeps like both of my kids did and we just had to wait it out unfortunately. I really feel for you, it was a very tough time.
 

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Discussion Starter · #8 ·
I sent the lady at teh sleep clinic the loooong e-mail yesterday<br><br>
DH wanted to know why it had to be so long -- it is a 4+ hur drive there, i do not want to go and be told he is too young, he is still BF, or anything else and so the docotrs won't see him, or don't think they can address the issues. <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/duck.gif" style="border:0px solid;" title="Duck">: <br><br>
so i sent all the information i could. <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/dizzy.gif" style="border:0px solid;" title="Dizzy">: <br><br>
I don't know how long till she gets back to me, DS and I are supposed to go out of state for a visit Monday to Fir of next week....so i don't know what schduleing will look like either, but this is the only ped sleep center in the state so we maybe waiting a while even if they can and will see us.<br><br>
but<br><br>
then again I am not sure what they can do for me other than give me a lable so i feel better -- there is a <i><span style="text-decoration:underline;">reason.</span></i> <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> and that reason is not me!! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
here is what i ended up sending<br><br><div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">

i appreciate your e-mail. <br><br>
I did not expect to go right to the Study, I knew we would need to see someone first, I wanted an opportunity to ask a few questions to and explain our situation before we make the long drive over there, to be sure we are not wasting every ones time.<br><br>
what is the time line going to look like, from first meeting / appt to possible study and so on -- we live west of Des Monies so travel has to be a consideration for us. <br><br>
answers to questions below<br><br>
then a brief description of what is going on and why i think we need to see a sleep specialist -- I may be wrong, if so please just tell me so. if there is more information needed, please just ask. I tried to include everything I could think of. <br><br><br>
1. What are your concern (reason for the visit) and your expectations?<br><br>
see explanation of sleep issues below.<br><br>
2. Birth Hospital for the patient?<br><br>
Methodist Des Monies Iowa <br>
3. Hospitalizations (Name of the Hospital, City and State)?<br><br>
NONE<br><br>
4.Current Medications?<br><br>
NONE<br><br><br>
5. Name of Day Care (City and State)<br><br>
NONE -- he is home with me all day every day<br><br>
he stays 2 or 3 hours with a babysitter every 2 to 4 weeks. he does not nap there or sleep there. <br><br>
6. Please list Current Insurance (Card Number, Policy Holder)<br><br><br><br>
7. Primary Doctor’s name ( City and State)<br><br>
Dr Amy Kimball, Winterset Iowa<br><br>
8. Other Care Providers?<br><br>
NONE.<br><br>
We saw an ENT re: sleep anipa, and he did not even look at Theo, just said it sounded like reflux and gave us Prilocet. no tests, no physical exam. We tried that for 6 weeks, no improvement in sleep. We are no longer being followed by the ENT.<br><br>
Brief description of "what is going on" our questions and expectations:<br><br>
Theodore is 17.5 months old. he was born at 38 weeks after 33 hours of labor, he was a forceps delivery. he was a healthy baby with no complications or health issues. he was 5 pounds 9 oz at birth. <br><br>
He is still breastfeed on demand, though he eats well otherwise. he nurses at least every 2 hours all around the clock. he can go up to 5 hours if apart or distracted, this is rare. he has been breastfeed since birth with no supplements. <br><br>
he sleeps with us, as he has every night of his life.<br><br>
he naps in his own bed, and goes to bed in his own bed each night before joining us in the family bed after i am ready to go to bed for the night (the next time he wakes up after i have gone to bed).<br><br>
He does not nurse to sleep, never has. we nurse then rock and either rock to sleep, or we lay down together in his bed and i rub his back till he falls asleep. at night when he wakes, if he nurses, he rolls over when done and i rub his back till he goes back to sleep.<br><br>
he does have a pacifier. <br><br>
we have tried him in his own room all night, it does not help the sleep and he actually wakes more. <br><br>
We have tried night weaning and it resulted in a frantic paniced baby who's sleep was more messed up for nights after wards. <br><br>
we are concerned his sleep issues may be an early on-set of my anxiety and depression as I have dealt with both since grade school.<br><br>
We are concerned there is a real health issue, or problem that is not being addressed. I don't want to find out later this was not just a baby that doesn't sleep well, but a real problem that I did not get care for. <br><br>
basically we are looking for some answers as to why his sleep pattern is the way it is, and something to help him get enough sleep.<br><br>
Last night for example he slept -- all total -- less than 6.5 hours. That is not enough sleep.<br><br>
his naps are generally 90 minutes, though some day he will sleep 2.5 hours and some days only a hour or even less. I can not find a consistent cause and effect relationship for the differences. <br><br>
his day time behavior is generally good. he is happy and social and cheerful most of the time. he has no trouble separating. however morning and evening are very hard as he is visibly tired. <br><br>
he has reached all milestones appropriately. <br><br>
We are opposed to any hard core sleep training (Enzzo or Ferber or the like) and we are opposed to any version of "cry it out" (CIO). the long term effect to the child's mental health, giving my history and the family history or anxiety and depression, is an unacceptable risk. <br><br>
We have introduced, a month ago, a stuffed puppy as a lovey. we are hoping 1. when he wakes he will grab the pup to resettle himself and not have to grab momma 2. he will tug onto the pup's ears or tail and not my hair to fall asleep (thus opening the possible it of momma not putting him to bed, and maybe someday him going to bed on his own. and also less pain for momma. 3. it try to have something more than mom he can rely on giving the baby coming. it is not working so far. he will hug the pup and carry it around, a little. when we go to bed he hold my hair with his arm around the pup, but in the middle of the night he violently throws it to get to me. <br><br>
A few months ago he was sleeping a little better, but that lasted less than a month. he was going back to sleep upon waking better also, but that didn't last either. <br><br>
generally speaking a good night <br>
30 minutes to go to bed <br>
sleep an hour <br>
15 to 20 minutes to go back to sleep <br>
sleep 90 minutes to two hours -- at the end of the 90 minutes to two hours Mom is ready for bed, join her there -- go back to sleep in 20 to 30 minutes <br>
sleep 2 hours chunks all night with 10 to 20 minutes wakes in between. MAYBE a 3 hours chuck once, but not each time<br><br><br>
generally speaking a bad night <br>
over an hour to go to bed <br>
sleep 45 minutes, or maybe only 30 <br>
wake for over an hour or close to it <br>
sleep 45 minutes to an hour and then wake for 30 to 45 minutes over and over all night. <br>
be awake about 90 minutes at least once over the night. <br><br>
we are getting about 2 good nights to each bad night; maybe 3 good to one bad -- though in the past week we have had 3 really bad nights, including one 4 hours awake in the middle of the night. long wakes times in the middle of the night seem to be getting more common. As to early wakings (as early as 4:45). <br><br>
He doesn't cry when he is awake -- just flips and flops and rolls and even just lays and stares, but is awake. rubs his eyes a lot. he might cry a little, but not like he is just up crying and crying. he will start crying eventually.<br><br>
1/2 the time he goes from hard asleep to screaming wake, but as soon as i pull him to me he stops screaming and grabs death grip on my hair with both hands. <br><br>
he only nurses ever 3 or 4 hours, even when he is waking every hour -- so the idea of night weaning, the theory being if the child doesn't nurse when he wakes up, decided waking isn't worth it -- won't work for us. Generally speaking the longer the night the more often he nurses; at the start of the night he goes 3 or 4 hours without nursing, by the morning he is nursing each wake up. <br><br>
We also tried a night wean, and the first time he asked to nurse and could not he was frantic, screamed and screamed and scratched himself and me. i rocked him, walked with him, sang to him, everything, he would not be calmed. the next three nights were really bad with him waking and nursing every hour or less all night. <br><br>
he still has teeth to get, but right now we do not seem to be teething. Also the sleep is an on going thing, since BIRTH and it has never been much better than now -- though a little better about 12 weeks ago still not great so I am not sure the teeth are the cause. Yes I am sure they effect him on some nights, but i do not think they are the whole issue. <br><br>
he is not verbal -- saying only mummy and da and while he always applies the "words" Scott or I he doesn't use them ONLY for Scott and I. <br><br>
I am pushing more and more food day time hours. 1. because i am pregnant and if my milk fails us around week 20 to 24 as it very well could, i do not want an any more of a bad situation that it has to be -- more food, less dependence on milk for nutrition and "not being hungry" -- 2. also the vain hope that if he eats more day time he'll nurse less night time and sleep better -- however this has not held true -- i see no different in the sleep on days he eats "a lot" and days he "doesn't want to eat".<br><br>
he was a GER baby, and we controlled that with my diet and one attempt at medication, however the medication caused no difference in the sleep. Also there was NO testing done for the GRE diagnoses and i have a feeling it may have been giving to appease the mother more than due to an actual illness in the child. <br><br>
We have been to an ENT about 7 month ago when i asked the Ped about sleep apnea -- she thought i was nuts but i insisted. the ENT also thought i was nuts and called it reflux -- which i am convinced they use as a catch all able right up there with colic the translation is "i don't have a clue but this mom won't shut up till i tell her something" he did NO TESTS (that really bothered me, how can you do any diagnose without any tests?). he gave us a Rx for Prolicet which we didn't want to use, but did for 6 to 8 weeks -- we saw no change in Theodore's sleep so we went off it. <br><br>
he is home all day with me. we do go to a playgroup once in a while. He is very social and not afraid of anyone or anything -- totally willing to go to strangers. <br><br>
He stays with a babysitter once every 2 or 3 weeks for 3 or 4 hours. he does not sleep there.<br><br>
I have talked to the Ped about it and her only responce is either to let him cry, which i will not do and feel is akin to abuse, or the acid reflux -- however at 17 months she has still not done a single test that shows acid reflux. <br><br><br>
We have tired leaving him in his own bed all night, just going to him when he wakes. But the later in the night -- like after Scott and I have gone to bed -- the shorter his sleep cycles get. even if Scott and are just up super late, each successive time i put him back to sleep he sleeps less and less -- the first time is always about an hour, the next time 90 minutes to 2 hours, after that the cycles start getting shorter and shorter if he is not in bed with us.

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still don't get the Q about day care<br><br>
AImee
 

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Discussion Starter · #9 ·
<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">It doesn't sound like sleep apnea to me. I have sleep apnea. Does he stop breathing or choke in his sleep? Snore? Does he sleep better if laying in a certain position? It sounds like he sleeps like both of my kids did and we just had to wait it out unfortunately. I really feel for you, it was a very tough time.</td>
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he seems to strart himself awake, jumping or flinching or just screaming.<br><br>
MIL, SIL and one of 2 BIL have sleep anipa and use the c-pack machines, that was why we thought of it.<br><br>
no postion seems to help enough to notice.<br><br>
nothing i have tried (darker room, white noice, early bed time, late bed timem night wean, more food, less food.....) seesm to make a noticable differnce.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><br><br>
AImee
 

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I have no help to offer, but I hope the sleep study comes to fruition and provides you with some help!
 

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<div>Originally Posted by <strong>Aimee21972</strong> <a href="/community/forum/post/8011806"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">he seems to strart himself awake, jumping or flinching or just screaming.<br><br>
MIL, SIL and one of 2 BIL have sleep anipa and use the c-pack machines, that was why we thought of it.<br><br>
no postion seems to help enough to notice.<br><br>
nothing i have tried (darker room, white noice, early bed time, late bed timem night wean, more food, less food.....) seesm to make a noticable differnce.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><br><br>
AImee</div>
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A C-pap machine blows air up the nose. Do you think he'd co-operate with that? The "pap" in C-pap stands for Positive Air Pressure. It blows air up the nose hard enough to force the airways to remain open. Startling awake, jumping or flinching doesn't sound like his airway is obstructed...it just sounds like normal baby sleep problems. He probably needs to outgrow it. Though if you have a sleep study and find out the problem please please share it because many of us would like to hear there is a treatable cause for this since a lot of us have had this problem with our little ones. My kids didn't sleep through the night without startling awake and screaming until they were over 4 years old!!! I was one tired mama.<br><br>
-Heather
 

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Discussion Starter · #12 ·
i don't expect him to use a c-pac machine <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> not for a long time. I understand hw they work, i also fear they are too loud and he'll just play with it <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
i just want to KNOW --<br><br>
what is wrong<br><br>
and if there is ANYTHING that can help, now or later.....<br><br>
and i want to know if there IS an issues that can effect him (breathing or something) so I can be more watchful....<br><br>
Aimee
 

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It doesn't sound like sleep apnea to me. Sleep apnea often causes children to sleep more, rather then less, because they are not getting good quality sleep.<br>
Sleep apnea in children is characterized by snoring, daytime sleepiness, poor weight gain, and the obvious is stopping breathing while sleeping. It's really pretty rare in children.<br>
My DD has sleep apnea and it was diagnosed with a sleep study.<br>
Treatment in children is often a tonsillectomy and adnoidectomy (to widen the airway if it's obstructive apnea and there is inflamation) and CPAP. When DD is sick with anything respiratory she needs to wear a pulse oximeter while sleeping so we know if she stops breathing.<br>
If it's a problem now, it needs to be treated now. It's a serious problem.
 

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Discussion Starter · #14 ·
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<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">If it's a problem now, it needs to be treated now. It's a serious problem.</td>
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doing my best <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
some snoring -- but not all night or evey night<br><br>
poor weight gain,<br><br>
I don't know -- the mommy-dar is jsut telling me this isn't right.<br><br>
maybe he is fine and i am a nut case. <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/dizzy.gif" style="border:0px solid;" title="Dizzy">:
 

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I'm sure the question about daycare is just to see if there is a secondary caregiver who might have observations on Theo sleeping or eating to add for a fuller picture.<br><br>
ETA: Just wanted to add that I hope everything works out for your family
 
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