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Discussion Starter · #1 ·
i don't know what to do.<br>
it's been four and a half years.<br>
we've worked so hard, eliminated so much, spent so much money.<br>
i can't watch her scratch her little skin off anymore.<br>
it literally makes me want to bang my head against the wall.<br><br>
i don't even know what i'm looking for.<br><br><br>
i<br>
hate<br>
this<br>
so<br>
much.<br><img alt="" class="inlineimg" src="/img/vbsmilies/smilies/gloomy.gif" style="border:0px solid;" title="Gloomy">:<br>
i try to repeat mantras like, "your skin is good and you are good and you deserve to rest and heal, little one." but i'm not even sure she can stop herself.<br>
i would appreciate any ideas from other eczema moms.<br>
i need help.<br><img alt="" class="inlineimg" src="/img/vbsmilies/smilies/gloomy.gif" style="border:0px solid;" title="Gloomy">:
 

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oh momma... I'm sad you're feeling so bad for your child. mine only scratches a little bit, but she's only a little baby- and it hurts me. I can imagine what you're going through. I hate having to keep clothes on her all the time.
 

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I hear ya. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><br><br>
My LO is only 2.5y but she scratches herself raw and bloody. It literally makes DH & cry sometimes. <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/gloomy.gif" style="border:0px solid;" title="Gloomy">: She's at the point where she claims all lotions/oils/etc hurt her so she doesn't even get moisturized much anymore, which of course makes it worse, but I can't traumatize her with the lotions....... *sigh*<br><br>
We saw a HUGE improvement when we did top 8 elim, enlarging the wheat category to all gluten. We've also eliminated many spices and all seeds & nuts. We've been on it for 6wks now. We have a confirmed dairy & garlic going in. So we challenged soy first - failed despite it not showing up on tests. We just challenged eggs - failed. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> We're finding that we have to stay away from all nitrates and preservatives and additives, too (we generally don't eat those, but we had some bacon from my mom and it was a disaster).<br><br>
Food allergies are so incredibly hard. Food is so emotional. And our little ones don't really understand. PM me if you want to talk.
 

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Discussion Starter · #5 ·
thank you so much for reading and posting, mamas.<br>
it helps to know i'm not alone.<br><br>
mtn.mama - i was in your ddc and i'm so sorry you are struggling with food sensitivities, but i admire you - you have learned so much already. i remember finding mdc when dd was 2.5 and thinking "leaky gut, huh?". it was what i had suspected all along but i didn't know there was even a "name" for it. i can't express how happy i am that you are so far along in your research already. your babe is very lucky. and oh! do i remember the long sleeves and long pants all the time, and shopping with my mom and her saying, "i don't think she'd be able to pull these up, hon. let's get these."<br><br>
i think one of the reasons that i'm having such a difficult time emotionally with it right now is that my son is 5 months and i feel the differences between my experiences so deeply. they are obviously different people, but it just seems clear, for the first time, how difficult things were. all the bouncing and the waking every 45 minutes and the sandpapery skin and the diaper changes where she would just check <i>out</i> and scratch and the blood stains on the little white fancy french hand-me-down bunting and the trips on the bus (because the car was out of the question - that's how the bunting got bloodied) and the strangers looking at her, screwed up faces, saying "what's wrong with yer baby?" and "it might be the formula". it's like i'm there again. and it is better than it was. so much better. but it's still so hard.<br>
sometimes i wake up at night with my sons tiny hands in mine, trying to stop him from scratching, even though, he was just rooting around looking for sweet milk.<br><br>
menomena - hugs to you too. thank you. dh and i cry too. and we punch the air. and when we remember too we squeeze each other tight. that's best. that way we don't get so angry that we get frustrated with each other. you are so right that food is so emotional. that is such a big part of it and i never really put my finger on that before.<br><br>
janeS - we have done EAV, NAET, RAST and some skin tests. not much comes up. since we've been gluten free she's had solid stools for the first time in her life (a little over a year ago). so i have a bunch more research and testing to do. i've been waiting a bit since we are moving from MA back to Oregon and we have a great naturopath in oregon who i'm hoping can hold my hand through it a little. it's been difficult trying to wrap my postpartum brain around it all. if she's celiac than is that just a leaky gut - or do the fact that she may have and should be tested for genetic markers mean that's just the answer? i really have to buckle down and do more research. if only her one four-ish hour chunk of sleep wasn't from 3am to 7am!<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/eyesroll.gif" style="border:0px solid;" title="roll"> thank you, again, however, for all the research you've done. i ride your coattails often.<br><br>
thank you mamas. for listening.<br>
it means a lot to me.
 

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We'll be here every time you want to talk... I don't know where we'd be without MDC and this forum in particular. I'm so glad to hear that your baby boy is healthy! That is cool. I'm hoping we get everything straightened out so we can think about having more kids. Being a mom is an incredible thing. I have never loved so much, hurt so much, tried so hard. Are you thinking that your daughters eczema might not be food related? We're gluten free here too. If she does have Celiac at least you'll know where you're headed. I pray the answers come soon for you all. It rips my heart out when I don't know "what she's reacting to this time". Take care mama.<br>
Lisa
 

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<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/hug2.gif" style="border:0px solid;" title="Hug2"><br>
I am so sorry to hear about your DD. It is very frustrating to watch them scratch themselves bloody. My DH and I have had to hold down DS while he was screaming so that he wouldn't scratch.<br><br>
See my post here for more on my story with pictures:<br><a href="http://www.mothering.com/discussions/showthread.php?p=9037694#post9037694" target="_blank">http://www.mothering.com/discussions...94#post9037694</a><br><br>
Hang in there! It is hard to watch them suffer and it is hard on the marriage. Keep searching for what is causing the eczema.<br><br>
An update to the post above is that we are still following the Low Oxalate Diet and I have added in several more supplements that have helped greatly, high vitamin CLO, which initially sparked BAD patches of eczema, it created a very high need for vitamin B2;i also take extra DHA, and vitamin K2. Another Yahoo group that has been helpful for me is Vitamin K:<a href="http://health.groups.yahoo.com/group/VitaminK/" target="_blank">http://health.groups.yahoo.com/group/VitaminK/</a>
 

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feel free to PM me if you would like more info
 

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aileen - yes it took me awhile to figure out why it was so over and beyond harder than any other parenting issue i've faced. it finally dawned on me when we'd go to parties and sit there and eat our chicken and rice and apples that we brought from home and everyone else was eating cake and pie and quiche, etc. I was so JEALOUS and actually found myself getting angry and grumpy. Then it hit me: food is emotional. Now that we're eating less of the "goodies" and more "functional yet tasty" food, food is becoming less about emotions and feeling good and having treats, to giving us energy, fueling us up, etc etc.<br><br>
sure does suck around the holidays though.
 
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