Mothering Forum banner

1 - 5 of 5 Posts

·
Registered
Joined
·
3,360 Posts
Discussion Starter · #1 ·
I've had recurrent ileitis- inflamation of the lower part of the small intestine- for years. Last year, though, it happened quite often until I was once again in the ER on morphine and this time hospitalized and given lots of tests. (Most times, I stay home but they told me to ALWAYS come in, but did I this past Sunday? No! I have to take an ambulance and get babysitting...) I then followed-up with the head of gastroenterology at University of Michigan who said "In 30 years, this only ever gets worse and I have no idea what the issue is because it isn't Crone's". (Basically, anyway.) Then I went off gluten and have been basically fine, but ate gluten here and there. So Sunday I had a muffin from Tim Horton's and the pain started up again. What happens is, I get a stomach ache that gets worse as the evening goes on, then I get very bloated, distended, then pain gets worse until I go into the bathroom and lay on the floor. It takes about six hours of this until I throw up and feel SOME better, but I sweat and nearly faint. Recovery is slow and I can't eat. If I try, I'm back to pain. Even jello. Even bumping my middle hurts it. The hospital last time starved me and I was on an IV. Then I get obsessed with food- watching tv food network- like now. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol"> I'm at the stage where my body and brain want food but my belly says "Do it and...." in a menacing way. I've kept down tea without pain pretty much, but jello- nope. I am getting hungry today which means I'm recovering but I still can't eat. Its wearing me out. This woman on tv is making a chocolate cake. Yum and ICK at the same time. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol">
 

·
Registered
Joined
·
3,360 Posts
Discussion Starter · #2 ·
I went to the dr. this afternoon. They said it might be another version of crone's, but still no idea. Did some xrays as they felt a mass on my right side - where most of the pain is. Took blood and am scheduled for a CT scan (another one) and a hydrogen breath test in the next week.<br><br>
I've had broth, corn and now am working on a cold can of Canada Dry.
 

·
Registered
Joined
·
14,488 Posts
I feel so bad for you. No one should have to go through that.<br><br>
When did you get this the first time?<br><br>
Just wondering. Was it after getting a booster of the MMR for college?<br><br>
There is hope though. But you have to find the right doctor. But I do think mostly diet treatment and probiotics and certain vitamins/minerals.<br><br>
What about the thread "healing the gut"? Did you ever consider it?
 

·
Registered
Joined
·
3,360 Posts
Discussion Starter · #4 ·
Thanks for the response. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
This has been going on off and on since I was at least 25, and flared up when I was pregnant. (Not making pregnancy easy!) But it really got bad in May of 2003. I had one episode then and then at least one in 2004 and at least one in 2005- jan I think. In 2006, I had several and this is the first one for 2007. Its just that there was such a long break between the last one and this one.<br><br>
That said, I think it happened before I was 25, but I don't really remember. I know it started at least then, because I went to the ER with it and came home okay with the news I was 5 weeks pregnant.<br><br>
No, no MMR boosters. It doesn't have anything to do with shots. I haven't had any shot but flu recently. I did have a dT in August 2002, but nothing related to it as far as these episodes go.<br><br>
Oh- and I've read the healing the gut thread many times, but they all seem to be talking about unrelated things. I've even posted there and gotten no response. Maybe its just too busy.
 
1 - 5 of 5 Posts
Top