[lyndzelove]

I have introduced myself elsewhere on the boards but I thought it's time to formally intorduce myself here. I didn't even realize there was a special needs area until yesterday. I am so happy to have found it!
I'm Lindsay I am a SAHM to Holden who is almost 2.5 and Ariana who is 10.5 months. Holden is my special needs child. He isn't formally diagnosed despite many tests. He is delayed in speech, gross and fine motor skills. He's just now starting to take steps on his own. He has low muscle tone. And he says maybe 3 words consistantly juice, bath and baba.
We had an MRI done last spring and the only explanation I was given at the time was that the myelin in his brain is slow developing. He won't see the the neruo again until Sept 8. The Dr standpoint is that as long as he continues progressing with therapy we shouldn't be overly concerned. He was been recieveing Speech and PT since he was 12mos and he has really come a long way.

I feel like I haven't gotten enough answers from the doctors. I'm hoping if i hang out here for awhile I figure out exactly what I need to be asking them to get the answers I'm looking for.

 

[USAmma]

I hope you find the SN forum a place where you can get lots of support.

 

[zipworth]

Welcome!

Natalie

 

[poppyqwn]

Glad you found us. I hope you find much support here!

 

[peekyboo]

Welcome! I can totally relate to you - my dd Maura, who just turned two, started walking at almost 23 months, has global delays (gross/fine/speech), and no diagnosis except low muscle tone. (We know she doesn't have a chromosonal disorder or autism.) We do need to get her eyes checked - they don't always match up and she might need glasses to correct the problem.

Maura receives PT, OT and ST through the Early Intervention program here and we have seen such improvement in the past six months.

Can I ask if your ds needs any orthodics (sp?) - Maura has special inserts in her shoes to keep her feet from rolling inwards, which really has helped with her balance, which in turns helps with her confidence levels. Also, we've been giving Maura four caplets of Children's DHA each day (it's by Nordic Naturals, it's essential fatty acids - fish oils). I read in "The Late Talker" that these can help children gain communication. I have to say, Maura has suddenly had a huge leap in understanding things this week since we've been giving them to her religiously. I don't know if it's just coincidence, but we're going to keep giving those fish oils to her!

If you click on the "Life as Mommy" link below, I have a web site that I put a bunch of links on it about developmental delays and such, if you're interested.

 

[Foobar]

Welcome!

 

[mom2mygirls]

Welcome

 

[lyndzelove]

Our babies do have many simalarities! Holden has also been having issues with his eyes lining up. The opthamalogist says his is due to low muscle tone around his. He has to wear a patch over his "good eye" when it gets bad and after a few days of patching its seems better.
I will have to try those supplements. Thanks for the suggestions. That is awesome that Maura is understanding more now. I just got Holden's most recent eval results and he's BDI is 15mos. Yay for progress!

Quote:

Originally Posted by peekyboo Welcome! I can totally relate to you - my dd Maura, who just turned two, started walking at almost 23 months, has global delays (gross/fine/speech), and no diagnosis except low muscle tone. (We know she doesn't have a chromosonal disorder or autism.) We do need to get her eyes checked - they don't always match up and she might need glasses to correct the problem. Maura receives PT, OT and ST through the Early Intervention program here and we have seen such improvement in the past six months. Can I ask if your ds needs any orthodics (sp?) - Maura has special inserts in her shoes to keep her feet from rolling inwards, which really has helped with her balance, which in turns helps with her confidence levels. Also, we've been giving Maura four caplets of Children's DHA each day (it's by Nordic Naturals, it's essential fatty acids - fish oils). I read in "The Late Talker" that these can help children gain communication. I have to say, Maura has suddenly had a huge leap in understanding things this week since we've been giving them to her religiously. I don't know if it's just coincidence, but we're going to keep giving those fish oils to her! If you click on the "Life as Mommy" link below, I have a web site that I put a bunch of links on it about developmental delays and such, if you're interested.

 

[lyndzelove]

I totally forgot to answer your ortho question. No he doesn't currently have any inserts. For a while he was reccomended to wear high top sneakers or boots to support his ankles.