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Discussion Starter · #1 ·
My daughter has periodic blood tests because she is on Depakote. The most recent results showed her Carnitine levels to be low. In the past I supplemented with L-Carnitine. (One of the neuros suggested I stop.<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">) The neuro’s nurse called saying the neuro wants the ped to prescribe Carnitor. (Couldn’t make it easy and skip the middle man<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/irked.gif" style="border:0px solid;" title="irked"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> I mentioned I can purchase L-Carnitine but she said it wasn’t the same. What’s the difference? (I used to purchase L-Carnitine from my holistic doc who sold, in her opinion, high quality pure supplements.) Maybe I should just get the scrip so insurance may pay for it?<br>
TIA
 

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Carnitor is the Sigma Tau brand of L-Carnitine. My son takes Carnitor for mitochondrial dysfunction. If you can get insurance to pay for it I would go that route! The Carnitor is supposed to be better than L-Carnitine.
 

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<a href="http://www.drugs.com/cons/levocarnitine.html" target="_blank">http://www.drugs.com/cons/levocarnitine.html</a><br><div style="margin:20px;margin-top:5px;">
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<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">Carnitine comes in two forms. Levocarnitine (L-carnitine) should not be confused with the D,L-carnitine form (labeled as “vitamin B T ”'). Only the L-form of carnitine is used by the body to treat serious carnitine deficiency. The D,L-form does not help the body use fat and can actually interfere with and cause a lack of levocarnitine.</td>
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Discussion Starter · #4 ·
my3peanuts<br>
Thanks I think I'll get the scrip.<br><br>
ShaggyDaddy<br>
The link you provided mentioned a side effect of L-Carnitine to be seizures...<br><div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">Seizures—occur more often and are more severe in patients with a history of seizure activity</td>
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A while back I read about D,L Carnitine so I knew to stay away from that one. If I am reading correctly...Carnitor and L-Carnitine are the same.<br><br>
Thanks! Off to call the new ped who seems a little confused everytime I talk to him. I'm beginning to doubt my choice when switching peds.
 

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<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>dbsam</strong> <a href="/community/forum/post/11535492"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">my3peanuts<br>
Thanks I think I'll get the scrip.<br><br>
ShaggyDaddy<br>
The link you provided mentioned a side effect of L-Carnitine to be seizures...<br><br><br>
A while back I read about D,L Carnitine so I knew to stay away from that one. If I am reading correctly...Carnitor and L-Carnitine are the same.<br><br>
Thanks! Off to call the new ped who seems a little confused everytime I talk to him. I'm beginning to doubt my choice when switching peds.</div>
</td>
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My son has Epilepsy and takes Carnitor. He does still have seizures daily but it's hard to know if it's from the Carnitor or not. We haven't noticed a huge difference since starting Carnitor but some people do.
 

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Andrew was carnitine deficient (secondary to a metabolic disorder rather than seizure meds). He takes Carnitor and $$ wise that is the route I'd take in your situation. There is a slight increase in seizure risk or lowering of seizure threshold. However, there are a lot of kids on this without increased seizures and you have to correct a deficiency. Kids on the ketogenic diet for seizures that aren't corrected through meds take carnitor too pretty routinely in my understanding so I wouldn't be overly concerned.
 
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