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Discussion Starter · #1 ·
I've gotten severe itchiness each pregnancy and after my last two, it hasn't gone away. It's like my bones itch. My youngest is now 15mo old and the itching or restless legs has developed into muscle spasms along with the itching. Like muscles all over my body, not just my legs, do a dry heaving like tensing slowly. They don't do it all at once, but in sections...both arms, later both legs...<br><br>
The only thing that works is calcium. I have to take an absurd amount of calcium every day. I want to know what it is and how to cure it. I was recently sick and hadn't taken my calcium for a few days, was extremely itchy, and had blood work done...my calcium levels were normal. I figured it was caused by low calcium, but no.<br><br>
During my pregnancies, my midwives had told me it was Cholestasis, but all the Dandelion capsules in the world (22 a day) gave me no relief. I just had my liver tested and it came back normal. A CT scan showed my liver and gull bladder functioning normally, too.<br><br>
Any ideas??? I'm at my whit's end! TIA!
 

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Are the spasms painless? Is it twitching? Large or small muscle groups? Both sides of the body at once? Any weakness or pain?
 

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Discussion Starter · #3 ·
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<div>Originally Posted by <strong>sbgrace</strong> <a href="/community/forum/post/14694173"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Are the spasms painless? Is it twitching? Large or small muscle groups? Both sides of the body at once? Any weakness or pain?</div>
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They are painless (ticklish), both sides at once, not really a twitching since they happen so slowly. They occur in sets of muscle groups on both sides, as in both forearms or both thighs.<br><br>
I guess they make me weak while they are happening. I had them in my arms while on a long drive recently. I kept needing to stretch and flex to make them stop momentarily, but they kept restarting, so I took my calcium and let my husband drive. That's the only time I've noticed weakness since I'm usually in bed or sitting when it happens to my legs. It also happens in my back, so it's not just my extremities.
 

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I would see a neurologists re: the muscle stuff. I'm wondering if this is your nervous system rather than your muscles as I normally think of muscle spasms as very painful. I have nervous system issues and it causes similar things in my muscles. It's good that it stops when you move, even if it is temporary. In addition, neuros will be able to check the muscles as well. Itching can also be nerves. Nerves do weird things when they are inflamed (I felt bugs were crawling on me). I don't know what the calcium connection might be.<br><br>
Itching could also indicate autoimmune which I think would be Rheumatologists (or dermatology but I think you're describing something far more than the skin).<br><br>
But I really think neurology is your first stop because all of what you describe may well be nerve related.<br><br>
Do you have any other issues at all/even if it seems unrelated?
 

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Discussion Starter · #5 ·
Recently, I've been thinking it could be neurological, too.
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<div>Originally Posted by <strong>sbgrace</strong> <a href="/community/forum/post/14696612"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Do you have any other issues at all/even if it seems unrelated?</div>
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Yes, but they are recent things over the last 2-3mo...hmm, this is also about when the itching added this muscle issue. I have been seeing a doctor for abdominal pains, which is why I had the abdominal CT scan, which showed nothing but enlarged lymph nodes on my aorta. They've narrowed the pain to my colon...they think, so I go in for a colonoscopy next Wed. Also, when the abdominal pains started I started getting chest pains, which makes no sense for a colon issue.<br><br>
I also have been getting dizzy more often, even while sitting. I've gotten dizzy often since I was 11 so I've ignored that. Lately I've been getting migraines again (after years of not having them) and have been nauseated for the last 2-3mo with no cause.<br><br>
One more thing, a few weeks ago I had an allergic reaction to the antibiotic Sepra I was on for a really bad bladder infection...I thought it spread to my kidneys and was the source of my abdominal pains, but now my blood shows no infection, but I do have a boarder-line low white blood cell count. Anyway, I have never been allergic to anything before, and broke out in a full-body rash that burned...I also had flu symptoms but am not sure if that was the reaction or really the flu.<br><br>
Wow, I feel like a hypochondriac. I am usually very healthy...even UP/UC'ed my last two pregnancies.
 

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You don't sound like a hypochondriac. You sound like someone whose body is sick right now. I had something similar happen to me last year. My whole nervous system melted down. I also had dizziness and GI stuff (and fatigue and pain and some other junk).<br><br>
Ok, make an appt. or get a referral for a neurologist. You need some tests run I think. They did an MRI with me, nerve conduction, and EMG. I think you need someone to take a look and check things over.<br><br>
I'd also suggest you have your doctor run some labs. Vitamin D (25 (OH) D specifically), thyroid (including T3), coq10 (doctor may balk..have it run because you have nervous system and possibly muscle issues and this affects the nervous system and muscles), carnitine if they will (again, not usually run but affects the areas you are having issues with).<br>
Do you have any fatigue?<br><br>
What was your actual calcium number? Normal ranges aren't necessarily normal.
 

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Discussion Starter · #7 ·
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<div>Originally Posted by <strong>sbgrace</strong> <a href="/community/forum/post/14697573"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I'd also suggest you have your doctor run some labs.</div>
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He ran a ton then sent me to a gastro specialist. We didn't really investigate all my complaints from this thread, since I was sick at the time so it was easy to brush it off as side effects from that and ignore the itching.<br><br>
I just saw a dermatologist for my keloid scars and asked him about the itching. He brushed it off saying I needed to moisturize! He was just named one of the top 10 Dermatologists in the country...I'm not impressed. I explained...still needed to moisturize and he wrote me a RX.<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/angry.gif" style="border:0px solid;" title="angry"><br><div style="margin:20px;margin-top:5px;">
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<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">Do you have any fatigue?</td>
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I have 7 kids and homeschool...you mean this might have a physiological cause?!?<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment"><br><div style="margin:20px;margin-top:5px;">
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<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">What was your actual calcium number? Normal ranges aren't necessarily normal.</td>
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I'm not sure, but it was well within their normal range.
 

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<div>Originally Posted by <strong>MyCalling</strong> <a href="/community/forum/post/14698046"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
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I have 7 kids and homeschool...you mean this might have a physiological cause?!?<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment"></div>
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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/winky.gif" style="border:0px solid;" title="Wink"><br>
I asked because sometimes the underlying issues that cause nervous system malfunctions for lack of a better word also cause fatigue. And if you were experiencing fatigue in addition to the tests I suggested I'd recommend a hospital sleep study. Sleep apnea can impair the nervous system along with causing fatigue and it's not terribly uncommon.<br><br>
Make sure your calcium was below 10. Ten is usually in range but it's high and high isn't good.<br><br>
If your doctor didn't run the labs I mentioned I'd go back and have them run while I also asked for a neuro referral.
 

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Discussion Starter · #9 ·
Thanks for all your help! I'll get into the doctor soon and ask for these tests you recommend. I was waking up once in a while with a gasp or suddenly gasp for air while falling asleep. But that stopped, as far as I can tell. I figured it was the way I was laying causing me not to breathe in so deeply for a long time before my body decided it needed more oxygen.
 

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<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>MyCalling</strong> <a href="/community/forum/post/14700189"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Thanks for all your help! I'll get into the doctor soon and ask for these tests you recommend. I was waking up once in a while with a gasp or suddenly gasp for air while falling asleep. But that stopped, as far as I can tell. I figured it was the way I was laying causing me not to breathe in so deeply for a long time before my body decided it needed more oxygen.</div>
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You need sleep study. A hospital one (not a home ox sat. thing as that is useless).<br>
Even if you are no longer noticing this (that would occasionally happen to me) you may be having apnea episodes unaware. That is the case (not aware) most of the time. But the body moves the person out of deep sleep to recover the airway. And this lack of sleep does all kinds of damage.
 

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Discussion Starter · #11 ·
Well, I went in today and my dr wasn't there so I had to see a NP. She kept saying it's probably just anxiety (it's all in my head!) since all the tests they have done have turned up nothing. Later she referred me to a GYN for my abdominal pain thinking it was an ovary...which was the very first prediction from the first NP I saw but she wanted to get rid of my bladder infection first, later the dr sent me to a gastro...*sigh* No closer. She gave me a RX for the dizziness, but I don't really want to take a med to mask a symptom.<br><br>
She did a urine test for a bladder infection (the reason I went in today even though my dr wasn't there) and it came back with high protein, ketones, and one other, but no bacteria. She said I must be dehydrated which might explain the dizziness...BUT my urine was clear, not even yellowish. Doesn't it usually become dark yellow or brownish if I'm dehydrated??<br><br>
I'm thinking of canceling my colonoscopy...I really dread going through that on everyone's hunch!
 

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Have you tried switching paradigms? I think the neurologist route is valuable one, so not suggesting changing that, but I personally would head to an acupuncturist if I had all those symptoms. You can do that in addition to the neurologist, and get info from both systems of thought. The acupuncture might give you some relief from symptoms, even if you end up getting diagnosed with something neurological.<br><br>
When I had itching during pregnancy that got worse after giving birth, acupuncture got rid of it in three sessions. Blessed relief.
 
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