Itp?
Hi everyone. I've never posted in this particular section of the boards before, but I think it's the right spot!
Does anyone else have ITP? I was diagnosed about 10 days ago and am fighting to keep my platelet counts up right now. I went into our family doctor for a blood test b/c of a lot of bad bruising and bleeding and my Dr. called me the next day with the results which sent me to the hospital with a count of 10. There they were 19, so they started me on an IV of steroids and sent me home with a script for prednisone 20 MG 3x a day. I went to the oncologist/hematologist the next day where the counts were up to 27 and then 4 days later up to 67.
I asked to back down to 20 mg 2x a day b/c I'm finding the steroids are doing something to my milk supply (anyone have this issue while breastfeeding?)
A week later, this past Mon, the count was at 17.
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So Dr. put me back up to 3x a day again.
I'm worried about my milk supply and just in general. I've been looking for alternative treatments since clearly the steroids aren't totally fixing this, nor am I happy to be on them (Dr.said the alt. is IV meds an/or spleen removal) and am going to acupuncture Saturday.
Has anyone tried diet changes? I've been finding that a Gluten free diet can help? Thoughts on this?
Anyway, sorry this is kind of all over the place - just wanted to see if there are other ITP people on here to discuss some things with!
A week later (this Monday)
Does anyone else have ITP? I was diagnosed about 10 days ago and am fighting to keep my platelet counts up right now. I went into our family doctor for a blood test b/c of a lot of bad bruising and bleeding and my Dr. called me the next day with the results which sent me to the hospital with a count of 10. There they were 19, so they started me on an IV of steroids and sent me home with a script for prednisone 20 MG 3x a day. I went to the oncologist/hematologist the next day where the counts were up to 27 and then 4 days later up to 67.
I asked to back down to 20 mg 2x a day b/c I'm finding the steroids are doing something to my milk supply (anyone have this issue while breastfeeding?)
A week later, this past Mon, the count was at 17.
I'm worried about my milk supply and just in general. I've been looking for alternative treatments since clearly the steroids aren't totally fixing this, nor am I happy to be on them (Dr.said the alt. is IV meds an/or spleen removal) and am going to acupuncture Saturday.
Has anyone tried diet changes? I've been finding that a Gluten free diet can help? Thoughts on this?
Anyway, sorry this is kind of all over the place - just wanted to see if there are other ITP people on here to discuss some things with!
A week later (this Monday)
