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Just found out....

741 Views 17 Replies 16 Participants Last post by  tjjazzy
ds has a hole in his heart.


Ds had his 4 month checkup (a couple weeks late) this past monday and our regular doc noticed a murmur that no one had until this point to my knowledge. He wanted a second opinion from a ped so that is where we went today. Within the first 2 seconds of listening she shook her head as if to say, "yup, murmur". She went on examining him further then explained to me to basics of murmur caused by hole in the heart in infants.

We go for an ultrasound soon to be sure it's nothing out of the norm. I'm being assured it's fairly common and will most likely close on it's own over time. Dh actually had a hole in his heart at birth and it closed on it's own without any further issues. Dh still has a murmur today but, it didn't seem to stop him from a career as a professional athlete soooo......

anyway, people say not to worry, it's common, it's no big deal, it's ok, but, yk, I'm his mommy so I do worry a little for my baby of course. So I think I could just use some more words from mom's who have had this news and everything turned out ok one way or the other.

anyone?
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My mom told me I had one - not too big of a deal. It fixed itself! Hugs mama!
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Quote:

Originally Posted by fresh_veggie View Post
My mom told me I had one - not too big of a deal. It fixed itself! Hugs mama!

thank you
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Ds1 had one when he was born, and I don't think they caught it until his was about your ds's age. We had to go to a children's hospital and have an EKG, it all seemed so much scarier than it turned out to be. It has since fixed it's self, he's now a happy, healthy 8 year old! Wishing you and your ds the best!
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My dd has a hole in her heart too. It was diagnosed when she was just born, the ped could hear a murmur.

She had an EKG (oh i was so worried
and we were waiting outside the cardiologist's office, I couldn't help crying; dd was crying cause she was cold - we had to wait longer than expected, cause (I think) the cardiologist was explaining to a pregnant woman that her unborn child had a very serious heart defect
(couldn't hear what she was saying, but heavily pregnant woman breaking down crying, I'm guessing that was it...) which made me cry even more) and the cardiologist said it was likely to close on its own.

It's one of those things all babies have in the womb, but they normally close at birth. It's fairly common that it doesn't close up straight away though.
ASD I think it's called? (There's also VSD but ASD is what my dd has)

Anyway the cardiologist told me not to worry, it would probably close up, and even if it didn't, it wasn't lifethreatening at all or anything.
Last time at the 6 month checkup, the doc could still hear it...

Dd doesn't seem to have any effect from it at all though, so I try not to think about it (which works most of the time
)

But the cardiologist also said that we should get it checked again at 1yo and it would maybe have to be repaired through surgery

I hope that won't be necessary.

Hugs! I know it's scary...
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Tracey


Sorry you had to hear such news
They suspected a murmur with Evangeline and ped. assured us it was fairly normal. Her's has since gone away, but I did, in the meantime, find out through online searching and anecdotal stuff from folks I know that it really is fairly common and most babies do heal on their own.

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they often close by themselves.

It's easy for others to say "don't worry" but when it's your lo, it's impossible. So I won't say it....


But I will offer
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Two of my children had that at birth and it closed by the time they had their 2 wk check ups. They're 9 and 7. My cousin had it and hers closed on it's own before her 1st bday. She's 31.

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DH had that back when open heart surgery + bypass was experimental. His parents were scaremongered into signing him up for a study. He got the full open heart surgery and bypass at 4yo just to close the ad.
My textbooks in school refer to that time period as when bypass had a 50/50 survival rate.


Anyways, iirc, the only thing it's been found to cause in adults, assuming it doesn't close, is a higher risk of sports asthma and fatigue.
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((hugs))
It's scary, I know! My youngest is 5 and they found a murmur only a year ago in him. It was completely unexpected since we've been to the pedi a hundred times! It was very scary; the not knowing, but lke the other mamas have said, it happens a lot and usually isn't a big deal.

My ds' issue is some kind of an obstruction, not exactly a hole (I think - it's all very confusing to my not-medically-minded brain). He has to go and have a yearly echocardiogram to make sure that whatever it is is growing with him and not staying the same size and causing a constriction. we have a few "warning" signs to watch for between chckups, but overall, he's a healthy, happy kiddo.

I won't say "don't worry" becasue you will anyway, but I, too, offer tons of hugs and a shoulder to lean on!
thank you everyone for providing me with some IRL accounts. Glad everything turned out well with all of the kids and adults mentioned! I'm sure I'll still do some worrying but, when I actually hear "it will most likely be just fine" from someone who had to deal with it first hand rather than a random doctor it makes me feel a bit better.
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My DH has a small hole between two chambers that causes a murmur. He's had it his whole life; he's had it evaluated twice, once as a baby and once recently. Anyway, it doesn't cause him any trouble-- he's an athlete, and bikes ten miles to work every day, and is in great health.

We recently found out my DD2 has the same defect; again, we're told it's benign and won't cause her trouble, but that she should have it evaluated again after puberty, just to be sure. It's funny though-- the murmur can only be heard when she's in certain positions. If she sits up straight it's gone; if she leans back against me, they can hear it again.

It's impossible not to worry. I know that. But try!
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My sister was born with one but wasnt disscovered till she was 33yrs old! She did need it repaired but they are often missed. Its great you have a ped that picked it up


I have no advice, but I hope that everything goes well and your baby doesn't need any surgery to repair it (although from the pp's it sounds like the odds are in your favor). You and you baby will be in my thoughts!
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My husband had one as a baby and had to have surgery at 3 months old. Everything was fine afterwards and he is fine now even with a murmur.

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My ds was born with two holes in his heart.

One has since closed and they believe the other one will also close.
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My new baby (born 4-14) also has this. He was diagnosed with a murmur on his second day of life, by my pedi who examined him right before we were to leave the hospital. The dr then ordered an echocardiogram which confirmed the VSD, a hole between two chambers. We are going to see a pediatric cardiologist sometime in the next month, but thus far, I am not worrying. I have an excellent pediatrician in whom I have complete faith (heck, he picked this up on Day 2!) and he assures me that my baby is fine. I am choosing to believe it...Hugs to you. Nobody needs this kind of news, even if it *will* be okay.
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it'll be alright. i had a friend whose baby's hole has closed up
she did have to go through some hospital stays and surgery but she's doing so well now!! keep your head and your hopes up!
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