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Anyone out there have any experience with having a baby with heart abnormalities? Our baby has several different issues going on, all of which we knew about except for the leaking heart valve, which we found out about today. Unfortunately, now I can't remember if they said it was the bicuspid valve (the mitral valve) or the tricuspid valve, but blood is leaking back through the valve pretty significantly. Just wondering if anyone else has had anything like this show up by u/s.<br>
On top of that, he has very enlarged kidneys that are about twice the normal size, however, they seem to be working perfectly since I have plenty of amniotic fluid. He has Dandy Walker malformation, which means he's missing some of the connections between the two halves of his cerebellum, although there hasn't been any swelling in his brain so far (which is the biggest risk with Dandy Walker). And finally, he has some hand deformities (some fused fingers and maybe an extra finger on one hand).<br>
Despite all of these things, at the moment he's quite healthy and very good-sized (which helps to rule out some serious chromosomal abnormalities that would lead to poor growth). We have to meet with a pediatric cardiologist soon, so I guess I will know more when that happens. The unfortunate thing about the findings to is that it is the first thing that has come up that makes my midwives leery about letting me deliver with them. The specialists are pushing me to deliver at their hospital that is next to the children's hospital, but I would much rather stay where I am, if not at the midwifery center, in the regular L and D at my hospital. The reason is that the specialists' hospital has an extremely high c-section rate, and I believe very strongly that, barring any serious complications during delivery, a natural delivery will be best for this baby. My midwives are also concerned about the threat of an unnecessary c-section at the other hospital, but I don't know how much say they will end up having. It's definitely possible to have a natural delivery at the other hospital, because I actually delivered my twins there naturally, but it took quite a fight. When I arrived in labor, the first thing they said was, "Let's get you prepped for your c-section!" I was like, "Um, I don't think so!" It definitely was NOT necessary.<br>
Well, I'm afraid I'm kind of rambling on here, but I just wanted to share some of what is going on and get any feedback that I could. Thanks for letting me ramble!
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> I couldn't read and not post. I have no experience with that heart abonormality, though our twins were born with cardiac rhabdomyomas (heart tubers/tumors) that ended up not affecting their heart function at birth. They were monitored closely throughout the pregnancy, and a natural birth was okay for them.<br><br>
Best of luck to you and your baby...I hope you get the results and birth you're hoping for! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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Gayle,<br><br>
That's a ton to process, but you sound so calm!<br><br>
I know nothing about any of the other stuff, but my eldest had a heart condition.<br><br>
It was not diagnosed till she was about six months. During labor her heart rate dropped with contractions (but that may have been the pitocin). They put me on 02 and I had a normal vaginal delivery.<br><br>
Her diagnosis was a bicuspid valve and a coarctation of the aorta. During her surgery they only repaired the coarctation. They said the bicuspid valve wasn't very serious, and was often present when there was another heart problem. She had surgery at 7 months, but you could not tell beforehand that she had a problem.<br><br>
All heart conditions are normal, but everything was really easy for us. I've been blessed to find really great pediatric cardiologists, too. She had her surgery at MUSC in Charleston. Except for the stomach flu we all caught, it went beautifully and she's a happy, healthy, bossy four-year-old.<br><br>
Best of luck,<br>
Alexis
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><br>
As a mama who delivered a heart baby, I had to deliver at a hospital that was attached to a children's hospital so they could stabilize and transport him soon after birth. The doc I had was pro-vaginal delivery and said that heart defects should have no bearing on having a natural delivery since the baby is getting everything it needs from the mama.<br>
I hope you get the delivery that you're hoping for and that all turns out okay!
 

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I've not been down this road but I want you to know that I am praying for you and your dear little baby. I hope that everything goes just the way he needs it to be.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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My 3rd was diagnosed in utero with AVSD, and a leaky bicuspid ( she didn't need open heart until 15mnths).<br>
The diagnosis was not going to affect my VBA2C plans until I ended up delivering her at 36 wks emergency c/s - bleeding placenta previa <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/shy.gif" style="border:0px solid;" title="innocent">. And being born early didn't help the IUGR she had.<br>
I think your cardiologist will have more answers for you, if they think the defect is serious enough they want you near the Childrens Hospital then I don't know, thats a serious decision you'd have to make. I personally would want to make sure that hospital I was delivering at had a great NICU, just in case the baby needed it and was within reasonable ambulance ride to the bigger hospital.<br>
When we were having our daughter the ambulance distances were figured out for us and the cardiologist decided we were safe enough to have the baby at the hospital we chose.
 

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Hey! Head over to Special Needs parenting board, we have lots of heart moms there, including myself!<br><br>
Dd2 was prenatally diagnosed with ToF (Tetralogy of Fallot) and I chose to have her vaginally but changed plans from a homebirth to a hospital birth where the best heart surgeon is!<br><br>
You have a great attitude and your little heart babe is So lucky to have yoU!
 
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