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I've been busy with other things, realized I haven't updated y'all in a while.<br><br>
I'm 33 weeks today. 32 weeks was the estimate of the earliest she could be born and have a good chance of surviving. So, whew!<br><br>
The omphalocele is still there, obviously. It contains 2/3 of the liver. Her stomach is distended, which they think is due to a not-unexpected partial obstruction somewhere in the intestinal tract (super super common as part of having a Giant Omphalocele) And we won't know if her lungs are growing big enough until she's born. So those are the two things we're still worrying about. The lung thing, we won't know, but they could be fine, just a little bit on the small side, or they could be very small. The omphalocele, so long as the sac doesn't rupture during the 6 months to 3 years while we wait for her to be ready for surgery, has a pretty set plan.<br><br>
Now, the good news. Pretty much everything that goes with Giant Omphaloceles that can be ruled out or diagnosed prenatally, has been ruled out.<br><br>
-no chromosomal defects detected (there are some they haven't checked for, but the ones they have, are fine).<br>
-kidneys look good.<br>
-heart, while still on the wrong side, is facing the correct way and is structurally sound, as far as they can tell. The cardiologist at our fetal echo said they'd do an echo again after she's born, to cover all the bases, and we can expect <i>possibly</i> some problems when they do the surgery on the omphalocele (additional pressure <i>may</i> stress the heart) but that if it weren't for the omphalocele, he'd expect to never see us again!<br>
-diaphragm is complete, goes all the way across, no holes or hernias (in other words, the stomach isn't trying to go up where it doesn't belong, and the lungs aren't trying to grow down where they don't belong, both not-rare problems with giant omphaloceles)<br>
-her growth is right on target for her gestational age. They use the abdominal measurement, so even though it shows her being at the 37th percentile, because of the issues, she's probably more like right around the 50th.<br><br>
Also, I've had no signs of preterm labor (Cora was born at 34 weeks and a few days, and I'd been off and on terb and mag for quite a while by this point in that pregnancy,) and my blood pressure is totally awesome and stable with the medication, with no other signs of pre-e.<br><br>
I have mild polyhydramnios, but that's not unsurprising, as her digestive tract probably isn't moving stuff through as well as it should. And it's mild enough that they're not even mentioning doing anything about it.<br><br>
I'm taking it easy most of the time, trying to only schedule stuff for 3 days a week, because I really, really want to make it to 37 weeks. Our baby shower is this Saturday, and two very good friends are handling every detail, taking all the stress off me. Like, I don't even know what food is being served, I don't even want to have to think about it.<br><br>
She moves a lot. Like, whoa. She usually stays between breech and transverse, which is totally fine by me, since we have to have a c/s no matter her position, and this is actually more comfortable for me. She went vertex off and on for a couple days, and the feet in the ribs thing is really uncomfy.<br><br>
I'm uncomfortable and heavy, and not loving that, (it takes a crane, a lift, and an Act of Congress to turn over in bed!) but all in all, it could be a <i>lot</i> worse.<br><br>
x-posted to June DDC
 

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Thank you for the update! Glad to hear that things are sounding pretty positive overall, all things considered. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up"><br><br>
Have a wonderful time at your shower! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/orngbiggrin.gif" style="border:0px solid;" title="orange big grin">
 

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I have been wondering how you all were doing. I am glad to read a happy post and it sounds as if you are doing well. I hope you have a great baby shower and she stays put until its time for her grand appearance.
 

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Great to hear an update!! I'm glad things are going well!
 

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I think about you often and I'm so happy to hear a positive update. Hugs to you!
 

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Big hugs, Kate. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> I'm glad you're in good hands. It sounds like your doctors know exactly what they're doing. Fiona is lucky to have such a proactive mommy. Enjoy your shower!!
 

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yay yay yay!!!! wonderful news! and i LOOOOOOVE the name choice <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/joy.gif" style="border:0px solid;" title="joy">
 

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I'm so glad you updated! Thanks for keeping us posted. All the best wishes for you and Fiona.
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/orngbiggrin.gif" style="border:0px solid;" title="orange big grin">
 

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So much good news! <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/joy.gif" style="border:0px solid;" title="joy"> Here's hoping Fiona doesn't get too eager to meet her wonderful mommy and stays put a bit longer!<br>
Enjoy your stress-free baby shower!
 

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So glad to hear that things are going so well! I hope there's more good news to come! <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/joy.gif" style="border:0px solid;" title="joy">
 

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Good to hear that everything is going so well!
 

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Great news! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up">
 

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Great update! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/love.gif" style="border:0px solid;" title="love"> Enjoy your baby shower!
 

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Sounds wonderful! Enjoy your baby shower! <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/joy.gif" style="border:0px solid;" title="joy">
 

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DDCC-so glad to hear a good update from you! I've been following your story, hope that doesn't creep you out. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment">
 

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That's great news, thank you for updating! <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/joy.gif" style="border:0px solid;" title="joy">
 

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Phew! What a hopeful update. So glad both you and Fiona are doing alright. <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/joy.gif" style="border:0px solid;" title="joy"><br><br>
Keep on taking care of yourself Mama <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up">
 

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Great news. Thanks for keeping us updated<br><br>
Nikki
 
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