Hello everyone, greetings from Canada.<br><br>
I was wondering if anyone had to deal with, or knew anyone that went thru raising a child with isolated macrodactyly.<br>
Our baby daughter (10 months old) was born with both soles of her feet enlarged and 3 toes on each foot enlarged as well. They do not grow at abnormal rate, just staticly enlarged. Me and my wife went thru numerous heartaches and misdiagnosises. Firstly couple of eager genetic doctors declared our daughter had Proteus syndrome, but when they finally realized she lacked all other symptoms they simply said this was macrodactyly.<br>
The condition does not seem to bother our child, she is very happy, active, smiling and loves to huggle <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br>
However, lately she began to experiment walking and standing up, and we have realized that we can not fit any shoes on her. We have more doctor appointments coming up, but I was still wondering if anyone ever heard of the corrective surgeries at such early age, and how did it turn out.<br>
So far noone has been able to tell us anything concrete and it is killing me. One doctor said that noone will perform surgery on her, until she is her teens, possibly later. How will she walk, and what will she wear? I really was hoping she wouldnt have to experience the psychological impact in school.<br><br>
Thank you in advance,<br>
Sad Bear <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
I was wondering if anyone had to deal with, or knew anyone that went thru raising a child with isolated macrodactyly.<br>
Our baby daughter (10 months old) was born with both soles of her feet enlarged and 3 toes on each foot enlarged as well. They do not grow at abnormal rate, just staticly enlarged. Me and my wife went thru numerous heartaches and misdiagnosises. Firstly couple of eager genetic doctors declared our daughter had Proteus syndrome, but when they finally realized she lacked all other symptoms they simply said this was macrodactyly.<br>
The condition does not seem to bother our child, she is very happy, active, smiling and loves to huggle <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br>
However, lately she began to experiment walking and standing up, and we have realized that we can not fit any shoes on her. We have more doctor appointments coming up, but I was still wondering if anyone ever heard of the corrective surgeries at such early age, and how did it turn out.<br>
So far noone has been able to tell us anything concrete and it is killing me. One doctor said that noone will perform surgery on her, until she is her teens, possibly later. How will she walk, and what will she wear? I really was hoping she wouldnt have to experience the psychological impact in school.<br><br>
Thank you in advance,<br>
Sad Bear <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">