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Discussion Starter · #1 ·
I want to warn you,this might be too explicit for some
We have adopted three boys,for a total of 6 kids.Two of the youngest three have Down Syndrome.We brought Samuel home when he was 3 months,after he had undergone 4 tummy surgeries already.He was born(aside from Down Syn.)with Hirshprungs Disease(basically a bad bowel obstruction)then he had duodenal atresia,duodenal stenosis,then a kink in his intestine.throughout all this he had a significant amount of his bowel removed(can't remember how much)Now he's basically healthy,and eats very well,etc.--but he ALWAYS has poop.We never change a diaper without poop,we can't wipe his bottom without more poop coming out,he literally poops constantly.It's not like diarrhea,it's a strange kinda pasty/grainy like---VERY foul smelling,in a acidic/almost adult stool kind of way.(Sorry--but I warned you!)I am so frustrated because there's no way we'll be able to potty train this kid when he inadvertantly is pooping non stop!I know that he doesn't even realize he is.The GI docs are kinda stumped,but I am just searching for answers because the only action they've offered is some pretty grueling testing,including a 6 hour stomach motility study,where Samuel will have to lie still for the whole 6 hours with no sedation while they see how the stomach empties,digests,etc.Um,he's three?!I can't even imagine one of my typical children laying still at 3 for that long--let alone the fact that because of the dev. delays-- rationalizing with him is pointless sometimes!
If this sounds even somewhat familiar to any of you out there,please feel free to throw out your ideas,I'm pretty desperate!
 

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417 Posts
Discussion Starter · #4 ·
Well,no-he hasn't had the gastric emptying study done,maybe I should ask about that first....?I am familiar with that because our other guy with Down Syndrom is tube fed(partially now--YEA!!)and he's had to have those done before because he has an incredibally slow empty.Samuel does eat at least two bananas every day and yogurt at least once a day.It's almost like his rectum isn't able to push all the poop out,like a tube of toothpaste,there's just always some "right there"!I hope we get some answers soon,too.
Thanks for your help
 
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