Mothering Forum banner

1 - 5 of 5 Posts

·
Registered
Joined
·
2,179 Posts
Discussion Starter #1
Here's my news this week, if you care <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> DS is 4 with Aspergers, SPD and CAPD.<br>
I know it looks "mixed" but I am happy, even excited as I type this. things are really moving forward for him.<br><br>
1 the school agreed to give a home program- 15 hours a week of Floortime! And mainstreaming.<br><br>
2 We won FOUR independent evals at school expense. (long story)<br><br>
3 DS had an endoscopy and sigmoidoscopy under anesthesia. Still waiting for some results, but there is an infection is his stomach, which may not even explain what we were there for- lifelong diaharea.<br><br>
4 Next week he has a head CT and we're meeting a DAN! Dr for the first time.<br><br>
5 We found out he has Ambyopia- that is, one eye can't communicate with his brain. He gets glasses and probably a patch and vision therapy, but it's treatable since he's young.<br><br>
6 We finished an OT eval that will be way helpful to get what he needs from school therapy now.<br><br>
7 the baby <a href="http://www.mothering.com/discussions/showthread.php?t=646654" target="_blank">CAN hear</a>. It's either nothing or neurology like his brother, but we're less worried now.
 

·
Registered
Joined
·
3,591 Posts
My son also has amblyopia - so far he hasn't had to have his eye patched but they did show us what the patches look like, they're pretty cool looking. He's been in glasses since January. The earlier you catch the amblyopia the better from what the eye doc told us so its good you found out now.<br><br>
It sounds like you've really been through a lot. It would be great to have an answer to your son's bowel issues. I'm glad the wee one can hear too - that had to have been a weight off of your shoulders.<br><br>
The concessions that you've gotten from the school sound fantastic!! How hard did you have to fight?<br><br>
It's good hearing an update from you. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

·
Registered
Joined
·
832 Posts
wow - a lot going on!<br><br>
15 hrs of floortime!!<br><br>
Did you find someone good for the evals?<br><br>
If you love your DAN doc, would you send me the name? I've heard such mixed things around here and want a good referral.<br><br><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

·
Registered
Joined
·
2,179 Posts
Discussion Starter #4
"How hard did you have to fight?"<br><br>
it goes back to October, when we moved here and they refused to honor the IEP we brought with us. It took many letters and a state compliance complaint to get him in services and to get the right evals. We were awarded back all the missed therpay time. Most recently, the neuropsych evaluator came to an IEP and she is a *strong* smart advocate and the team agreed to all her recomendations.<br><br>
I've never involved a lawyer, but according to the state investigator, I write good letters, and I've admittedly become quite a know-your-rights nut <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 
1 - 5 of 5 Posts
Top