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Discussion Starter · #1 ·
I know a lot of mommas on here have had to do all the legwork in getting assistance for their children so thought I'd throw out what I'm dealing with in regards to my son to see if anyone might have ideas.<br><br>
Currently he is 5.5 years old dx'd as ADHD and SPD (SID) - treated through the Feingold program as well as behavior modification. SPD is new; he's only had one meeting with the occupational therapist.<br><br>
When he was 3 years old he was 38.5" (70%) tall and 34lbs (60%).<br><br>
I don't have his 4 year height but he was 38lbs<br><br>
At 5 he was 43" tall and 38 lbs<br><br>
Tuesday (5.5 yrs) he was 45" tall and 36 lbs - his BMI was 12.7, off the bottom of the charts<br><br>
So between 3 and 5 he grew 4.5 " and gained 4 lbs, strayed off of his own growth curve. Since then he's lost two more pounds but has grown more in height. He is eating approximately 1200-1500 calories a day. Yes he is a picky eater but there are quite a few things he will eat and I have worked extra fat and calories into the meals.<br><br>
The doctor said failure-to-thrive and put him on an inhaler and singulair for his shortness of breath and dizziness. He has never shown any signs of asthma or allergies - I don't particularly want to put him on a steroid for something that he shows no signs of.<br><br>
I have since switched doctors and have a new appointment on Monday. My main concern is his lack of adequate weight gain and periodic weight loss. His GI system seems solid - no complaints of reflux, no vomiting, no diarrhea, regular BMs.<br><br>
A full runup of bloodwork was done as well as a chest xray and ekg - all came back normal (which I'm thankful for). I really want to get to the bottom of this - why has he only had a net gain of 2lbs in 2.5 years while still growing in height? He's not a sick kid - very healthy, quite active.<br><br>
Here's a picture of him so you can see just how skinny he is.<br><br><a href="http://www.gamingmom.com/pix/020807.jpg" target="_blank">http://www.gamingmom.com/pix/020807.jpg</a><br><br>
If you just think I'm being a neurotic mommy then please chime in with that opinion as well, I won't get offended.
 

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Well, to be honest....what immediately leaps to mind is juvenile diabetes type 1. Either that or something metabolic. Has he ever had a sweat test or a test for juvenile diabetes or a metabolic panel run?<br><br>
He's a cute lil' fella, btw. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/luxlove.gif" style="border:0px solid;" title="throb"><br><br>
Truth be told he looks like a normal kid to me, just on the slim side. He looks quite healthy.
 

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Discussion Starter · #3 ·
Thanks Finch! I think so too hehe<br><br>
They did a whole host of bloodwork and everything came back normal - blood glucose, white blood cells, electrolytes, liver, kidney, thyroid, growth hormone, other hormones. I believe the metabolic panel was done at the same time as well (they pulled several vials of blood).<br><br>
He has not had a sweat test - the CF one, right?<br><br>
Edited: I've thought about him just being naturally a skinny thing. I kind of went with that for awhile until he started losing weight just recently (4lbs in 2 weeks). Now I'm back in the "hmm, is something wrong?" stage.
 

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<div>Originally Posted by <strong>GC_Mom</strong> <a href="/community/forum/post/7256936"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Thanks Finch! I think so too hehe<br><br>
They did a whole host of bloodwork and everything came back normal - blood glucose, white blood cells, electrolytes, liver, kidney, thyroid, growth hormone, other hormones. I believe the metabolic panel was done at the same time as well (they pulled several vials of blood).<br><br>
He has not had a sweat test - the CF one, right?<br><br>
Edited: I've thought about him just being naturally a skinny thing. I kind of went with that for awhile until he started losing weight just recently (4lbs in 2 weeks). Now I'm back in the "hmm, is something wrong?" stage.</div>
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Yep, the sweat test is for CF. The ONLY thing that spurred me to even say that was the shortness of breath comment. CF of course affects the lungs, but it also makes it very hard to absorb nutrients and gain weight.<br><br>
I mean, what does your intuition say when/if you can tell the fear to be silent? I say honor your intuition, whether it says he's just naturally skinny or if it says something's up, dig deeper.
 

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I don't have any advice. Just wanted to say how cute he is!<br><br>
Also, I have a skinny child as well. He will be 3 the 27th of this month and I think he weighs about 28 pounds.
 

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What is "normal" in your family? My dh was tall and skinny as a kid, I'm short and skinny. DS is probably the exact same height as your ds and probably close to the same weight - give or take a couple of pounds. I don't have a scale in the house, or I'd have run up and weighed him. DD, is in the 100th percentile for height and in the 50th percentile for weight at her age. These are our family genetics.<br><br>
DS has vacilated from being in the 5th percentile for weight (shortly after birth) up to the 50th percentile for weight. His height percentiles have been anywhere from 75th to 50th. He actually just went through a huge growth spurt (probably 2 inches) since the beginning of the school year, but I bet he didn't gain any weight from the looks of his pants. They still fit in the waist (always a bit loose,) but are getting too short. For the most part, he's followed the curve if you look at long term, but he's had fluctuation in the middle - does that make sense? My kids aren't sick any more (and probably less) than the average kid, so my pediatrician hasn't said anything regarding this. I have 2 picky eaters, so they eat what they want (I posted this in the new SID thread) and refuse the rest.<br><br>
A steroid should increase your ds' appetite (hopefully that wasn't the primary reason to put him on that), but another side effect is being grumpy and ornery. If he has ADHD, I wonder how that will play out for you.<br><br>
No real advice, I guess, but wanted you to know what my experience with ds' weight has been. By the way, your ds is adorable and definitely doesn't look undernourished! Just skinny, IMHO. I'll also be interested to hear what the new ped. says regarding your ds' weight.
 

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Has he been tested for food sensitivities? I had to smile, because your son reminds me so much of my ds1. Ds1 has had glasses since he was 10 months old and you can count his ribs too. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol"> He actually within the last year has put on more weight since we found out he's got sensitivities to glutens, dairy, and eggs. He's still really skinny, but his ribs don't stick out as much. He didn't have any digestion problems either. We just had the tests done because of the hyperactivity. So maybe that is something you could check out.
 

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Discussion Starter · #9 ·
He hasn't been tested for Celiac's - I'm going to ask my new doctor about it.<br><br>
No test on the food allergies either - that's a good avenue to take as well I think.<br><br>
My DH and I weren't skinny kids - not chubby either - just had meat on our bones.<br><br>
My mommy gut tells me that its more than just a skinny kid - especially with the recent weight loss plus increased appetite. I knew the bloodwork would come back normal - I have just felt its nutritional-based if that makes any sense. Like his body doesn't know what to do with food it gets. Gosh that just sounds silly saying it but that's what my guess would be.<br><br>
Thanks everyone for helping me brainstorm! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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My 13 year old only weighs 68 pounds and is seriously skinny. He eats unbelievable amounts of food though. He is also ADD and I wonder if their hyperactivity and metabolism just don't support keeping a lot of weight on their body, KWIM? I have spoken to a few doctors about this and they say that by all apearances he is healthy and he is eating well so don't worry about it. Try the other tests if you like for peace of mind, but it could just be that our littel boys are going to be skinny well into adulthood ( not a bad thing at all in my mind).HTH<br><br>
Namaste,<br><br>
Michelle
 

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<div>Originally Posted by <strong>GC_Mom</strong> <a href="/community/forum/post/7258207"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">He hasn't been tested for Celiac's - I'm going to ask my new doctor about it.<br><br>
No test on the food allergies either - that's a good avenue to take as well I think.<br><br>
My DH and I weren't skinny kids - not chubby either - just had meat on our bones.<br><br>
My mommy gut tells me that its more than just a skinny kid - especially with the recent weight loss plus increased appetite. I knew the bloodwork would come back normal - I have just felt its nutritional-based if that makes any sense. Like his body doesn't know what to do with food it gets. Gosh that just sounds silly saying it but that's what my guess would be.<br><br>
Thanks everyone for helping me brainstorm! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"></div>
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Not silly at all! It may be that his body isn't actually absorbing the nutrients that he is taking in. Do you have him on any probiotics?
 

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That would be my take too and I'm glad you are listening to your gut. I would do food testing and celiac test before I changed anything diet wise. Have you thought about enzymes to help him digest food? (Houston's are good) Probiotics always a great thing as well like pp said.
 

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Discussion Starter · #13 ·
Is primadopholus (sp?) for children a probiotic? I thought that's what I originally bought it for but my head is swimming today so unsure. He's not taking any enzymes, I'll look into that as well.<br><br>
I think I'd be apt to say "okay he's a skinny kid" if he wasn't losing weight, ya know? Now if only I could give him one of my thighs then we'd both be happy. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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We've been dealing with FTT for awhile now. One of the first tests they did on Lucas was the blood work for celiac disease. He also had the sweat test done too. Both celiac and CF are known for causing FTT so they usually test for those first.<br><br>
Lucas is the same age as your ds, and weighs around 33 lbs. and is 41.5 in. So smaller than your ds. The pic of your ds is cute. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
I hope the new doctor can give you some answers. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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You said his bm is normal. Does it have evidence of undigested food in it? You have some good leads. Could malabsorption also be a possibility?
 
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