[anncarnin]

my six month granddaughter was just diagnosed with GSD1a (Glycogen Storage Disease 1a)

I am gathering as much information as I can to feel secure in helping.
Anyone else heard of this

 

[sbgrace]

How is she doing? My son has a different metabolic disorder. Keep checking back because I know someone here has a son with the exact same disorder. I'll make sure she sees this. Her son is quite a bit older and that is going to be comforting I hope. I have heard of it, though, yes. Do you live near them?