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I am the mom of a microcephalic daughter and my husband has been in denial for nearly 2 years now. I have never had to deal with anything like this, but I can't talk with anyone about it except those who understand. My family always tell me that it's going to be okay and my husband seems to think that there isn't anything wrong with our daughter, but I know that there is. This is his first and only child, and I know that this is hard, but I must talk about it because I've kept quiet for far too long. We take her to doctor visits and she attends a school to receive physical, occupational, and speech therapy services. She also has Swallowing Dysphagia and has recently received her first pair of glasses because she has a lazy eye and it kind of wanders off on it's own. She has tubes in her ears because they wouldn't drain properly and she has yet to eat any solid foods. I need help in the worst way. I cry to myself when my children aren't around and while my husband is at work. please, if anyone is willing to talk with me or send me an email I would greatly appreciate it. I know that there is at least one person who understands.
 

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I deal with a different set of special needs, but I do understand. There are parents on this board who have children with microcephaly. I pulled up a few threads from the past.<br><br>
What kind of help do you need? Respite care? More information?<br><br><br><a href="http://www.mothering.com/discussions/showthread.php?t=1130310&highlight=microcephaly" target="_blank">http://www.mothering.com/discussions...t=microcephaly</a><br><br><a href="http://www.mothering.com/discussions/showthread.php?t=1217468&highlight=microcephaly" target="_blank">http://www.mothering.com/discussions...t=microcephaly</a><br><br><br>
Maybe you've already seen these links, but in case you haven't...perhaps there is something useful here.<br><br><a href="http://www.lpch.org/diseaseHealthInf.../microcep.html" target="_blank">http://www.lpch.org/diseaseHealthInf.../microcep.html</a><br><br><a href="http://www.ninds.nih.gov/disorders/m...crocephaly.htm" target="_blank">http://www.ninds.nih.gov/disorders/m...crocephaly.htm</a><br><br><a href="http://www.ncbi.nlm.nih.gov/entrez/d....cgi?id=251200" target="_blank">http://www.ncbi.nlm.nih.gov/entrez/d....cgi?id=251200</a><br><br><a href="http://www.specialyoga.com/microcephaly.htm" target="_blank">http://www.specialyoga.com/microcephaly.htm</a>
 
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