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Discussion Starter · #1 ·
<a href="http://www.sciam.com/article.cfm?id=existing-drug-reverses-a&sc=rss" target="_blank">http://www.sciam.com/article.cfm?id=...erses-a&sc=rss</a><br><br>
Ok so I hate to be so negative all the time... but yeah what a lovely high risk treatment plan that will no-doubt be over-used and put lots of people at risk for being different.<br><br>
Another big bonus is it costs $1000 per month, so yeah at least we can all be comforted by the fact that mass immunosupression will make a pretty profit.<br><br>
my big fear is that this immunosupression which is for treating a SPECIFIC condition (TSC) will be used by autism profiteers in a similar way to chelation, and they will sell $1000/month high risk poison as an "Autism Cure". After very carefully creating an atmosphere where Autism is feared, hated, and misunderstood.
 

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...the autism profiteers being in this case the pharmacutical companies and physicians.<br><br>
I don't think that autism is anything to be cured, but I do want to do all that I can for my child. In other words, I want him to be less frustrated; I want him to function at his highest possible level; I want him to be happy. But there is so much that I have to learn as well. I have to learn to interpret his non-verbal communication; I have to learn to see things as an autist; I have to have realistic expectations of ds's behavior.<br><br>
But I still struggle with wanting him to be nt. It is part of the adjustment period, I guess. But how do you decide if a therapy is one that would help with a behavioral issue (e.g., ds's headbanging) or is just some doctor using asd as a way to line his pockets? Specifically, there is a doctor in my town who is part of a national group who evidently has some equipment that non-evasively studies the neurological system and comes up with some "treatment." The website does not go into details, but it sounds like detoxification. I don't expect or desire this to "cure" my son of autism (something which I do not think is possible), but would it help with his behavior?<br><br>
These are hard issues for me.
 

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Discussion Starter · #3 ·
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<div>Originally Posted by <strong>sidshappymamma</strong> <a href="/community/forum/post/11568649"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">But how do you decide if a therapy is one that would help with a behavioral issue (e.g., ds's headbanging)</div>
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I am not sure if this is what you are after, I am sorry if it isn't, but what is there to "help" with headbanging?<br><br>
I mean, headbanging is an awesome stim, my son does it every few days, where he will absolutly plant his face into the couch over and over. It is something he enjoys that doesn't hurt him or anyone else. DD and DS from time to time have gone through phases of hitting their heard on other, harder surfaces, but we try to encourage those sorts of stims into more soft material... I am not sure if that is what you mean or you are talking about stopping his head bang stim? I would wonder why you would want to stop it. Any time anyone tries to stop or control mine or my son's stims, it makes life a lot hard for everyone.
 

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Trying to stop ds from headbanging certainly makes things worse, but he has a bruise the size of a half-dollar piece on his forehead. If he would use something soft, I wouldn't care because I know that the stims are important, but he uses the wall, floor, frig, etc. How did you encourage using some softer material, i.e. the couch? Edited to add that I just showed ds that he could use the couch to bang by demonstrating myself. DS thought that was pretty funny.
 

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<span style="font-size:medium;">my 5 yo used to slam his head into the back of his (wooden) high chair all the time. i used to be afraid he would knock himself unconscious, he would do it so hard. we got him a different highchair that had some padding on the back and he stopped doing it after awhile. he never seemed to search out a different place to do it, he just seemed to associate it with sitting in the chair.<br><br>
i don't know if that helped anybody with anything (sorry, it's almost 3am here) but it seemed like something to share.<br><br>
about the OP, i really wish "they" would stop trying to "cure" autism. it's become more about money than helping the children and adults with autism, just like almost any other condition you can name. "they" think that drugs can "fix" anything... maybe it's not broken in the first place?</span>
 
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