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Discussion Starter · #1 ·
I've written here before about my daughter who we've had problems with since she was very young.<br><br>
Brief overview: Since her last set of infant vaccines in which she appeared to have a neurological reaction lasting for weeks, she's been prone to fits and overall agitation. Before the shots she was a calm, content baby. (We discontinued vaccines since.) She is 6 years old now, and a joy...sweet, smart girl. She's in the first grade and on the honor roll. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/love.gif" style="border:0px solid;" title="love"><br><br>
However, she is still prone to temper tantrums. All out, rolling on the floor, kicking, screaming temper tantrums. The completely out-of-control fits don't happen very often - I'd say 2-4 times per month now. It's getting better because a year ago it happened 2-4 times a week, and the year before that it was once or twice a day.<br><br>
The fits are very stressful, and sometimes happen in public. But between fits can also be very stressful. She tends to be very hyper, sensitive, and over-reactive. She often whines about nothing and she's difficult to please.<br>
It is not often that we can look at Emma and say that she is "level," as we like to call it. Most of the time, she behaves as though she is dizzy and unsettled. She bounces around, and often falls into things as she walks by them, or presses herself into the walls, or our bodies. She rubs her eyes a lot. She often has dark circles under them. She has trouble with eye contact when she's close to an episode.<br><br>
Another issue is that she "ticks." She'll make facial motions, noises, or statements over and over again. She doesn't seem to be able to control this. Also, when she's in this state, often she is noticeably warmer, as though her emotions are causing fever. I've never actually checked her temperature, but my husband and I have both noticed that she is very warm when she is "ticky."<br><br>
However, she CAN control this behavior when she really wants to.<br><br>
At school, for example. She is perfectly behaved, social, happy. I've witnessed it myself many times since I volunteer at her school. As long as she doesn't know I'm there, she's fine. If she sees me at school, often her legs turn to jelly and she converts into this ticking, hyper child. I have to stay out of sight so that she stays on task for the day. Her teacher hasn't had a single problem, so long as I'm not there.<br><br>
She behaves the same way (ticking, falling over) for her father and other family members and close friends. It seems that if she's very comfortable with a person, she lets loose and regresses into these behaviors.<br><br>
I've discussed this with her pediatrician who is no help. He seems to think we're exaggerating since she doesn't behave this way in his office, or that it's simply a personality and maturity issue which will resolve itself eventually.<br><br>
I can deal with the periodic fits, but the constant ticking and warm temperature makes me think my child is sick with something we're just not understanding. We've checked her blood for food allergies and iron levels, and everything seems to check out fine.<br><br>
Any advice for me on who to take her to next or what to check for? Anyone ever had a child who behaves in this way, and what did you do about it?<br><br>
Thanks in advance.
 

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<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">However, she CAN control this behavior when she really wants to.</td>
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I say this very gently, but have you had her evaluated for Tourette's or Tourette's plus? Very often kids who tic can hold it in for limited amounts of time (think of it like holding in a sneeze- sometimes you can keep it back, but it's not comfortable to do so) until they feel safe or more comfortable (I've heard of kids going to the bathroom to let it out and tic in privacy), and sometimes kids with behavioral issues hold it in until they're near a safe person, someone they love and trust and feel safe to 'melt down' in front of them.<br><br>
I'd talk to a different pediatrician and see if you can get a referral to a pediatric neurologist or someone who specializes in neurological issues. Good luck!
 

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I was also going to suggest Tourette's. I looked into it for my son and found out that it's not at all what is portrayed by the media and that only the worst cases tend to be the ones we have heard about. Many cases of Tourette's are mostly mild tic related and people with Tourette's often learn how to delay or avoid their own personal tic triggers.
 

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Discussion Starter · #4 ·
Thanks for the quick replies. We have considered Tourettes, but honestly I've been afraid to look into it much.<br><br>
Can anyone explain to me how this is treated?<br><br>
Is it possible that there could be underlying physical reasons as to why she may have frequent episodes...yeast, diet, etc.? Her troublesome times seems to come in cycles. Sometimes she can go days or weeks without ticking or having meltdowns.<br><br>
I'm just not sure which type of doctor to turn to - or trust. I'm very skeptical of most medical experts these days, since we've been misled before several times on issues such as vaccines, antibiotics, testing and surgery. So I feel so confused about how to proceed with this.<br><br>
**Oh, and she sometimes ticks in her sleep. The first time I saw it, I thought she was having a seizure in her sleep. It was scary. She also grinds her teeth.
 

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I'm no expert, but from what I understand, sometimes kids who have Tourette's can tic more under times of stress- if they're worried about something, coming down with an illness, didn't sleep much last night, etc.<br><br><a href="http://kidshealth.org/kid/health_problems/brain/k_tourette.html" target="_blank">http://kidshealth.org/kid/health_pro..._tourette.html</a> has more specific info.<br><br>
I know it's difficult, but if it's something like Tourette's, it's neurological in nature and wouldn't be the result of diet or allergies. Best wishes to you. *hug*
 

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Discussion Starter · #6 ·
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<div>Originally Posted by <strong>Crafty</strong> <a href="/community/forum/post/14738506"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I'm no expert, but from what I understand, sometimes kids who have Tourette's can tic more under times of stress- if they're worried about something, coming down with an illness, didn't sleep much last night, etc.<br><br><a href="http://kidshealth.org/kid/health_problems/brain/k_tourette.html" target="_blank">http://kidshealth.org/kid/health_pro..._tourette.html</a> has more specific info.<br><br>
I know it's difficult, but if it's something like Tourette's, it's neurological in nature and wouldn't be the result of diet or allergies. Best wishes to you. *hug*</div>
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Thank you. That web site, at least, said that not all children who have ticks have tourette's. So while she may have it, she also may be experiencing these episodes because of other medical reasons.<br><br>
I'm so torn on who to turn to for this.<br><br>
Thanks again.
 

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I'm so sorry. that does sound scary. I'm no expert, but I'm offering a hug and a prayer that you find the right professional to help you. It does seem, from what you wrote that the vaxes caused some kind of mild nerve damage somewhere. Do you have a naturopath in your area? I don't trust standard docs either. We switched to a naturopath for my husband's health issues, and we love him. I love the naturopathic philosophy of "treat the cause, not just the symptoms."<br>
HUG!
 
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