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Discussion Starter · #1 ·
I have wracked my brain over this and expressed concern to doctor after doctor. No one seems concerned but my mommy instinct won't let go of it.

My ds was born by c-section almost 6wks ago. C-sectioned babies are supposed to have perfect heads right? Well on the right-hand side of his head between his eye & ear he has a long curved mark that looks like a surgical scar (or a fossil, like a grooved imprint). If I feel along it, the bone underneath is also grooved right along the line of the scar. The pediatricians who checked him when he was still in the hospital with me were a little mystified by it, but unconcerned. THey all assumed it was from his traumatic birth, until I reminded them I had a c-section. Then it was just "well babies heads are so soft, he probably was pressed into a rib or had his arm there for a really long time - it will sort out."

Also strange, he doesn't have an eyebrow on that side, nor the fleshy stuff that his left eyebrow has underneath it. If I look & feel alongside the "good side" of his face, there is fleshy skin that if pressed, is squishy, like there's fat underneath the skin. On the scarred side, it is just skin & bone, no flesh from where the eybrow is supposed to be to the ear.

Also, on the scarred side, he has no hair growth above and behind his ear for about 1-2". It looks like he has a mohawk with that side of his head void of hair. It also doesn't look like there are any hair follicles there, but when I look toward his cheek, I can see 2 patches of "holey" skin that appear to be follicles. Above where his eyebrow should be about halfway up his forehead there is a chunk of fleshy skin with hair on it - like its his eyebrow!

I have searched and searched the web on this and can't find a single thing. If anyone has any thoughts, I'd love to hear them, since all the docs that have seen him have blown it off, telling me it will sort itself out as he grows. It just seems like everything is a little too "off" to sort itself out.

I just hope he's ok.....
 

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I have never heard of this. If you continue to be concerned I would find a dermitologist or a second opinion with another ped. You could always take baby to your pp check-up and see if the Midwife or OB have anything to say about it.

You might also request your nurses nites from your file and see if there is anything in there.

Good luck Hope baby is doing fine!

Jenn P
 

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My husband had a co-worker that had no hair growth around one of his ears. He actually used some sort of spray-on hair on that skin everyday to have it look like hair grew there. His ear on that side was also different.

My husband has an ear that his a tip of skin protruding. It is a point that many of us have but points inward - his points outward.

I have a coworker who has one ear shaped very differently than the other and you can see all sorts of blue and purple veins on and around it.

Maybe the differences you are seeing between one side of your baby's face vs the other side are just how your baby grew? Hopefully they are not indicitive of any problem.

Congratulations on your new baby!

~Tracy
 

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Since you are concerned, I say take him to a ped and DEMAND a referal to a dermatologist or neurologist (since it's the head effected) if he doesn't seem concerned. It could be nothing, but since your mama instinct is telling you otherwise, I say get it checked out!
 

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Congratulations on your new baby!

I would ask your ped for a referral to a head and neck surgeon or some other specialist. It sounds like this may be more of a cosmetic thing since your baby is healthy, but it would be worth getting a second opinion if that would give you some peace of mind.
 

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Discussion Starter · #6 ·
Thanks for the replies everyone. I will definitely be asking for a referral to a specialist. The last time I mentioned these findings to him, he looked at me as if "c'mon Mom, don't be such a worry wart, you have a nice new baby here." I dont' care tho, I'm getting a referral.

I sure just hoped someone else would post saying they had the same thing, and it all worked itself out......... thanks again all!
Donna
 

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Yes I agree that you should trust your instincts and push for a referral, especially just to make sure there aren't any cranial issues that could cause neurological problems in the future, even though your baby is healthy now.

Cranial therapy may also help to improve the skull cosmetically. I'm glad you are going to get this addressed soon so maybe the lack of hair growth, etc, can be corrected before it is permanent like the person the pp knows.
 

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Just wanted to second the idea of a cranial sacral therapist. They may be able to help more than you think! If you need help finding one you can always go to the upledger institute's website and look at their list of therapists.
 

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Definitely go get a second opinion, perhaps out of town. Consider a geneticist.



I hope all is well, but I believe in trusting your mama instinct.
 

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just saw your thread and wanted to respond. i wonder if your sweet babe's condition could a form of or related to torticollis? i don't know much about it, but if you google it or ask around here i know there are some mamas on here who've dealt with it and you can find out more.

this site mentions "Underdevelopment of one side of the face (facial hemihypoplasia)". hope it's like the pediatrician suggested and he was just squished and needs some time to fill out and even out.

do you have a children's hospital near you? i'd consider taking him to one.

 

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Just wanted to add my support. Hopefully it's cosmetic. I would not only get a second opinion, but I would also get a new ped. Even if this turns out to be nothing, I do not like the way your ped shooed you off.
 

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Trust your instinct and start looking around.

If you choose looking for a dermatologist (which I think is reasonable) try to find a pediatric dermatologist. There is a separate board certification required for it (here it the states at least) and ours has been INCREDIBLY knowledgeable. They are somewhat difficult to find (often with long waiting lists), but they have seen it all.
 

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i've got another word for you or dh to google -- "Craniosynostosis" . i found a PDF that had some pictures of kinda asymmetrical kids' faces, but it also had some really serious deformities and surgery pictures and i don't like looking at surgery pictures even when i'm not postpartum and worried about my baby so might be wise to let dh do the googling if you're like me in that regard. i did read something that said optimum treatment time is when they're little so it makes sense to me to get it checked out sooner rather than later just in case it's something that needs fixing and not just a little quirk that will work itself out.

try not to worry. sounds like you're being a great advocate for and loving mama to your little guy.
 

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Well, my eldest son engaged in my pelvis brow-first for a few weeks and was born with some major, major moulding: a raised ridge running from the crown to the hairline, and another running horizontally across his eyebrows. It passed by 6 weeks, but we did use a cranial osteopath to help. So it could well be nothing: did his head engage before his birth, do you know?
 

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Discussion Starter · #17 ·
he was head-up the entire time. i think i found out his favorite position though, which may have contributed to this. when i burp him on my left shoulder, his right arm comes up and he rests his head on it. the arm fits right into the groove where the scar is, fits like a glove. so i'm wondering if that's related, if he had his arm there the whole time. my husband seems to think this whole situation is improving, tells me daily that he sees little hairs coming in on the bald side and shows them to me, but i see nothing. and wow those were some pics in that .pdf file - i think it could be a very mild case of Craniosynostosis, people don't even notice these anomalies until i start pointing them out. but then its obvious to them once I have pointed it all out. going to see doc (gp) tomorrow, and will press for a referral to a ped. will let you know.........
 

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i hope it's just like flapjack's story and it's just a lot of squishage from being in utero and birth. what you're saying about his right arm and it fitting the groove sounds like it could be. hope so.

i really wasn't sure about sending that craniosynostosis link and some of those pix are really tough to look at, but i thought if there was an off chance that it could be something like that and your ped was not catching it then maybe i should do it. hope he was just squooshed!

my mom said that for my first year or so i always kept my elbows bent and hands up like i was ready to catch a ball and she just figured that's how i was when i was on the inside. my arms work fine now!
 

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trust your instincts, mama, you have them for a reason. Baby is quite possibly just fine, but I know the feeling....

demand a referral.
 

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Discussion Starter · #20 ·
well, I got my referral, we will be seeing a pediatrician in the next 4-5 days. phew! the doc today definitely referred to it as a mild deformity of the skull, so we will see. makes you wonder why no one picked up on it when he was born. i guess its mild enough that anyone who saw him assumed it was just birth-canal related. but when i remind people he was delivered by c-section, it still never caused any alarms or red flags to go off. oh well, we'll see what the ped says next week! i'll keep you posted....... thanks again everyone!
 
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