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Discussion Starter · #1 ·
I posted this another forum, but I thought I would post it here too in case any of you have any advice for me. Sorry it's so lengthy!<br><br><br><br>
So at the begining of the summer I started working with the public school phsycologist to find out what direction I need to go with DD2. I have had strong suspicions that she is autistic, primarily having aspergers, but I was having a lot of problems getting any referals from her ped., so I decided to go through the school system since she was already 3 1/2. Anyways, the pych. told me she just had a speech problem and that she would be able to attend "regular" preschool, although I expressed a lot of concerns why this would be an issue, she didn't listen, even after two home visits. So I had to take her to see the speech therapist for an eval, and while there she told me it was very clear it wasn't just a speech problem and she wouldn't fit in a "regular" preschool setting. :::THANK YOU, isn't that what I've been saying?:::: Anyways, so that day speech lady calls psch. lady, and she says "Well, school is almost over, we are just going to have to deal with it next school year. Now, I'm pretty mad, because at that point they told me there was no need for me to take her to the children's hospital for speech therapy, even though that is the one referal that her ped gave me, and after being on a waiting list for 3 MONTHS, I gave up my spot, only to find out the public school was making me wait 2 months to find out ANYTHING. ::<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/neg.gif" style="border:0px solid;" title="negative"> am so mad at myself for listening to them::: So fast forward to last week, I get a paper saying Zen was accepted into the "regular" preschool, and when I call they tell me to just put her in it for now, since no one has contacted me about the ECDD (early childhood developmetnaly delayed) class that she is supposed to actually be going to. Now, I am upset about that, but also that DD1 is starting kindergarten tomorrow, afternoon classes, she will take a bus, we have to walk to the bus stop, it's a couple of blocks away, I don't know if DD2 will have morning or afternoon, because her orientation is next tuesday, and it is at a DIFFERENT school that doesn't have a bus transportation, so I don't know how I am going to pick up and drop off DD2 while I also have to be at the bus stop for DD1. No one will give me any info and no one is willing to work with me, I am so fed up with these public schools, I think I'm not going to put DD2 in school, but she really needs something, and no one will help me figure out what that is!
 

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My gosh that's terrible! Is there a parent advocacy group in your area? I just found out about the one that is in my county (Matrix I think it's called - don't know if they're national)...or maybe a phone call to a SN lawyer to see if they have a suggestion?<br><br>
If I were you, I'd start playing hardball with them. Put EVERYTHING in writing and let them know that if they don't respond in a timely manner, you will be contacting your local advocacy group or lawyer!<br><br>
That's just shameful!<br><br>
good luck mamma,<br>
peace,<br>
robyn
 

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Boy, that sounds you've sure had a hard time. I am mad at the school and at your pedi!<br><br>
Can you just go straight to the preschool director and tell her/him your story. You really need to go to someone who can make/take some global decisions/actions for you.<br><br>
My oldest son recently started school and we, too, have concerns about his development. At first I thought Aspergers, but now I am not sure--SID? NVLD? PDD-NOS? Who knows. Anyhow, I talked to his teacher on the first day of school (last Tuesday) and then called the director of the school. (He is in a public integrated program, by the way.) Anyhow, they said that by law I have a right to ask for testing at anytime and they have 30 days to comply. I am not sure what the law is in your state, or if you have gone this route yet, but that is just what goes on here. They are taking a few weeks to observe, and then they will go on with the testing. He is 3.5 by the way.<br><br>
I am also taking him to Children's Hospital in Boston for an evaluation. Unfortunately, they have a year wait! So, in the meantime they suggest school testing and working with your ped (who we are are in the process of changing). Are there any hospital programs you can contact? Or autism groups? (Here we have a place called the Autism Resource Center.) They may be able to help give you some more direction, as well.<br><br>
Most of all, I really wouldn't give up. Really, it's your kid. Get those claws out!<br><br>
Kirsten
 

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Discussion Starter · #4 ·
Thanks for the responses. I will be at the school tomorrow and I'm gonna see who I can get in contact with while I'm there. I am also going to get in contact with that speech therapist who made the referal for the ECDD program and see if she can put the word in somewhere. If I am not satisfied when I leave the school tomorrow I am going to call the director of special ed at the school (per advice from another mama). I will also take your advice on getting in touch with the local autism groups, I know they are around here.<br>
I don't understand why if the children's hospitals are so backed up they can't give you a referal somewhere other than the schools, because I am hearing this seems to be the norm in a lot of public school districts. What ever happened to early intervention?
 

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Sigh. I am sorry you have to go through this.<br><br>
Before you continue running around in circles, get the book "From Emotions to Advocacy" <span style="color:#FF0000;">and find your state parent advocacy group</span>. It may take some serious looking, but very very helpful. Posting here might actually get it to you faster.<br><br>
Find your state laws. They are posted on your state's education site.<br><br>
Stop calling and make all of your requests in writing, email or registered letters. Showing up at your district main office works pretty good too. ("Oh, I need to fill out some paperwork before the clock starts counting? Do you have that paperwork? No? I can wait for you to get me a copy. Yes, I will be right here until I have it filled out and back in your hands. You leave at 5. Well, I hope that I can get that paperwork quickly, so we can both get dinner on time because I won't be leaving until it is complete!")<br><br>
Call you State special Ed superintendant (listed on the website). Call them daily until you SEE results.<br><br>
Have a notebook by your phone to log ALL of your calls and messages left and calls returned and conversations (date and time).<br><br>
You will get there, but it may take stepping on some toes. sorry. Been there, doing it now!!
 

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I just wanted to give you a wave <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wave.gif" style="border:0px solid;" title="wave"><br><br>
It's me, phoebz, from DSD's - I gave you an answer there, but wanted to say hi here b/c I was going to recommend this board to you <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol">
 
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