Mothering Forum banner

1 - 8 of 8 Posts

·
Registered
Joined
·
466 Posts
Discussion Starter · #1 ·
My dfs's head circumference is low. Microcephaly runs in his family and I'm trying to get as much information as possible about it. His pediatrician said he'll do an ultrasound next month when he's 6 mos old. Can anyone share an informative book and/or website that goes over some things to watch for? His head size is growing, just at a slower rate in percentage ratio to his body. We're working with EI for his developmental delays.
 

·
Registered
Joined
·
18,562 Posts
Is he getting enough nutrition? Very often the head will not grow because of malnutrition. It sounds like you are getting some help and hopefully should have answers soon about what you are dealing with.
 

·
Registered
Joined
·
466 Posts
Discussion Starter · #3 ·
Due to his reflux and since he's our dfs (can't breastfeed), he's on Nutramigen formula along with soy formula and some rice cereal. Weight-wise, he's in the 88%. He's been doing well with the probiotic I have him taking, too. Am hoping to get more info about microcephaly since that runs in his family and because of his extensive developmental delays, SPD, etc.
 

·
Registered
Joined
·
12,552 Posts
Why the U/S and not an MRI?<br><br>
Has the family had a genetic workup?<br><br>
Can you get one for the child at your local Children's?<br><br>
Microcephely is prevalent in several different kinds of genetic disorders. It often comes with SID, developmental delay, and the like. It's both a symptom and a cause.
 

·
Registered
Joined
·
12,552 Posts
Links:<br><br>
This has an excellent overview of what tests you need:<br><a href="http://www.lpch.org/diseaseHealthInfo/HealthLibrary/neuro/microcep.html" target="_blank">http://www.lpch.org/diseaseHealthInf.../microcep.html</a><br><br>
And this link is to NINDS which usually has very accurate information:<br><a href="http://www.ninds.nih.gov/disorders/microcephaly/microcephaly.htm" target="_blank">http://www.ninds.nih.gov/disorders/m...crocephaly.htm</a><br><br>
OMIM is a good site to link to:<br><a href="http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=251200" target="_blank">http://www.ncbi.nlm.nih.gov/entrez/d....cgi?id=251200</a><br><br>
And here is something interesting about yoga for kids with microcephaly:<br><a href="http://www.specialyoga.com/microcephaly.htm" target="_blank">http://www.specialyoga.com/microcephaly.htm</a>
 

·
Registered
Joined
·
12,552 Posts
<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>julie anne</strong> <a href="/community/forum/post/6455656"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Due to his reflux and since he's our dfs (can't breastfeed), he's on Nutramigen formula along with soy formula and some rice cereal. Weight-wise, he's in the 88%. He's been doing well with the probiotic I have him taking, too. Am hoping to get more info about microcephaly since that runs in his family and because of his extensive developmental delays, SPD, etc.</div>
</td>
</tr></table></div>
Several/many? states will pay for donor milk for foster children. I believe the milk bank in San Jose is the one that serves your area. <a href="http://www.hmbana.org" target="_blank">www.hmbana.org</a><br><br>
Or call the milk bank in Denver. They are very knowledgeable.<br><br>
(I know in Alaska kids on Medicaid get requests granted for donor milk in 3 days!)
 

·
Registered
Joined
·
466 Posts
Discussion Starter · #7 ·
Thank you, Mamaverdi, for the links. I don't know why the pediatrician wants to do an ultrasound instead of an MRI, so I'll ask him at my dfs's next appt. Also, I don't know what genetic workup has been done on the family --another excellent question, so will ask. As for the donor breastmilk, I had asked DHS & donated breastmilk is not allowed. Thanks again for the links and some good questions.
 

·
Registered
Joined
·
12,552 Posts
Donor human milk is like a medication. Call the milk banks I mentioned. ASK THEM if they have had kids in Oregon with DHS use donor human milk.<br><br>
Milk donated by someone's friend or whatnot, is usually not allowed. Donor human milk from a milk bank is often allowed.<br><br>
The links I listed said a CT scan or an MRI or both were part of the work up. I would take that with you to the doc.
 
1 - 8 of 8 Posts
Top