[Isis]

Hi! I have an almost 5 year old. He's been dx w/ Crohn's disease & Celiac disease. We have his diet under complete control. He's being seen by one of the best Pediatric GIs in the Country. He's on some meds for his Crohn's (6-MP). He IS still getting tummy aches but there is nothing in the lab work or in the recent scopes to suggest it's from the Crohn's. He does have reflux, so I'm thinking it *might* be upper gastric pain from that. He's on prevacid but I have a hard time getting it into him daily. See... he's a SUPER SUPER SUPER picky eater. I took him to the Chiropractor to see if we could get some additional support there. She did the "applied kinesiology" on him & said he was sensitive to eggs, dairy, corn, soy, peanuts, in addition to the wheat and oat, that we figured. She said his colon (obviously), adrenal functioning & immune system were positive for not working properly. I'm having a REEEEAAAAALY hard time feeding him. He only eats yogurt, cheese, chicken, fresh fruits, mashed potatoes, rice w/ ground beef (some cabbage mixed in w/ tomatoes), home made mac n cheese. That's about it. Now take away the dairy & soy & he's left w/ chicken, some fruit, mashed potatoes and the beef dish (which he doesn't eat all the time). Oh--- and what butter is dairy and soy and gluten free?! The ONLY way I get meds into him is through yogurt. He will not eat the coconut milk yogurt. What's left? Without soy in addition to the dairy, I'm feeling horribly stressed out. I obviously want him to thrive! But, I also want him to eat! I'm not even sure what I'm asking from you all ... I'm just really confused on how to help him right now.

 

[deditus]

My dd needs supplemental digestive enzymes right now to keep from getting tummy aches as she heals from gluten intolerance. We use Houston Enzymes chewables.

ETA: I think that Houston Enzymes' Peptizyde is NOT recommended for celiacs. Makes them MORE sensitive to gluten because of the way it breaks down gluten so causes issues when cc.
Oh, and dairy is a big issue for anyone healing from intestinal damage. Once I pulled that too my dd started eating better.

 

[Isis]

Quote:

Originally Posted by deditus My dd needs supplemental digestive enzymes right now to keep from getting tummy aches as she heals from gluten intolerance. We use Houston Enzymes chewables. ETA: I think that Houston Enzymes' Peptizyde is NOT recommended for celiacs. Makes them MORE sensitive to gluten because of the way it breaks down gluten so causes issues when cc. Oh, and dairy is a big issue for anyone healing from intestinal damage. Once I pulled that too my dd started eating better.

Hi! My ds has been gluten free for 1.5 years now, so I think his damage from that is healed, as far as what the scope said. I'm just trying to figure out how to deal w/ everything else I'm now being told! I hope your dd is feeling better!!!!

 

[kjbrown92]

Even before you said you had AK, I was thinking there were some more food intolerances.

Have you made your own coconut milk yogurt or used only the store bought? I'm just curious since I've never tasted the store bought kind. But the homemade one doesn't taste that coconut-y to me. We use it in smoothies. We also use it as a savory dip (with dill and minced onions) for raw veggies.

If you pull the foods he can't have, he will start eating the foods he can have. It will open up his palate. My DD2 will eat tons of stuff that most other kids her age won't (she just turned 4). We're dairy, gluten, soy, corn free (3 of us), she also can't do beef, apples, and more. She eats salmon (baked or poached). She loves chickpeas. My son eats curried chickpeas. Sweet potato fries. I made fried fish (with a batter) and my kids devoured it. They're widening their horizons, so to speak, and there's lots of foods left.

Palm shortening is what I use for baking. If corn is out, so is xanthan gum (which is in a lot of standard gluten-free commercial stuff). Iodized salt has corn in it, so does powdered sugar, and regular vanilla. Come on over to the allergy subforum and you'll get lots of help. There are recipes in the sticky at the top of the page too.

 

[momofmine]

Do you know about the Specific Carbohydrate Diet?

 

[Isis]

Quote:

Originally Posted by kjbrown92 Even before you said you had AK, I was thinking there were some more food intolerances. Have you made your own coconut milk yogurt or used only the store bought? I'm just curious since I've never tasted the store bought kind. But the homemade one doesn't taste that coconut-y to me. We use it in smoothies. We also use it as a savory dip (with dill and minced onions) for raw veggies. If you pull the foods he can't have, he will start eating the foods he can have. It will open up his palate. My DD2 will eat tons of stuff that most other kids her age won't (she just turned 4). We're dairy, gluten, soy, corn free (3 of us), she also can't do beef, apples, and more. She eats salmon (baked or poached). She loves chickpeas. My son eats curried chickpeas. Sweet potato fries. I made fried fish (with a batter) and my kids devoured it. They're widening their horizons, so to speak, and there's lots of foods left. Palm shortening is what I use for baking. If corn is out, so is xanthan gum (which is in a lot of standard gluten-free commercial stuff). Iodized salt has corn in it, so does powdered sugar, and regular vanilla. Come on over to the allergy subforum and you'll get lots of help. There are recipes in the sticky at the top of the page too.

Thank you - I'll swing by the allergy subforum now