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Discussion Starter · #1 ·
I'm having a homebirth. Today I met with a pediatrician who agrees to see my baby despite my no vaccination stance. We got to talking about the PKU. I asked him if he could perform it, but he said I have to set up an appointment at a hospital. I don't care about the test, just that I don't want my baby to be pricked and tested by the state.<br><br>
Has anyone from Ohio successfully refused the PKU test? What do you tell your pediatrician? Can anyone recommend other pediatricians in NW OH who will see babies of anti-vac parents?
 

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<div>Originally Posted by <strong>Shazer</strong> <a href="/community/forum/post/6494957"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I'm having a homebirth. Today I met with a pediatrician who agrees to see my baby despite my no vaccination stance. We got to talking about the PKU. I asked him if he could perform it, but he said I have to set up an appointment at a hospital. I don't care about the test, just that I don't want my baby to be pricked and tested by the state.</div>
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Are you having an unassisted birth? If not, why can't your midwife do your newborn screen?<br><br>
It is pretty common for peds to say that they don't do them -- it has less to do with philosophy than it does with laziness or a lack of knowledge about how to obtain the tests from the state. Many peds offices don't do blood draws as well -- they send their kids to a lab if they need blood draws so they don't have staff well-trained in how to do the heel pokes necessary to do the test (though it is relatively easy, so this is a lame excuse IMO). Even the crunchy ped in my town prefers not to do them.<br><br>
I am a midwife in MI -- it is very common for midwives to do newborn screen tests here.<br><br>
The other thing is -- if you tell your ped that you plan to make arrangements with your midwife for the newborn screen, there is no way that he would know that it hadn't been done. I recommend that you consider trying to find a way to have this test done. I have had two kids come up positive for diseases that needed treatment and both would have been worse off if they went undetected. If you really do your research and decide that it is the best decision for your family to not do it, then you could probably slip through the cracks this way (by essentially telling the ped that it would be done somewhere else).<br><br>
I am a little confused, though, by the last sentence in your post -- no matter where the newborn screen is done, the results go to the state. That is the way that it works.<br><br>
Good luck!
 

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Sharon- who is the ped you met with? My girls go to Dr. Pappas in Sylvania. He is accepting of our no-vax decision, but I know he encourages vaxex to his patients. In Temperance MI I go to Dr. Woodhouse, he is a family practice doctor who does not trust the FDA, is more holistic in care and does not encourage vax's. I also went ot a meeting at Mother's OWn Birthing Center in Temperance. They mentioned a ped in Temperance who will NOT vax his patients. I can't remember his name though.
 

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Mike Kerrigan is an NP in Lambertville, MI. He works with Dr. Peyton. I think its Aspen Medical Partners. Mike and his wife have had home births and the office is very up front about not doing vaccines.<br><br>
You can also have the PKU done through private companies if you don't want the state to have you in thier system. You have to obtain the stuff or they can send it to your midwife and then she can do the heel stick and send the test in. It needs a few hours to dry before it goes in the mail.<br><br>
Linda, the midwife at Mother's Own Birth Center in Temperance has done this before.
 

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<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>Shazer</strong> <a href="/community/forum/post/6494957"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I don't care about the test, just that I don't want my baby to be pricked and tested by the state.<br></div>
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<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/dizzy.gif" style="border:0px solid;" title="Dizzy">: I'm confused by this part. Can you explain what you mean? You don't want the Ohio Department of Health to run the results? Or you don't want a test done that is mandated by the state?
 

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Discussion Starter · #6 ·
I should have been clearer. I'm opposed to the state 'requiring' testing of newborns. Furthermore, I don't want them to have my child's medical information. I think it is a violation of privacy. I'm all for private citizens getting all the tests they want by private companies. And in that way, I'm not opposed to the PKU test. My MW said that they don't have the resources to do the test, so maybe I should ask again.<br><br>
The pediatrician I went to is Dr. Kashk out of Wauseon. He is pro-vax, but said he sees a few patients who do not get any shots.
 

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OK - now I understand. I don't know anything about having a private lab run the test. Currently, the routine Newborn Screening that the ODH mandates tests for over 20 disorders. I'm curious to see what the fee is by a private lab to screen for that many.....anybody know? My kids have all had the test done in the hospital when they were born and my insurance paid for it.
 

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Why don't you ask your ped to help you do "more" testing privately instead of the state run stuff? Tell them that you don't see the point in only testing for 20 disorders.<br><br>
Several companies like Pediatrix test for 50ish. There is also Baylor testing, but that is not nearly as many.<br><br>
Say you feel that state-run labs are not as successful at actually detecting metabolic diseases as regional labs.<br><br>
Just a thought.<br><br>
Or there might be testing through Cleveland Clinic. They have a neurometabolics clinic. You could call and ask them.
 

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I'm in Ohio, and after my birth center birth (stayed only a few hours), I had a home visit by an LC who was able to collect the sample at my house (because it needs to be between 24 hours and 1 week after birth). I arranged it through my local hospital because I live too far away from the birth center for one of their regular home-visit nurses to have come. I had the same situation where the ped I was taking him to said she couldn't do it in her office, which seems silly.<br><br>
I know this doesn't help you in keeping the state from doing the testing, but it's free (I'd imagine private testing is probably really expensive), and they test for some pretty nasty stuff, so I'm willing to take advantage of it.<br><br>
Sagashi
 

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Private testing is not expensive. The tests from Baylor in Dallas cost $25. The ones from Pediatrix I believe are around 50$...maybe as much as $75.<br><br>
Advocates for newborn screening want to see more people getting testing through regional not state run centers. When testing is done through state run labs more mistakes are made and more resources are wasted. Regional centers and private companies have more experience and test for more items.<br><br>
And actually I saw a number last night that said there are 29 diseases that can be tested for.
 
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