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In Connor news...I don't think I've posted about this yet. Connor saw the Infectious Disease Specialist earlier this week. He was referred there for several reasons 1. His medical record is full of unexplained illnesses including high fevers (105 once), non-specific rashes, simple illnesses that last for weeks. 2. There is a known immunologic component to his syndrome and 3. Nearly every one of his labs has shown decreased T-cell lymphocytes. So we met with the dr who had already reviewed his chart and labs. The bottom line for Connor is he has what's called a Primary Immune Deficiency. His body is able to fight off bacterial infections normally, but he has a harder time fighting off viral infections. T-cell lymphocytes specifically help in viruses, and Connor has fewer than he should. T-cells are made in the thymus gland, and kids with 22q11.2 deletion have a small, underdeveloped, or missing thymus. Luckily Connor's deficiency is relatively minor. The dr told me specifically that "there's no reason to keep him in a bubble". We need to take prudent precautions, especially in public, and if he shows signs of being sick we need to act on it earlier than we might with Ian. And Connor can't receive any live-virus vaccinations (because it would actually CAUSE him to get the disease the vaccine is designed to prevent) (live virus vaccines include Measles, Mumps, Rubella, Chicken Pox, Polio, etc) BUT, otherwise his immune system is fine. And this kind of immune deficiency is expected to ease as he gets older and his immune system "learns" how to function better.<br><br>
SO, what does this mean? Well again I'm SO SO SO thankful that I continued breastfeeding him despite all the struggles initially (and of course this is NOT a knock against anyone who was forced to use alternate feeding methods...we were lucky that his medical issues were not too severe). I'm again very upset at the military doctors (where he was seen for the first 6 months) because I brought up the question of an immune deficiency when he was only a few months old and was "poo-pooed" as an overly concerned mom. I'm also SO SO SO glad that I haven't vaccinated him to this point. My gut was telling me that something was wrong with my baby, and I wasn't going to risk anything until I knew exactly what. I'm also very thankful that Connor has so far stayed relatively healthy.<br><br>
And PS: if you go our blog (link below) there's a FANTASTIC new picture of me and the boys on the post dated Mar 7th <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> Man I have great kids!
 
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