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Discussion Starter #41
Keeping this on the front page, so others can add their stories.<br><br>
S/A = <b>sodium ascorbate</b>. There is a big thread on the subject in this forum.
 

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Awesome thread! Thanks so much for sharing everyone! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up">
 

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Discussion Starter #43
<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/bump.gif" style="border:0px solid;" title="bump">
 

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The mega-thread re: sodium ascorbate is in <a href="http://www.mothering.com/discussions/showthread.php?t=353318&highlight=sodium+ascorbate" target="_blank">health & healing</a>. It's a great read, lots of excellent info.
 

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I am so thankful for this thread and all the posters; pertussis scares me like nothing else.
 

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I finally made my first post on this board over a month ago when I was absolutely convinced I had pertussis. DH, DS and I all had a horrible virus, but they got better (DS - now 19-months - has all pertussis vax), and I developed a terrible sinus infection and had the "whooping" cough. Coughed so hard I vomited and lost complete control of my bladder, way worse than pregnancy.<br><br>
Initially I was given antibiotics, asthma inhalers, and cough medication. Nothing worked. After a visited to the ER where I was told I was stressed from my "asthma" diagnosis and more visits to the doctor I finally took DH with me so the doctor would treat me with respect. He finally ordered a series of various tests. Turns out I did not have pertussis, but a hiatal hernia and GERD (reflux). I had seen a reference to GERD on a site for pertussis as I was desparately looking for anything to help with the coughing. I dismissed GERD as an issue for me because I don't have heartburn, which I now know is not always the case with GERD. So, to formerluddite, maybe you had/have GERD?<br><br>
What I did learn about pertussis:<br><br>
After the initial treatment with antibiotics it's difficult to diagnose with the nasal swab. So, you could get a false negative. You need the "spit" test.<br><br>
Some medications I mentioned I was prescribed do not help or can make it worse, so do more research if you think you have it. Really, there is nothing you can do but wait it out. Sleeping upright helps. (As it does with GERD.) I took the Vitamin C advice on here and researched endlessly for more remedies and found nothing!<br><br>
Also, full vaccination as a toddler will not prevent pertussis. There is a new booster for teens and adults. The most recent outbreak at New Trier High School near Chicago indicates that the booster may work. The upperclassmen who had not had the booster had about 28 cases, but there were only about two cases in the freshmen who had been offered the booster. I do not know if the few in that class who caught it had received the vaccine.<br><br>
As soon as I get this GERD under control (i.e. stop coughing endlessly) I will investigate the pertussis booster for myself. If what I had was not pertussis then I know I will not be able to handle it if I do get it. My coughing caused such violent vomiting, I can see how people with pertussis do break ribs. And, the loss of bladder control... wow! Never this bad in pregnancy; I'm talking complete loss of control. And, the exhaustion, the inability to play with my child...<br><br>
In any case, if you do think you have pertussis, but no one around you does, do look to GERD as you do not have to have heartburn to have it. I would never have known if DH and I had not forced the issue.<br><br>
And, I will be getting a new doctor!
 

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<div>Originally Posted by <strong>Deborah</strong> <a href="/community/forum/post/6770699"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">She is still here, but now she has a different name!<br><br>
Something like Momtezuma T...<br><br>
but we usually call her MT</div>
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Momtezuma Tuatara? I remember the username from when I started posting, especially since I'm an '80s UGA alumna, and REM's Peter Buck has a band called Tuatara. Odd, I know, but that's what I thought of when I saw her username and wondered how she chose it.<br><br>
So, here's the link to the thread about <i>selectively vaccinating</i> in which I posted my first questions about pertussis, including a couple of links to interesting articles: <a href="http://www.mothering.com/discussions/showthread.php?t=565681" target="_blank">http://www.mothering.com/discussions...d.php?t=565681</a><br><br>
Here's my cross-post: <a href="http://www.mothering.com/discussions/showthread.php?t=566920" target="_blank">http://www.mothering.com/discussions...d.php?t=566920</a><br><br>
I've just looked at them both and MT is not in either, so I must have read her posts when searching for related topics. Did a search for her and she has tons of posts, so I'll leave it to you as individuals to find which topics you need.
 

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This is AWESOME! I don't have time to read it tonight (should have been in bed hours ago) but it'll be the first thing I read in the morning! Thanks so much!!!
 

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<div>Originally Posted by <strong>Imvishta</strong> <a href="/community/forum/post/6953309"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I took the Vitamin C advice on here and researched endlessly for more remedies and found nothing!<br></div>
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out of my own curiousity- did you take it in SA form, and if so, did it not help at all? or just not enough? how much were you taking?
 

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BTW- I just want to point out again, that if one actually HAS pertussis and uses the Vit. C as directed by knowledgable women from this site, I highly doubt you would get to the point of breaking ribs. My dh and 2 sons had it, and even prior to finding the SAP treatment, they were coughing/throwing up but not the point of breaking ribs, the PP's GERD sounds much worse. Knowing how to treat pertussis with SAP, makes the vaccine even more usless, IMO. I will never risk that shot with any of my kids or myself again. Knowledge of treatment is power! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Please share with us the age/s of those who were affected: 32 and 11<br>
whether or not they'd been vaxed: fully: me, 3 doses: dd<br>
the severity of the disease: Me: awful. DD: not fun but not so bad.<br>
how you treated it, and what effects the treatment/s had<br><br>
DD started coughing in late September 2004. We didn't think much of it--because she was well when she wasn't actually coughing. By the time of the national election, I had "a cold". I felt off but well enough the next weekend to go to a convention. The next weekend, I think, was when I really started coughing. DD was still sick--but through this all, she missed only 1 week of school because we never realized it was pertussis until she was no longer contagious. I was pregnant at the time, 2nd tri.<br><br>
Long about the week of Thanksgiving, I was horribly sick--felt asthma-y and thought maybe I had a walking pneumonia--the urgent care gave me a breathing treatment and got my lungs open and offered me amox... I told them better make it zithromax since it might be walking pneumonia. It is entirely possible that without the zithro I would have been hospitalized--amox would have done nothing, but zithro probably helped a little and stopped me from being contagious.<br><br>
I was diagnosed over the phone on Thanksgiving by someone who heard me whooping over the phone (a doc). They told me to take Robitussin DM... it didn't help much. Dark cocoa helped a fair amount. Some days I didn't take my CPAP (I have sleep apnea anyway) off at all--it was the only way I could get my lungs back open after a paroxysm.<br><br>
I broke a rib I coughed so hard. When that happened, they prescribed codeine, which helped both the pain and the coughing.<br><br>
The classic treatment was what finally worked...you know, put 100 rocks in your pocket, and take one out every day, and when your pocket is empty, you're cured. Basically I just had to wait it out. I was finally officially no longer sick at 36 weeks pregnant after falling sick at 22 weeks. My second daughter was born at 41 weeks 4 days, and while she has a serious genetic issue, it has nothing to do with the whooping cough or the meds I took while pg.<br><br>
DD1 only whooped while walking to school. I, otoh, could not get out of bed for days on end and it really set my health back and I still feel the repercussions of bedrest... but it was just one of many bricks thrown at me that year.
 

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<div>Originally Posted by <strong>bri276</strong> <a href="/community/forum/post/6953690"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">out of my own curiousity- did you take it in SA form, and if so, did it not help at all? or just not enough? how much were you taking?</div>
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No, I did not take the SA form; took the Ascorbic Acid. DH bought a HUGE bottle of it and I didn't think it would be that much different and didn't want to complain. After reading a little more about SA I'm still wondering why that is so much better than AA? Does the <i>buffering</i> make that much of a difference?
 

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yes, it makes a huge difference. we have a huge bottle of AA too and it never gets used anymore <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol"><br><br>
jenrose- <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> my dd has 18q23 deletion and micro-duplication of 3p24.
 

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Is SA safe in megadoses while nursing? This seems like a stupid question because my 12-month-old can take the actual SA directly right? So certainly it would be fine through BM?
 

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Hi thanks for this thread... what's SA?
 

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<div>Originally Posted by <strong>Enudely</strong> <a href="/community/forum/post/6960117"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Hi thanks for this thread... what's SA?</div>
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S/A = sodium ascorbate. I'm guessing that SAP is Sodium Ascorbate Protocol, but I could be wrong.
 

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I have to say, this thread is making the DTap sound kinda good<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1"> Not sure this was the intention<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
I hate vomiting and I have a phobia of not being able to breathe or of watching others not able to breathe (this is a result of an experience I had after thyroid surgery when I stopped breathing twice...but that's a whole 'nother thread).<br><br>
Not that I think the DTap works or that I would give it knowing all the stuff I know now, but wow, pertussis sounds really scary!
 

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i dont know DQmama personally all i could think reading through is wow almost everyone who has had pertussis in this thread was vaxxed...
 

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<div>Originally Posted by <strong>kwren23</strong> <a href="/community/forum/post/6973881"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">i dont know DQmama personally all i could think reading through is wow almost everyone who has had pertussis in this thread was vaxxed...</div>
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But, <i>when</i> were they vaxed? Not being snarky with that question. That was the issue with the recent outbreak in the Chicago area. The upperclassmen had not been given the booster, but most of the freshmen had. There were about 28 cases in the upperclassmen, but only about 2 in the freshmen. That makes me think that the vax and booster can/do work. DS has been vaxed recently, but I am seriously considering getting the booster for myself, as well. Just don't think I could go through it, and I can't imagine a child going through it!<br><br>
I just went to the pulmonologist today (X-rays again; pulmonary function tests) and we're still trying to work out this possible GERD problem. But, if I had not had the test for pertussis (swab and other) I would <i>still</i> be convinced I had pertussis. (I think I mentioned in another post I had seen a link on a chronic cough site/pertussis thread to a GERD site.) Frankly, I wish I <i>did</i> have pertussis because then I'd almost be through with it! Most of the rocks would be gone from my pocket! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol">
 

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<div>Originally Posted by <strong>Imvishta</strong> <a href="/community/forum/post/6974340"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">But, <i>when</i> were they vaxed? Not being snarky with that question. That was the issue with the recent outbreak in the Chicago area. The upperclassmen had not been given the booster, but most of the freshmen had. There were about 28 cases in the upperclassmen, but only about 2 in the freshmen. That makes me think that the vax and booster can/do work. DS has been vaxed recently, but I am seriously considering getting the booster for myself, as well. Just don't think I could go through it, and I can't imagine a child going through it!<br><br>
I just went to the pulmonologist today (X-rays again; pulmonary function tests) and we're still trying to work out this possible GERD problem. But, if I had not had the test for pertussis (swab and other) I would <i>still</i> be convinced I had pertussis. (I think I mentioned in another post I had seen a link on a chronic cough site/pertussis thread to a GERD site.) Frankly, I wish I <i>did</i> have pertussis because then I'd almost be through with it! Most of the rocks would be gone from my pocket! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol"></div>
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Did they do a blood test?<br>
A swab wouldn't show pertussis at this point because the bacteria are mostly gone once "the cough" sets in.<br>
But if you're serology says you haven't had pertussis in a while, then it wasn't pertussis.
 
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