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Why or why not?<br><br>
I dont see anything about this in the other forums, and I cant think of where to ask....<br><br>
What it boils down to is, I dont feel I know enough about it to make an informed decision.<br><br>
Did you or didnt you? and why? point me in a good direction?<br><br>
Thanks
 

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With dd we did not. At the time TX only tested for 5 things- all significantly rare, some with genetic components (which we did not have)<br><br>
Haven't decided for this bugger. The TX screen covers more things now... so I'll reconsider. I'll probably go largely on gut instinct- if I feel like something might be off, we'll do it, otherwise probably not.<br><br>
FYI- all states test for more than JUST PKU- part of the picture is knowing what all your state is testing for. OR you can pay to have a full screening for a bunch of stuff instead.<br><br>
-Angela
 

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yes, we had it done. It's just a simple heal stick, and it can test for numerous different things.
 

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1st 3, yes...declined last time & won't have it w/this one either.
 

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<div>Originally Posted by <strong>alegna</strong> <a href="/community/forum/post/10700621"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
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I'll probably go largely on gut instinct- if I feel like something might be off, we'll do it, otherwise probably not.</div>
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The damage from phenylalanine build up won't show for weeks, so you're not going to know if something is "off" (PKU wise) at birth. The test is to determine whether or not the enzyme needed to process phenylalanine is present, as a pre-emtpive strike against damage from phenylalanine build up.<br><br>
There is a urine test you can do a couple of weeks after birth, which is what I think I'd do next time. Is that you're talking about?
 

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We do this test, it's pretty minimally invasive and potentially lifesaving. They don't check just for PKU, depending on your state they look for a number of different conditions. Google your state name and "newborn screening" to find out what is checked in your state.
 

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<div>Originally Posted by <strong>North_Of_60</strong> <a href="/community/forum/post/10700734"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">The damage from phenylalanine build up won't show for weeks, so you're not going to know if something is "off" (PKU wise) at birth. The test is to determine whether or not the enzyme needed to process phenylalanine is present, as a pre-emtpive strike against damage from phenylalanine build up.<br><br>
There is a urine test you can do a couple of weeks after birth, which is what I think I'd next time.</div>
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Which is why I didn't say looking for symptoms <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1"><br><br><br>
-Angela
 

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<div>Originally Posted by <strong>rmzbm</strong> <a href="/community/forum/post/10700674"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">1st 3, yes...declined last time & won't have it w/this one either.</div>
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Wow, you're a busy one with all those young'uns!<br><br>
I think NYState it's required. Our little one was in the NICU for the first 3 days, and had so many heel pricks! Her poor tiny feet! I felt awful about all that, this test and that test...If it had been just the PKU test, I wouldn't have minded, but I think she had something like 8 heel sticks total.
 

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We did it. It did not seem too invasive to us. It was a test, not a medication/vaccine so we figured ok. ds had a temp when he was born and apparently "smelled funny: according to my midwife, so he had A LOT of heel sticks while we were in the hospital to check his white blood cell count, so one more or less wasn't an issue for us.
 

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Yes we did it with our babies around day 5. Both my babies nursed through it.
 

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Yes. I didn't know there was objections to it until I came to this site. If I have more children, I'll read up on it more.
 

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Virginia does a fairly extensive newborn screen. I'm not sure why I would have declined it. A heel stick is gotten over in about ten seconds. It really doesn't hurt anything, and it can hurt a lot of things not to know the baby has a metabolic disorder of some sort. They might be super rare, but they do occur, so a minimally invasive test is worth it in my opinion.
 

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i'll be doing it.. my degree is in nutrition, and after studying how devastating PKU is, i just cant justify, in my case, not doing the simple heel stick to help prevent brain damage...<br><br>
however, i do have in my birth plan that it be delayed... so i dont want it done until like we're about to leave or something... since its more reliable to have it done a little later rather than sooner, from what i've read.
 

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In Illinois I believe it is mandatory ...we have a niece with it and have seen what happens when her phe levels are out of whack and didn't even think of not doing it ....it was quick and neither of my kids were upset by it ...
 

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We have done it and will do it with this one too.
 

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Just a note to those saying it's mandatory or required by law in your state. There are really only one or perhaps two states that force this. Otherwise it's pretty easy to opt out of if you claim religious objection. If you wish to opt out.<br><br>
-Angela
 

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<div>Originally Posted by <strong>the_lissa</strong> <a href="/community/forum/post/10701238"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Yes we did it with our babies around day 5. Both my babies nursed through it.</div>
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<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/yeahthat.gif" style="border:0px solid;" title="yeah that">: 'Cept just one baby w/us. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Yes, we did it. We took him at a week old to the outpatient area of the hospital and it was very simple, they even gave us a warm compress for his foot to get blood flowing there so it would be easier.<br><br>
We did it b/c there are serious risks if it is present but not caught, and very treatable if it is caught.
 

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We got it done on both children because of the severity of this and related illnesses.
 
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