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Are any of you going to get (or have already gotten) the PKU screen for your new babes? My midwife will do it at home for us at my day 3 post-baby visit, but since she usually practices in a neighboring state, I have to get the heelstick testing form myself. I could also choose to have my ped do it in the office, but for such an icky test, I'd rather have the baby at home.<br><br>
I didn't think this was a huge deal until I called the county health department about getting the form. They transferred me to the local hospital L&D area, who transferred me to the nursery area. The (very nice) nurse I talked to was hesitant to give me any information. She asked me what I needed the form for, so I just told her: I'm having my baby at home, and my midwife will complete the screen for me if I can get the form since she doesn't have them for my state. She then started questioning me about if I planned to do the vitamin K and eye goop, etc. I told her I had talked all of this over w/ our ped, and he felt we had everything under control. This calmed her a bit, but she still kind of erm'd and um'd her way around getting my name, address and phone number so she could "talk to someone then send me the form."<br><br>
Now I'm feeling paranoid. I don't want any state or county people calling me up and giving me grief, and I certainly don't want to get my midwife in hot water (I live in an illegal state). Like I need this at 36 weeks (with sinus and ear infections to boot!). <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><br><br><br>
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Update:<br><br>
I got my newborn PKU screen form in the mail today -- no phone calls from nosey healthcare officials. I guess I was thinking about it way to much. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment"> Thanks again for all your great ideas.
 

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If it's going to be such a hassle, I would just forget the PKU, personally. It tests for extremely RARE metabolic disorders. Chances are pretty slim your baby will have them. I don't know if a family history of any illness puts your baby at higher risk. Maybe ask your midwife if she knows and let that determine your decision on this test.<br><br>
If you do want the test, see about getting the form from a ped or GP. Even consider doing it at their office. That way there is a paper trail if you are investigated for having a hb. The test was really not that bad. My midwife did it while I nursed my daughter. She was VERY gentle. DD just nursed through it and didn't even notice. If you do it at the ped or GP, insist you nurse and ask them to use the smallest needle possible. I would also wait until baby is 1 week old and has been breastfeeding for a few days. The test will be more accurate that way and the second test won't be needed.<br><br>
Do you have caller ID? Maybe consider not answering the phone if it's from any sort of health authority. Now that the hospital has your information, I'd be paranoid, too. Maybe if someone calls, tell them you've changed your mind about hb and are meeting with a local OB. If they ask who...tell them you prefer not to provide private medical information. Or, better yet, just tell them the nurse you spoke with must have misunderstood you and you are most certainly not planning a hb with a midwife. DO NOT give them any information other than what they already have. Just tell them over and over that information is private and you prefer not to answer NO MATTER WHAT.<br><br>
Good luck. I hope you don't get hassled either. You have enough to deal with at this point in pregnancy.<br><br>
Keep us posted.
 

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If they ask, I'd answer the question with "homebirth? I thought that was illegal here, but that sounds fantastic. Can you give me contact details for some midwives??"<br>
As I understand it, the US doesn't routinely give postnatal care for the 5 or 7 days after birth that it would take to get an accurate reading on the PKU test (correct me if I'm wrong about the postnatal care): so that's why you're asking for the form. To make sure your baby's results are accurate.
 

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I'm sure it's not something to worry about (the nurse collecting your info) FWIW, I'm having our lab do the PKU test at 5 days post birth.<br>
I am completely floored by the fact that homebirth is illegal in some states in the US. It makes me sick!
 

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There are options that don't touch your state's records.<br><br>
There is the option of doing the screen via an outside lab and Pediatrix is one of those (their website isn't cooperating, but their phone number is 866-993-2300) and for $89 + shipping and handling, they will test for the same tests states do plus another 30-something disorders.<br><br>
Until California got with the program, many of us in homebirth offered the Baylor Supplemental testing, but they do not test for several of the standard (and more common) disorders the states test for.<br><br>
A decent site to read about the odds, how and why to test, as well as where to find the supplemental testing can be found here:<br><br><a href="http://www.savebabies.org/NBS/snbs.php" target="_blank">http://www.savebabies.org/NBS/snbs.php</a> (click the main logo to go to the front - I thought seeing the different labs was where you might want to go first)<br><br>
Midwives can order the tests, but I suspect Pediatrix "allows" parents to order it themselves.<br><br>
I am baffled that your midwife wouldn't already know this information or ask you to take a jaunt to her place across the border.<br><br>
When insurance is an issue, or legalities are an issue, it is possible to deflect somewhat.<br><br>
Call to local Children's Hospital's lab: I'm going to have a baby at my sister's in <fill in legal state> and need to have the Newborn Screen done once I get home. Which lab would I go to?<br><br>
Lab: Why aren't you getting it done there?<br><br>
You: Because I'll be coming home right after the birth and I know it needs to be done after my milk comes in, but before 6 days postpartum. (That is the typical "law"/rule - before 6 days postpartum.)<br><br>
or<br><br>
You: I need to have my baby's Newborn Screen done because I am planning on leaving the hospital early and want to make sure my milk is in before getting it done so it will be accurate. Where should I go?<br><br>
I'm hoping you are able to find the way to do this if it is something you want to do (and even my most natural and intervention-free parents overwhelmingly have the test done on their babies).<br><br>
I learned to do the NBS efficiently and lovingly simply because I knew babies were going to have it done. Of all the tests and things the government tries to foist on our babies, this is one I have the least issue with (and I am pretty non-interventionist unless proven necessary). Many midwives do not even offer the test because they don't want to hurt the baby, yet I am called by these clients because they want it done. I am glad I have this skill! I'd rather it be me poking the child while mom or dad holds the baby than some stranger in a lab who couldn't care less about your child's pain. I care!<br><br>
Anyway, role play if you want, but while it is illegal for the MIDWIFE to attend the birth in your state, it is NOT illegal for you to have a homebirth! Please find your power in that knowledge. You have every right to have the birth AND the state testing you want and if they ask questions, the more sure you are of yourself - the less timid, the less stumbling, the more clear you are - the less the person on the other end balks or thinks anything of it. As you discovered, when you said the Ped had okay'd the eye ointment and Vit K issue, the woman calmed down; she didn't ask what he said, either, did she? She just wanted to hear someone else In Power <img alt="" class="inlineimg" src="/img/vbsmilies/smilies/eyesroll.gif" style="border:0px solid;" title="roll"> had talked to you.<br><br>
You can do this. This is YOUR birth and YOUR baby. You *can* find the way to meet all your needs and your child's. Sure, it can be a hassle sometimes. Sure it can raise eyebrows. Sure people will wag their tongues. But those of us who parent this way have to start getting used to it somewhere, right? <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/winky.gif" style="border:0px solid;" title="Wink"><br><br>
Please let us know what you choose to do.<br><br>
Barbara E. Herrera, LM, CPM
 

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Hello...I did PKU with my 1st 2 babies and then with my last baby I did not, and that was a hospital born babe. There was a waiver to sign and that was it. This baby who will not be born in the hospital hopefully will not have the PKU done either. Our midwife gave me the option and even told me that I could do the test myself if I wanted and mail it in...HOWEVER...I performed the test numerous times while I worked in a postpartum unit in a hospital and it was TORTUROUS to babies because they just don't have the best circulation in their poor little feet...their body is to worried making sure that the best cirulation is going to much more important parts of the body (brain, heart, lungs)...so I just cannot do it to the baby. JMO.<br>
Alicia
 

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We did the PKU... even though midwifery is allegal, the midwife just filled in all the info, we enclosed the $25 fee/check and mailed it in. Results went to the ped's office. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> I'd do something independent if it's easier and you can afford it. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up">
 
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