[sebrinaw]

I have posted before but I really need some advise. I have an 8 moth old adopted baby girl. She has allergies to soy, cow and goat milk. She is fine with rice and I have been taking her to a naturapath who has been helping me develop a formula for her but I am freaking out that it is not enough. Basically it is rice milk base, with rice protein, coconut oil and fish oils for fat, multi vitamin and probiotics. She is also eating about 1/2 an avacado per day and other fruits and veggies. I bought a can of Nutramigan and the igredietns are enough to freak a person out. The frst ingredient is corn syrup. Plus the taste is awful and my daughter won't drink it. I have been giving her about 10 ounces of breastmilk per day. It's all I am able to pump nd I have used up all my donor milk. I am so concerned about this and I am so frustrated too because I breastfed my sons and it was easy.. Anyways, if I provide all the protein and fat and vitamins she needs is it ok to use rice milk as a base?

Sebrina

 

[LionTigerBear]

Besides finding someone in your area who might be able to donate some breastmilk (have you asked in your Finding Your Tribe area?) the book Nourishing Traditions has a couple of good homemade formula recipes. The non-dairy one is raw-liver-based I believe. However, your child might be allergic to the pasteurization of the dairy you've tried, so you might try a homemade formula based on raw dairy. Veggie-based formulas are not going to be enough nutrition. Good luck! Your child is lucky to have such a dedicated mommy.

 

[sebrinaw]

I am in Canada and it is illlegal here to buy raw milk

 

[sebrinaw]

I have been reading the nutrional requirements for an infant of her age and size. She needs about 13 grams of protein per day. In 32 ounces of rice milk their is 8 grams. In 2 tsp of the rice protein their is 8 grams. In 1/2 an avacado (which she eats every day) their is 2 grams. So I think she will get enough protein. Plus this are small amounts in the other fruits and veggies she eats. She needs about 30 grams of fat per day. 1 Tbsp of coconut oil contains 15 grams of fat and 1/2 avacado contains 15 grams of fat. So right their she is getting enough fat (plus she would get small amounts from the other things in her diet, including the fish oils and breastmilk she gets). The rice milk is fortified with calcium, vitamin d and b-12... plus I am giving her a liquid mulit vitamin and probiotics. Isn't this bascially the same thing as using formula? Of course it's not the optimal chioce (all breastmilk is), but when the only alternative is hypo-allergenic formula, this just seems more natural.

Please advise and tips are MORE than welcome here

 

[mudpiemaker]

have you tried increasing your milk supply? 3 fenugreek and 3 blessed thistle capsules 3 times a day works wonders for a lot of mamas.

 

[sebrinaw]

I am already taking the herbs and Domperidone to increase supply and this is all I can produce.

 

[sebrinaw]

This is the rice milk I have bee using. It actually contains 3 grams of protein per serving http://www.soylutions.ca/eng/produits-rizOriginal.html.

 

[alegna]

I would NOT be comfortable with that rice formula. If she is really allergic to all those things, I'd go with one of the formulas.

-Angela

 

[Ks Mama]

Quote:

Originally Posted by alegna I would NOT be comfortable with that rice formula. If she is really allergic to all those things, I'd go with one of the formulas. -Angela

As much as I dislike the use of formula, I'd have to agree in this situation - the fats/proteins in vegetable sources, like rice, aren't going to come close to an animal-based milk formula... I'd really try out the hypoallergenic formula first before ricemilk. Ricemilk just isn't so good.

Although FIRST, above even that, would be to see if you can get some donated breastmilk, or purchase from a milk bank. I don't know the price... but I'd assume hypoallergenic formula isn't cheap either, and banked breastmilk beats that nutritionally!

 

[nataliachick7]

my son is intolerant to milk protein, soy protein, goats, etc. he cannot even handle nutrimagen because of the small amount of milk protein in it. it makes him stay up all night crying-thrashing around, refluxing. we are using neocate. the inredients also make me mad....corn syrup

but there is NO milk protein whatsoever. its a really expensive formula, but we get help from wic and insurnace. you may want to look into this formula
lately he doesnt want as much formula so i am doing a similair thing only with pacific brand almond milk because i noticed it has more protein and more fat that the rice milk we were using. i give him flax seed oil and avacodos daily. i have never heard of coconut oil...where do you get that?

 

[LionTigerBear]

I want to again promote the idea of getting some donated breastmilk. Try posting a plea for breastmilk in your geographic forum of MDC and see if any local moms could help you out. Even supplementing with more breastmilk would be so good for your baby.

Good luck!

 

[paquerette]

It's not just the amount of protein and fats that matters, it's the types. It can be very complicated.

What about other hypoallergenic formulas? Nutrimagin isn't the only one. I don't like corn syrup either but it beats malnutrition.

Can you keep a cow or goat where you live? They can hardly stop you from consuming raw milk from your own animal. I think goats are a little easier to keep. We used to have one in just a little bit of backyard.

 

[ChristieB]

Quote:

Originally Posted by nataliachick7 my son is intolerant to milk protein, soy protein, goats, etc. he cannot even handle nutrimagen because of the small amount of milk protein in it. lately he doesnt want as much formula so i am doing a similair thing only with pacific brand almond milk because i noticed it has more protein and more fat that the rice milk we were using. i give him flax seed oil and avacodos daily. i have never heard of coconut oil...where do you get that?

Yikes! While I realize how difficult your situation must be, I would not give almond milk to an infant, esp. one with so many allergies. Almonds are a tree nut, and a common allergen.

Coconut oil is available at a hfs or online (Whole Foods or Wild Oats should have it). Locally, look for a good brand, unrefined, like Nutiva, or Garden of Life. Online, there are others, like Tropical Traditions, Wilderness Family Naturals, among others. Coconut oil is good. Among other properties, it is a good source of lauric acid, which is also in breastmilk.

OP, I agree with the recommendation for trying to find someone who can share some breastmilk. Also, and this very well may be what you're doing, but if not, I would try using a hospital-grade pump. You might be able to get more milk that way.

The avocado is good, too. I'm glad you're both using it. Cod liver oil would be good, too. It has EPA and DHA, as well as vits. A and D. The vit. D, especially, has been shown to shown to help prevent autoimmune diseases like Type 1 diabetes and MS.

Bone broths are also very good. Might try that as a base for your formula (or maybe part of the time anyway).

And in case you're interested, here's a page with the liver-based formula. It's the second recipe. And btw, it's cooked liver, not raw. You'd need to talk it over with your naturopath, as it may need some tweaking for your dd to tolerate it.

A couple of notes about that page. The bifidobacterium infantis that it calls for is cultured in goats milk. I don't know if that would be a problem for your dd or not. The same company (Natren -- a very good company, btw) sells a product called Bifidinate, which is a powder, and that's what they recommend for babies who can't tolerate any dairy at all. It's cultured in a chickpea base. It worked great for ds's thrush.

Also, that page recommends egg yolks. I would stay away from those until about a year (or more) for a baby who is sensitive to some foods. I've heard others say that they did the egg yolks early on, and now the child can't tolerate eggs at all. I don't think it's worth it.

Good luck with all of this.

Christie

 

[nataliachick7]

Quote:

Originally Posted by ChristieB Yikes! While I realize how difficult your situation must be, I would not give almond milk to an infant, esp. one with so many allergies. Almonds are a tree nut, and a common allergen. Coconut oil is available at a hfs or online (Whole Foods or Wild Oats should have it). Locally, look for a good brand, unrefined, like Nutiva, or Garden of Life. Online, there are others, like Tropical Traditions, Wilderness Family Naturals, among others. Coconut oil is good. Among other properties, it is a good source of lauric acid, which is also in breastmilk. OP, I agree with the recommendation for trying to find someone who can share some breastmilk. Also, and this very well may be what you're doing, but if not, I would try using a hospital-grade pump. You might be able to get more milk that way. The avocado is good, too. I'm glad you're both using it. Cod liver oil would be good, too. It has EPA and DHA, as well as vits. A and D. The vit. D, especially, has been shown to shown to help prevent autoimmune diseases like Type 1 diabetes and MS. Bone broths are also very good. Might try that as a base for your formula (or maybe part of the time anyway). And in case you're interested, here's a page with the liver-based formula. It's the second recipe. And btw, it's cooked liver, not raw. You'd need to talk it over with your naturopath, as it may need some tweaking for your dd to tolerate it. A couple of notes about that page. The bifidobacterium infantis that it calls for is cultured in goats milk. I don't know if that would be a problem for your dd or not. The same company (Natren -- a very good company, btw) sells a product called Bifidinate, which is a powder, and that's what they recommend for babies who can't tolerate any dairy at all. It's cultured in a chickpea base. It worked great for ds's thrush. Also, that page recommends egg yolks. I would stay away from those until about a year (or more) for a baby who is sensitive to some foods. I've heard others say that they did the egg yolks early on, and now the child can't tolerate eggs at all. I don't think it's worth it. Good luck with all of this. Christie

i should have clarified, he has intolerances, not allergies. alleriges involve
IgE antibody, while intolerances form non IgE antibodies. Food intolerance is the term used for non-immune reactions to food; however they do involve the immune system. The offending food (generally protein) enters the bloodstream, and the immature immune system treats it like a foreign object
or antigen (i.e. virus), and reacts to it forming a non IgE antibody. food intolerance isn't an IgE immunological reaction to food, but does involve an immunological reaction. i knew he was not at risk for almonds, as he does not have classic "allergies". He has MSPI-MFPI. almonds may be an issue for the ops baby though.

 

[nataliachick7]

oh yeah, and its not the egg yolk that is allegnic, its the egg whites. generally, egg yolks are fine, but there is also the issue of the yolk touching the white part.

 

[KatWrangler]

Quote:

Originally Posted by nataliachick7 oh yeah, and its not the egg yolk that is allegnic, its the egg whites. generally, egg yolks are fine, but there is also the issue of the yolk touching the white part.

However, it is almost impossible to get rid of all the white. Thats why persons with egg allergies need to avoid the whole thing.

 

[ChristieB]

Quote:

Originally Posted by nataliachick7 i should have clarified, he has intolerances, not allergies. alleriges involve IgE antibody, while intolerances form non IgE antibodies. Food intolerance is the term used for non-immune reactions to food; however they do involve the immune system. The offending food (generally protein) enters the bloodstream, and the immature immune system treats it like a foreign object or antigen (i.e. virus), and reacts to it forming a non IgE antibody. food intolerance isn't an IgE immunological reaction to food, but does involve an immunological reaction. i knew he was not at risk for almonds, as he does not have classic "allergies". He has MSPI-MFPI. almonds may be an issue for the ops baby though.

Yes, I understand the difference between allergies and sensitivites. But as you used the word allergies, I just assumed. Sorry.

Quote:

Originally Posted by nataliachick7 oh yeah, and its not the egg yolk that is allegnic, its the egg whites. generally, egg yolks are fine, but there is also the issue of the yolk touching the white part.

I realize the white is the allergenic part, but as you say, it's difficult to separate them completely. Plus, I was speaking of sensitivities that were developed, which can be to anything, esp. when introduced at such a young age. And eggs seem to be a food that people often have sensitivities to. It just seems prudent to avoid them at an early age. Same with milk when possible, IMO.

 

[sebrinaw]

Thanks for all the advise.. I cannot keep a goat because we live in a condo. I am using the Medela Lactina from the hospital but I had breast surgery and re-lctating has proven very difficult. but I am happy to be producing any milk at all and I figure it's better than none. i was given about 250 ounces of donor milk but we have used it all up and I am still searching for more, but have had no luck.

I should also clarify that her she does not have allergies but rather sensitivites and someone reccomended that I try Nestle Good Start as they use whey protein and most babies tolerate that better. What do you all think?

Thanks again,
Sebrina

 

[ksera05]

Yikes. I would consult with a GI doctor about getting her onto Neocate, if she honestly has that many sensitivities/allergies. That formula does not sound adequate enough IMO.

Obviously breastmilk is best, but this is the type of situation that specialized formulas like Neocate are out there for.

Good luck!

 

[ChristieB]

Quote:

Originally Posted by sebrinaw Thanks for all the advise.. I cannot keep a goat because we live in a condo. I am using the Medela Lactina from the hospital but I had breast surgery and re-lctating has proven very difficult. but I am happy to be producing any milk at all and I figure it's better than none. i was given about 250 ounces of donor milk but we have used it all up and I am still searching for more, but have had no luck. I should also clarify that her she does not have allergies but rather sensitivites and someone reccomended that I try Nestle Good Start as they use whey protein and most babies tolerate that better. What do you all think? Thanks again, Sebrina

I apologize to both you and nataliachick7. We tend to take food sensitivities very seriously in our family because of what we've seen happen to our son because of them. But he's not a baby, needing his basic nutritional needs met (yes, he needs those met

, but we have more options).

And yes, the 10 oz. of breastmilk you can get per day is most definitely better than none!

I don't have any experience with the Good Start formula, but you could give a try and see how she does. Whatever you do, though, I would continue giving the probiotics. With bifidobacterium of some kind (bifidobacterium infantis would be ideal), as that is what is normally in a breastfed baby's gut, and formula changes the flora.

Christie