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Discussion Starter · #1 ·
So, I know the arguments against having the triple screen done and I understand the false positive risk and I AM an educated mama who's decided to go ahead with the test anyway. I'm planning a homebirth VBAC and have encountered some resistance (we had a VERY traumatic 3rd birth) and so want to be completely prepared for anything we might be dealing with.....That being said, I'm not looking for a debate on the pros or cons associated with the testing, only some support and insight and maybe a few stories from other mamas who've gone on to deliver healthy babies after getting 'positive' triple screen results. I've googled and read as much as I could since yesterday when I got my 'positive' result (risk factor was 1 in 45) and don't really know what I'm actually asking except for others to share their experiences. I get the differences between screening and diagnostics, but have to admit that I'm still a little anxious about the next step. We're opting for the level II U/S and making a decision on other testing after those results. Even with the increased risk, we're still 97.7777% assured a healthy baby, but any time testing results in abnormal findings, it's stressful. Thoughts??
 

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With my dd my triple screen came back with a 3/5 chance of her having spina bifida. Of course, I was scared. We went to the high risk pg clinic and had several ultra-sounds. They couldn't find anything wrong on the u/s so I refused the amnio. She ended up having no spinal problems. She was born at 35wks (probably because I had pre-e) but went home without any problems. Now she is a bright, happy almost 7yo. She does have some sensory issues, but that's it. I hope yours ends up being a false positive too.
 

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I don't think you'll find any flac here on the SN forum for doing testing. We're a pretty open bunch <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> For what it's worth, I agree with doing some testing for a home birth, particularly a VBAC, and especially if you had a bad experience with a previous birth!! I didn't personally choose the triple screen, but did do ultrasounds.<br><br>
I think it sounds logical that the next step is an ultrasound. Make sure you get a good peri who isn't going to pressure you and will answer your questions. If you don't get that vibe, then switch drs.<br><br>
It might alleviate some possible problems also if you are upfront from the start with what options you will and won't consider, for example: "I want an ultrasound so I can decide on an amnio, but I am not considering termination, so please don't discuss that with me."<br><br>
If you are looking for trisomy 18 specific stories, do a forum search, there have been moms here with babies with it.<br><br>
Keep us posted!! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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OH, big hugs!! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"><br><br>
My friend Jenny had a son born w/ trisomy18. She posted here a couple fof months ago. do a search (if the search works yet) for trisomy18 and do a google search for Jenny Davidson trisomy 18.
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> I have a child with a chromosome disorder & I would never flame someone for prenatal testing<br><br>
a friend on another message board just recently had a perfectly normal amnio after being told 1/5 chance for T18.<br><br>
if you are still feeling anxious after the ultrasound, you can find someone extremely experienced to perform an amnio and the risks are very, very low. however, depending on how far along you are, a clear level II u/s would be extremely unlikely in the case of T18 because there are very visible markers to look for.<br><br>
here is a helpful website<br><br><a href="http://www.geocities.com/wilsfordmindy/trisomy18resources.html" target="_blank">http://www.geocities.com/wilsfordmin...resources.html</a><br><br>
I hope everything turns out fine.
 

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I had a positive result as well with my youngest. I don't remember the details, but after a lot of back and forth, and still quite unresolved as to what I would do, I chose to have amniocentesis done. Those results were normal, and I went on to have a healthy baby.
 

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My numbers were pretty similar to yours with my dd, and we also chose to do a level II ultrasound. She looked fine on the ultrasound, and she did not have downs at birth. You are right that your chances are still 97% + no downs, the test just sucks. The way I finally looked at it is that if I was choosing to have a baby, and my age put me at this risk factor, I would still try to get pregnant. The only thing it changed for me was that with baby # 3 I did choose an early invasive test (a CVS), because I went through so much stress after the triple screen. Good luck with your ultrasound!
 

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Discussion Starter · #8 ·
Thanks so much for the warm welcome. Even though I'm hoping to NOT eventually end up a regular poster in this forum, it's nice to know that there's such a supportive bunch of girls. I kind of feel like I wish I had done the CVS now since we've gotten the results we have, but alas, it's not an option now, so we'll proceed on with the U/S and decide on the next step after that. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up"><br><br>
Somebody mentioned that the level II would pick up certain markers at a certain point in pregnancy. I'll be 18 weeks tomorrow.....should we wait a couple more weeks? My midwife suggested going ahead with it, but if a few more weeks might give clearer results, I'd rather sit it out. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/confused.gif" style="border:0px solid;" title="Confused">:
 
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