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40 Posts
Discussion Starter · #1 ·

I have been a long-time lurker, but wanted to get some of your
collective advice and wisdom, because clearly the doctors do not seem
to know, and I thought some of you might shed some light....

I'll give you a short history. A little over 6 years ago, I had what
the drs thought was bronchitis (turned out to be cough variant
asthma), and I was given several rounds of different antibiotics.
During this I started to have a lot of itching, that didn't go away
with OTC yeast med. My regular dr. gave me 1 pill of diflucan. It
didn't really help, but I was in the process of getting married,
changing jobs (and insurance) going on my honeymoon etc, and it
subsided a bit, so I didn't' do much about. After that I was in
graduate school and went to the student health center (thought it was
bacterial, UTI, etc) and finally referred me to a new gyn who thought
maybe it was herpes (no, tests came back negative)...

Somewhere in there I started having a lot of pain with intercourse,
but not at other times.

In between i have been to other gyns, a dermatologist, had a
miscarriage, then got pregnant and had a baby (now almost 2), so I
haven't been really too diligent about trying to solve this....Now, my
son is done nursing, I have a stable job, and I am really trying to
get some improvement.

I have most recently been going to a gyn specialist.
He has treated the pain and the itching separately. The pain I
have been using a lidocaine cream. I was using it about 4-6 times per
day. Now I only use it right before sex. It has been extremely
helpful, and I am basically in good shape on the pain portion of it
now. That leaves me with the itching.

Earlier this spring the dr. did a biopsy. It came back negative for
everything he tested. I have tried many topical treatments with no
success, as well as an injection. The latest thing is that he put me on hydroxyzine. It is an antihistamine. It is helping, not completely, but significantly. However, it makes me drowsy. Since its working he thinks that there is an allergy component, or at least a systemic, internal
inflammation. the best of my understanding.

I am having a flare up now, or the last couple of weeks. I went in
and saw the nurse practitioner. She says I may have yeast, although
not conclusively. She said I have some symptoms, but not exactly.
she is sending a culture, but said that yeast doesn't always culture
well, so it is mostly a formality.

Ok, symptoms that I have with the itching....
- redness
- itching very localized to 2 or 3 spots, depending on the severity of
the flare up
- sometimes (particularly when there are flares) white sort of film
over the labia skin and whole area, sometimes white sort of clumpy
(but very small - not really cottage cheese like) discharge in the same area.
- one area that is always the worst, never goes away is right in the fold.

I already use unscented detergent, mild soaps, diva cup, cotton
underwear, no underwear to sleep....etc. ...

I am wondering about some type of chronic yeast (although the dr's
keep saying no, and cultures come back negative). Maybe a low level
amount, but chronic, or a rare form? I'm also trying to think what
else I could be allergic to...maybe some type of food allergy? What
would be systemic like that? My son has several food allergies and i
was already off of milk, nuts, eggs, soy, when i was nursing him.

A gluten allergy was suggested to me by a friend. If I were to go off of gluten, how long would I need to go off of it for? Any other thoughts? Any other things to try?

I apologize that this is so long. I want to give some history, and see
if anyone can offer any suggestions or thoughts. I am ready to try
some alternative routes. the drs obviously don't really know what is

Thanks in advance for any help you can offer!

Tara Spitzer-List

· Registered
40 Posts
Discussion Starter · #3 ·

Originally Posted by Pogonia View Post
Have you looked at vulvodynia? I found that was my problem when researching the bad effects of soy:

I know how miserable the burning itchiness can be!

I think that is the problem for the pain, but I don't know if that can be the itching...I haven't been able to find out much about that. Have you seen itching related to vulvodynia?

· Registered
991 Posts
A gluten allergy was suggested to me by a friend. If I were to go off of gluten, how long would I need to go off of it for? Any other thoughts? Any other things to try?
i dont know about any of your symptoms (
sorry, not much help), but it can take as long as 3months for gluten to clear the system.
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