Oh mama, I'm so sorry you didn't get help immediately! It sounds like you're working SO hard to breastfeed your son. Good for you, you are doing an incredible thing for him! You've been breastfeeding SEVEN MONTHS, and that is AWESOME. So many babies don't get that much breastfeeding, even without the crappy breastfeeding hand you've been dealt. You're a fantastic mama!
I'm kind of in a similar situation to you. DD had a type 3 tongue tie, and posterior tongue tie. We got it clipped when she was 2 weeks old, and expected it to help immediately. It didn't help at all!!! Well, it did make breastfeeding a little less painful for me, but it definitely wasn't the magical solution that I was hoping for.
I'm lucky to live in NYC, so I have access to tongue tie experts here. I saw Cathy Genna (an IBCLC who's one of the experts on posterior tongue tie) after DD's first frenotomy, to get her advice. She said the DD needed a 2nd clipping. Cathy said it's common for the tongue tissues to kind of pull back after a clipping, which exposes more frenulum that also needs to be clipped.
It took me another two weeks to get an appointment for a 2nd clipping. I think I know how you feel, having to wait until May for your appointment. I cried. DD wasn't gaining weight fast enough (still isn't
), and she was only two weeks old at the time--so new and fragile! I was terrified that I wouldn't be able to get her enough milk to keep her alive another two weeks. I mean, obviously I wouldn't have let her starve to death, but those were the terrifying hypothetical situations that my hormonal mama brain came up with.
We got DD's tongue clipped a 2nd time a few days ago (on her 1 month birthday). And still, it hasn't made any noticeable difference. I'm hoping that as we do the post-frenotomy tongue exercises (Do you have a copy of those? Do you want me to send them to you? They're not just to stretch the tissues, they're to help formerly tongue-tied babies relearn the movements they should have done instinctively with their tongues) her latch will improve. I think we should start supplementing with my pumped breastmilk, but DD can't figure out how to suck anything out of a bottle, and freaks out when we try to use an eye dropper. I think we're going to try a Hazelbaker finger feeder. Have you heard of that? It's like a tube that you put on your finger, and the baby sucks milk out of it as they suck your finger. I'm hoping that it will improve our situation, because I'll be able to do suck training with her while she's getting extra calories.
But wait, why didn't that doctor do a second clipping? Isn't that why you went? Would he do one if you asked? The ENT we saw wasn't convinced that DD needed a second clipping, but she did one because we thought it might help. If your intuition thinks it would help, I'd give it another shot.