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I'm really sorry that you are mourning. I went through a similar period with my daughter, and it was really, really difficult. The best advice I can give is to hold him and love him. Pumping also really helped me...I felt that at least I was doing something.

As for yor muscle tone question, muscle tone varies and changes a lot during the first few years. In general, kids with CP start out floppy and then start to get kind of stiff, especially in the arms and legs. Some children, especially those with hypoxic injuries, are very stiff initially and then start to get floppy later in. These children often arch a lot and sometimes it appears that they have good head and trunk control because they tend to hyperextend all the time. This is a pic of my dd at about 5 months of age...it appears she has good head, trunk, and arm muscle tone. http://www.photos.agrawalkids.com/ka...na2/pushup.jpg She could even roll over at this age. Eventually this tone disappeared. In my dd's case, she became real floppy in her trunk and can no longer hold up her head or trunk since about 18 months old. Her case is severe, though, with a very prfound injury to her brain.

I guess what I am trying to say is that tone changes A LOT during the first two years. It may change for the better, and it may change for the worse. It is really hard to know. I would suggest having your child folowed by a physiatrist and maximizing muscle tone treatments available to prevent any damage from occurring. My dd has had treatment with low-dose valium and other muscle relaxants, baclofen, and botox, as well as bracing.
 
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